November is Alpha-1 Awareness Month
Alpha-1 awareness is a year-round endeavor, but during the month of November we ask EVERYONE to become engaged and increase #Alpha1Awareness. To help you get started, we have created some free materials that you can download and print, share on social media and share by email. Do your part to increase #Alpha1Awareness in your community, around the country and on social media!
Could it be Alpha-1? - A Diagnosis Story
Meet Ron, a COPD patient who has unexplained liver disease. His doctor is working with him to find the root cause of his symptoms. In spite of not fitting into the usual stereotype for the rare genetic condition, Alpha-1 Antitrypsin Deficiency, his doctor decides to perform the simple blood test.
Digital Awareness Toolkit
Post any of these shareable #Alpha1Awareness images as your profile pictures and/or share them on Facebook, Twitter and Instagram from November 1st to 30th. Be sure to tag the Alpha-1 Foundation and don't forget to use the official Alpha-1 awareness hashtag #Alpha1Awareness! Need ideas for captions? Scroll down to Printable Resources and click on "Sample Social Media Posts".
Social Media Profile Imagesplus
The images below have been optimized to fit the dimensions of standard social media images. Share them on your social media accounts from November 1st to 30th and use #Alpha1Awareness. Be sure to tag the Alpha-1 Foundation on: Facebook, Twitter and Instagram.
Download the image below and add it to your email signature. Be sure to link the image to the Alpha-1 Awareness page at www.alpha1.org/awareness.
Shareable Alpha-1 Awareness Imagesplus
Shareable Alpha-1 Memesplus
Host a Virtual Walk!
Stroll around your living room, stride through your neighborhood, or step onto the treadmill. You’ll not only get some good exercise, but also raise awareness of Alpha-1.
The second annual “Virtual Walk for Alpha-1,” organized by the Alpha-1 Foundation, allows anyone who wants to make a difference in the Alpha-1 community to contribute in their own style, in their own time, and at their own pace.
Send Us YOUR Awareness Activities
Each time you do something to increase Alpha-1 awareness, e-mail us and we will send you a certificate of recognition to share on social media and/or print out. Your name will also be entered into a special contest. Winners will be announced in December. It can be as simple as sharing a picture of you wearing your purple Alpha-1 shirt!
Here’s what to do:
1. Snap a picture of you and/or your friends, family, healthcare providers, neighbors, etc., (even your pets!) raising awareness of Alpha-1.
2. Send the picture to firstname.lastname@example.org along with:
- Your full name
- Contact information including phone number, complete mailing address and email
- Social media profile names (if any) for Facebook, Twitter and Instagram
- A short description of your action that raised awareness of Alpha-1
3. Follow the Alpha-1 Foundation on social media: Facebook, Twitter and Instagram
Each time you submit your way of increasing awareness of Alpha-1, your name will be submitted to win one of the following prizes:
- 2 Night Hotel Stay (Friday and Saturday) at the 2017 National Conference
- Complementary Registration Fee to the 2017 National Conference
- Alpha-1 Swag Pack filled with Alpha-1 Awareness Gear
We will be featuring some submissions on our Facebook, Twitter and Instagram accounts, so be sure to send yours throughout the month of November!
Alphas all over the United States are asking their governors and mayors to declare the month of November Alpha-1 Awareness Month.
View 2016 Proclamationsplus
Obtained by Lisa Lambert
Obtained by Geoffrey Holmberg
Obtained by Faith and Steve Petty
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Obtained by Diane and Larry Angell
Obtained by Deb Burwell and Jackie English
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Obtained by Sue Binnall and Sheila Favazza
Obtained by Jeannette Therrian
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Obtained by Dick Bueker and Peggy Paul
Obtained by Charlie Gregory and John Bradley
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Obtained by Ann Dissinger and Jesse Strickland
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Obtained by Eric Butcher and Tammi Presley
Obtained by DC and Claudia Young
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Our Awareness Gear page has Alpha-1 items that you can get for friends and family to help spread the word about Alpha-1.
Where Does Your Money Go?
The Alpha-1 Foundation has invested nearly $60 million to support Alpha-1 research and programs in 103 institutions in North America, Europe, the Middle East, and Australia.