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Celebrating Women's History Month - Miriam O’Day

Celebrating Women's History Month - Miriam O’Day
Wednesday, March 23, 2016
This story first appeared in the Fall 2015 issue of Alpha-1-To-One Magazine. Miriam O’Day and John Walsh first met in the late 1990s, when O’Day was vice president of the Immune Deficiency Foundation (IDF). They worked together for years on blood safety issues that were critical to both of them, since the immune deficiency and Alpha-1 communities both depended on...
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Celebrating Women's History Month - Mary Pierce

Celebrating Women's History Month - Mary Pierce
Wednesday, March 16, 2016
This is an excerpt of a story that originally appeared in the Spring 2013 issue of Alpha-1-To-One Magazine. Mary Pierce was diagnosed with Alpha-1 on her 40th birthday, Feb. 16, 1987. She’d been home sick from work for about a week when she got a call from her new primary care doctor who ran a small practice in the little town of St. Joseph, Michigan. Both her parents were smokers,...
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Celebrating Women's History Month - Sandy Lindsey and Susan Stanley

Celebrating Women's History Month - Sandy Lindsey and Susan Stanley
Wednesday, March 9, 2016
This story first appeared in the Spring 2004 issue of Alpha-1-To-One Magazine. When Alexandra “Sandy” Lindsey, Susan Stanley, and John Walsh met one another in the early 1990s, they quickly became fast friends, despite their disparate personalities. Stanley was a diminutive dynamo, energetic and gregarious. Lindsey was an elegant woman with a strong social conscience, a knack for...
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Alpha-1 Foundation Board Member organizes Rare Disease Day event in Indiana

Alpha-1 Foundation Board Member organizes Rare Disease Day event in Indiana
Wednesday, February 24, 2016
Tom Corron noticed that his breathing was becoming more difficult. He was suffering from respiratory infections that lingered for a long time, and it was getting harder for him to climb stairs. Tom Corron He visited his doctor, who advised him in 2005 that his lung capacity was at 42 percent, that he had lung damage, and that he would need a lung transplant in five years. He was tested and...
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Alpha-1 support group leader educates about the condition

Alpha-1 support group leader educates about the condition
Monday, February 22, 2016
It’s not what’s there. It’s what isn’t there. Carol Logan displays some of the information she has compiled on Alpha-1. Some people in the United States have a hereditary condition called Alpha-1 Antitrypsin Deficiency (Alpha-1). Alpha-1 occurs when there is a lack of a protein in the blood called alpha-1 antitrypsin, or the alpha-1 protein....
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Alpha fights lung disease with long-distance cycling

Alpha fights lung disease with long-distance cycling
Tuesday, February 16, 2016
During the wee hours of Jan. 26, in the deep woods of northern Minnesota a few miles from the Canadian border, Erwin Reitsma pedaled through the night. Erwin Reitsma Riding his fatbike along snowy trails in the dark, he passed a circle of bloody snow — sure sign of a recent wolf kill. Two bikers passed him coming the other direction, retreating to civilization. Tracks of cyclists...
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Bodybuilder fights Alpha-1 breathing problems with exercise

Bodybuilder fights Alpha-1 breathing problems with exercise
Thursday, February 4, 2016
Nobody has to tell Bob Thornsberry the importance of exercise. He first began lifting weights regularly when he was a fullback on the high school football team in Memphis, Michigan. Bob Thornsberry “When I got into the Air Force shortly after high school in 1969, I got back into weightlifting right after basic training,” says Thornsberry, now 65, of Land O’ Lakes, Florida....
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Alphas need fitness program to improve breathing, says fitness trainer dealing with her own breathing challenges

Alphas need fitness program to improve breathing, says fitness trainer dealing with her own breathing challenges
Wednesday, January 20, 2016
Jodi Fillmore was in the best shape of her life more than four years ago when she entered a bodybuilding competition. When the event was over, she had beaten all of her competitors except one, and had designs on a professional bodybuilding career. There, she could compete full-time and earn prize money. Jodi Fillmore But soon after that brief moment of glory in September 2011, she noticed...
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