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Nicotine addict finds hope after Alpha-1 Antitrypsin Deficiency diagnosis

Nicotine addict finds hope after Alpha-1 Antitrypsin Deficiency diagnosis
Wednesday, July 19, 2017
Diagnosed with the lungs of a 126-year-old man from years of smoking and a rare genetic lung disorder, Ryan Taylor moved home from Alberta this past Christmas to die. But a news report his father saw on Memorial’s School of Pharmacy’s Smoking Cessation Program became Mr. Taylor’s springboard for newfound hope, at home in Newfoundland and Labrador. Ryan Taylor (Photo...
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5-year old Alpha becomes the face of Australia’s DonateLife Week

5-year old Alpha becomes the face of Australia’s DonateLife Week
Monday, July 17, 2017
If you still aren't sure about whether or not to become an organ donor, look into the eyes of Archer Irwin. The five-year-old from Wodonga has become the face of DonateLife Week, the federal government's push to have more people sign on to the national organ donor registry. Archer Irwin, 5, with his mom, Nikki. (Photo Credit: James Wiltshire) Archer's face is on...
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Alphas are a close-knit family, former support group leader says

Alphas are a close-knit family, former support group leader says
Monday, January 9, 2017
Bobbie Stafford served as the Northern California Alpha-1 Support Group leader from 1992 to 2010, then again from 2012 to 2014. She shared the following personal story with the Alpha-1 community. Bobbie Stafford I’ve never quite bought the declaration, made by some, that Alpha-1 was “not a rare disease, only rarely diagnosed.” After all, the disorder is included in the...
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Celebrating Women's History Month - Miriam O’Day

Celebrating Women's History Month - Miriam O’Day
Wednesday, March 23, 2016
This story first appeared in the Fall 2015 issue of Alpha-1-To-One Magazine. Miriam O’Day and John Walsh first met in the late 1990s, when O’Day was vice president of the Immune Deficiency Foundation (IDF). They worked together for years on blood safety issues that were critical to both of them, since the immune deficiency and Alpha-1 communities both depended on...
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Celebrating Women's History Month - Mary Pierce

Celebrating Women's History Month - Mary Pierce
Wednesday, March 16, 2016
This is an excerpt of a story that originally appeared in the Spring 2013 issue of Alpha-1-To-One Magazine. Mary Pierce was diagnosed with Alpha-1 on her 40th birthday, Feb. 16, 1987. She’d been home sick from work for about a week when she got a call from her new primary care doctor who ran a small practice in the little town of St. Joseph, Michigan. Both her parents were smokers,...
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Celebrating Women's History Month - Sandy Lindsey and Susan Stanley

Celebrating Women's History Month - Sandy Lindsey and Susan Stanley
Wednesday, March 9, 2016
This story first appeared in the Spring 2004 issue of Alpha-1-To-One Magazine. When Alexandra “Sandy” Lindsey, Susan Stanley, and John Walsh met one another in the early 1990s, they quickly became fast friends, despite their disparate personalities. Stanley was a diminutive dynamo, energetic and gregarious. Lindsey was an elegant woman with a strong social conscience, a knack for...
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Alpha-1 Foundation Board Member organizes Rare Disease Day event in Indiana

Alpha-1 Foundation Board Member organizes Rare Disease Day event in Indiana
Wednesday, February 24, 2016
Tom Corron noticed that his breathing was becoming more difficult. He was suffering from respiratory infections that lingered for a long time, and it was getting harder for him to climb stairs. Tom Corron He visited his doctor, who advised him in 2005 that his lung capacity was at 42 percent, that he had lung damage, and that he would need a lung transplant in five years. He was tested and...
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Alpha-1 support group leader educates about the condition

Alpha-1 support group leader educates about the condition
Monday, February 22, 2016
It’s not what’s there. It’s what isn’t there. Carol Logan displays some of the information she has compiled on Alpha-1. Some people in the United States have a hereditary condition called Alpha-1 Antitrypsin Deficiency (Alpha-1). Alpha-1 occurs when there is a lack of a protein in the blood called alpha-1 antitrypsin, or the alpha-1 protein....
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