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First John W. Walsh Translational Research Award granted

First John W. Walsh Translational Research Award granted
Wednesday, January 31, 2018
MIAMI/BOSTON, January 31, 2018 – The Alpha-1 Foundation celebrates the first granting of the John W. Walsh Translational Research Award in Alpha-1 Antitrypsin Deficiency, an honorable award named after John W. Walsh, co-founder of the Alpha-1 Foundation, a visionary man who dedicated his life’s work to finding a cure for Alpha-1 Antitrypsin Deficiency and helping those affected by...
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Alpha-1 gene therapy trial doses first patient, recruitment continues

Thursday, January 11, 2018
Adverum Biotechnologies, a clinical-stage gene therapy company targeting unmet medical needs in several diseases, is recruiting patients for a clinical trial for Alpha-1 Antitrypsin (A1AT) Deficiency, designed to evaluate the safety and protein...
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Spark Therapeutics explores payment options after revealing price tag for first gene therapy in the US

Thursday, January 4, 2018
Philadelphia based pharmaceutical company, Spark Therapeutics, confirmed conversations with the U.S. Centers of Medicare and Medicaid Services on a proposal that would allow for multi-year payment plans for its innovative treatment, Luxturna, the...
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ATS renames PAR Excellence Award after John W. Walsh

Wednesday, December 13, 2017
The American Thoracic Society (ATS) Public Advisory Roundtable was moved to rename the annual PAR Excellence Award by a unanimous vote in November. The award, presented at the ATS International Conference, will now be referred to as the...
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Alpha-1 research pioneer Jack A. Pierce, MD, passes away

Thursday, December 7, 2017
“One of the early investigators of Alpha–1 and the initial head of the one of the first Pulmonary and Critical Care departments in the country at Washington University in St. Louis has died at the age of 92. I believe few of...
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Recruitment begins for gene therapy clinical trial for Alpha-1 Antitrypsin Deficiency

Tuesday, December 5, 2017
Enrollment for a trial for a new treatment for Alpha–1 related lung disease begins today. Adverum Biotechnologies, in partnership with the Alpha–1 Foundation will be recruiting patients, as well as healthy ZZ and Znull...
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Your helping hand has an impact for Alphas worldwide

Friday, December 1, 2017
When you donate to the Alpha–1 Foundation, you are helping Alphas everywhere by providing support services to newly diagnosed adults and children, giving access to education to both Alphas and medical professionals, allowing for family...
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UK company acquires license for a potential pill-based Alpha–1 lung therapy

Wednesday, November 1, 2017
Mereo BioPharma Group, a clinical stage, UK-based, biopharmaceutical company focused on rare and specialty diseases, announced that it has reached an agreement with AstraZeneca for an exclusive license, including an option to acquire, AZD9668, an...
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Uncertainty added to health insurance markets

Friday, October 13, 2017
It has been an eventful 24 hours in Washington as President Trump made a number of announcements related to health insurance policy.  First, he signed an executive order that seeks to increase competition by facilitating access to association...
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Celebrating plasma donors worldwide

Wednesday, October 11, 2017
International Plasma Awareness Week (IPAW) brings awareness to the importance of plasma donors worldwide. “During PPTA’s International Plasma Awareness Week, we want to thank all the donors that make life sustaining Alpha–1...
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Medicare says 2018 to offer more health coverage choices and decreased premiums

Friday, September 29, 2017
Today, the Centers for Medicare & Medicaid Services (CMS) announced that people with Medicare will have more choices and options for their Medicare coverage in 2018. As CMS releases the benefit and premium information for Medicare health and...
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Record-breaking year for Team Alpha-1 at Escape to the Cape

Friday, September 29, 2017
As summer wanes and fall begins, Team Alpha–1 is decompressing from another successful Autumn Escape Bike Trek. This year has seen many firsts over our 23-year history of participating in this event with the American Lung Association of the...
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Bob Campbell passes away, Foundation Communications Director, former AlphaNet Coordinator

Friday, July 28, 2017
Our dear friend and colleague, Bob Campbell passed Thursday evening with his wife Elizabeth by his side. Campbell began his Alpha-1 journey when he was diagnosed by his allergist. In 2002, he took the leap and became an AlphaNet...
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