Menu

Alpha Stories

Happy 25th transplant anniversary to Mary Pierce

Happy 25th transplant anniversary to Mary Pierce
Monday, April 2, 2018
This is an excerpt of a story that originally appeared in the Spring 2013 issue of Alpha-1-To-One Magazine. Mary Pierce was diagnosed with Alpha-1 on her 40th birthday, Feb. 16, 1987. She’d been home sick from work for about a week when she got a call from her new primary care doctor who ran a small practice in the little town of St. Joseph, Michigan. Both her parents were...
Divider

Celebrating Women: Susan Stanley and Sandy Lindsey

Celebrating Women: Susan Stanley and Sandy Lindsey
Saturday, March 31, 2018
During Women’s History Month, we are featuring the stories of women who help make the Alpha–1 community great. When Alexandra “Sandy” Lindsey, Susan Stanley, and John Walsh met one another in the early 1990s, they quickly became fast friends, despite their disparate personalities. Stanley was a diminutive dynamo, energetic and gregarious. Lindsey was an elegant woman...
Divider

In honor of Bruce Parker

In honor of Bruce Parker
Friday, March 30, 2018
The Alpha–1 community, including AlphaNet and the Alpha–1 Foundation, is grieving the loss of our friend, and AlphaNet REACH program coordinator Bruce Parker, from Chattanooga, TN. Bruce, who was also an Alpha, parted on March 28, 2018 after some health complications overwhelmed him. He is survived by his wife of 47 years, Marcia. “We don’t have any kids, but lots of...
Divider

Celebrating women: Caregiver Dawn Bailey

Celebrating women:  Caregiver Dawn Bailey
Wednesday, March 28, 2018
During Women’s History Month, we are featuring the stories of women who help make the Alpha–1 community great. Dawn Bailey was overwhelmed with the new responsibilities of caring for Rob when he was released from an extended hospital stay. “I asked the nurse if they had any type of information to help me learn how to care for him at home, but she suggested I take a nursing...
Divider

Celebrating women: Alpha-1 Mom Kate Mullen & Donor Sarah McKitterick

Celebrating women:  Alpha-1 Mom Kate Mullen & Donor Sarah McKitterick
Wednesday, March 14, 2018
During Women’s History Month, we are featuring the stories of women who help make the Alpha–1 community great. Finn O’Sullivan of New York is known to many now as “Finn the Mighty Warrior." At 8 weeks of age, following a liver biopsy and a trip to Boston Children’s Hospital, Finn was diagnosed with the rare liver disease, biliary atresia. Within 24 hours,...
Divider

Celebrating women: Caregiver Donna Thornton

Celebrating women:  Caregiver Donna Thornton
Friday, March 9, 2018
During Women’s History Month, we are featuring the stories of women who help make the Alpha–1 community great. Donna and Kreg Thornton could not convince their primary care physician that Kreg’s breathing issues were not being caused by what their doctor called chronic asthma. Donna and Kreg Thornton It was not until a family vacation in 2009, when Kreg had great...
Divider

Celebrating Women: Alpha-1 Mom shares son's transplant journey

Celebrating Women: Alpha-1 Mom shares son's transplant journey
Friday, March 2, 2018
During Women's History Month, we are featuring the stories of women who help make the Alpha-1 community great. Jude’s journey began at 4 weeks of age when, following seizures and emergency brain surgery, he was diagnosed with a vitamin K deficiency and began receiving treatment for this at his home in Coral Springs, Fla. Later, when he began to have liver issues, his physicians...
Divider

Lancaster woman celebrates anniversary of double lung transplant

Lancaster woman celebrates anniversary of double lung transplant
Wednesday, February 14, 2018
As the anniversary of her double lung transplant passed, Crystal Chilcote spent the day with her daughter getting lunch and shopping. While these may seem like normal, everyday tasks for the average person, simply walking to her mailbox was not an option for Chilcote, a 53-year-old Lancaster (Pennsylvania) resident who was diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1) and developed...
Divider
12345678910Last