November is Alpha-1 Awareness Month
Host a Virtual Walk!
Stroll around your living room, stride through your neighborhood, or step onto the treadmill. You’ll not only get some good exercise, but also raise awareness of Alpha-1.
The second annual “Virtual Walk for Alpha-1,” organized by the Alpha-1 Foundation, allows anyone who wants to make a difference in the Alpha-1 community to contribute in their own style, in their own time, and at their own pace.
Could it be Alpha-1? - A Diagnosis Story
Meet Ron, a COPD patient who has unexplained liver disease. His doctor is working with him to find the root cause of his symptoms. In spite of not fitting into the usual stereotype for the rare genetic condition, Alpha-1 Antitrypsin Deficiency, his doctor decides to perform the simple blood test.
What is Alpha-1?
Alpha-1 Antitrypsin Deficiency (Alpha-1) is an inherited condition that can cause severe lung disease in adults and liver disease at any age.
There are at least 100,000 people with Alpha-1 in the United States. But fewer than 10% have been diagnosed.
Alpha-1 is the most common known genetic risk factor for emphysema.
About 1 in every 2,500 Americans may have Alpha-1.
Alphas all over the United States are asking their governors and mayors to declare the month of November Alpha-1 Awareness Month. See sample letters, proclamations and media contact info here.
Our Awareness Gear page has Alpha-1 items that you can get for friends and family to help spread the word about Alpha-1.
Where Does Your Money Go?
The Alpha-1 Foundation has invested nearly $60 million to support Alpha-1 research and programs in 103 institutions in North America, Europe, the Middle East, and Australia.