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Publications

Alpha-1-To-One magazine

Alpha-1-To-One magazine is filled with practical advice, personal stories and news for people touched by Alpha-1 Antitrypsin Deficiency.

In the Spring 2018 issue:

On the cover: Jonathan Maidment shares his plan to hike the Pacific Crest Trail to raise awareness and funds.

 

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E-Education

E-Education

Watch recordings from our past Educational Events at your leisure anywhere and anytime! Our E-Education has more than 400 presentations that cover important Alpha-1 related topics.

This program provides the Alpha-1 Community with access to educational programs from our National Conference and National Education Series.

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Life Choices

Life Choices is a toolkit that addresses the needs of Alpha-1 patients and family members related to end of life decisions. It focuses on the legal, clinical and emotional needs in a constructive, supportive and positive manner. It promotes dialogue among family members regarding sensitive issues and moves a person to a new understanding regarding end of life wishes. We gratefully acknowledge CSL Behring and Grifols for sponsoring this program.

Life Choices includes a Five Wishes Living Will which "helps you express how you want to be treated if you are seriously ill and unable to speak for yourself. It deals with all of a person's needs: medical, personal, emotional and spiritual."

The resources found in Life Choices can be downloaded below as PDFs: