Alpha-1 Kids

Alpha-1 Kids

The Alpha-1 Kids program is dedicated to providing support, education & information for parents and families of children affected by Alpha-1.




A Patient Information and Resource Referral Line assists parents in obtaining information, locating resources and expert physicians on Alpha-1 throughout the nation. Telephone: (877) 346-3212.

A Peer Guide Program links parents with other parents as a source of information and support to families hearing the diagnosis for the first time to those who have been coping with the deficiency for years.

A Genetic Counseling Program is a resource for parents. A certified genetic counselor can answer all questions regarding Alpha-1, its genetic implications and considerations for additional family testing. Telephone: (877) 228-7321 ext. 326.

An Alpha-1 Kids Virtual Support Group meets every other month and covers specialized topics for parents. Recordings of these calls are available on our website.

The Alpha-1 Story Video


Robert Seigman Memorial Scholarship Fund

Travel scholarships are provided to newly diagnosed and returning families to attend the Alpha-1 Foundation's annual National Education Conference through the Robert Seigman Memorial Scholarship Fund. A Kids and a Teen room provide the opportunity for parents to attend the conference while their children are enjoying activities with other Alpha children and teens. Activities are planned for both groups and staffed by parents. To apply for a scholarship, email Cathy Horsak at


Alpha-1 Kids Books


Thank you to our generous program sponsors.