Menu

Publications

Alpha-1-To-One magazine

Alpha-1-To-One magazine is filled with practical advice, personal stories and news for people touched by Alpha-1 Antitrypsin Deficiency.

In the Fall 2018 issue:

This issue profiles Robert Barrett, who just retired after 20 years as AlphaNet president and CEO and Alpha-1 Foundation executive vice president and CFO.

 

Divider

Educational and research brochures

All of our educational and research brochures are available for download. You can also request printed brochures. To start your download, click on any of the links below.

 

English

 

Divider

E-Education

E-Education

Watch recordings from our past Educational Events at your leisure anywhere and anytime! Our E-Education has more than 400 presentations that cover important Alpha-1 related topics.

This program provides the Alpha-1 Community with access to educational programs from our National Conference and National Education Series.

Divider
Divider

Life Choices

Life Choices is a toolkit that addresses the needs of Alpha-1 patients and family members related to end of life decisions. It focuses on the legal, clinical and emotional needs in a constructive, supportive and positive manner. It promotes dialogue among family members regarding sensitive issues and moves a person to a new understanding regarding end of life wishes. We gratefully acknowledge CSL Behring and Grifols for sponsoring this program.

Life Choices includes a Five Wishes Living Will which "helps you express how you want to be treated if you are seriously ill and unable to speak for yourself. It deals with all of a person's needs: medical, personal, emotional and spiritual."

The resources found in Life Choices can be downloaded below as PDFs: