Alpha-1 Winter 2014 Cover

Alpha-1-To-One magazine

Alpha-1-To-One is filled with practical advice, personal stories and news for people touched by Alpha-1 Antitrypsin Deficiency.

In the Spring 2016 issue:

  • Mark Brantly, MD, talks about his career and hopes for new therapies. "I promised everybody that I was going to develop new therapies for this community. That is my mission in life."
  • Perfusion systems continue to save lungs once considered not transplantable. Martin Zamora, MD, and Michael Weyant, MD, began working on the NOVEL trial of ex vivo lung perfusion system. 
  • Jim Keith talks about how pulmonary rehab changed his life and provided him with education and support for all aspects of living with Alpha-1 lung disease. 

Life Choices

Life Choices is a toolkit that addresses the needs of Alpha-1 patients and family members related to end of life decisions. It focuses on the legal, clinical and emotional needs in a constructive, supportive and positive manner. It promotes dialogue among family members regarding sensitive issues and moves a person to a new understanding regarding end of life wishes. We gratefully acknowledge CSL Behring and Grifols for sponsoring this program.

Life Choices includes a Five Wishes Living Will which "helps you express how you want to be treated if you are seriously ill and unable to speak for yourself. It deals with all of a person's needs: medical, personal, emotional and spiritual."

The resources found in Life Choices can be downloaded below as PDFs: