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Alpha-1 Winter 2014 Cover

Alpha-1-To-One magazine

Alpha-1-To-One is filled with practical advice, personal stories and news for people touched by Alpha-1 Antitrypsin Deficiency.

In the Fall 2016 issue:

  • New Alpha-1 Foundation CEO Henry Mohering talks about his first months and the vision for  the future.
  • Robert Sandhaus, MD, PhD, gives an overview of updated clinical guidelines for diagnosis and treatment of Alpha-1.
  • Alpha Julie MacNeil's diagnosis sparks a journey to find her birth mother.
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Life Choices

Life Choices is a toolkit that addresses the needs of Alpha-1 patients and family members related to end of life decisions. It focuses on the legal, clinical and emotional needs in a constructive, supportive and positive manner. It promotes dialogue among family members regarding sensitive issues and moves a person to a new understanding regarding end of life wishes. We gratefully acknowledge CSL Behring and Grifols for sponsoring this program.

Life Choices includes a Five Wishes Living Will which "helps you express how you want to be treated if you are seriously ill and unable to speak for yourself. It deals with all of a person's needs: medical, personal, emotional and spiritual."

The resources found in Life Choices can be downloaded below as PDFs: