Menu

Top Stories

Zemaira update

Zemaira update
Tuesday, December 4, 2018
The Alpha-1 Foundation was informed by CSL Behring that Zemaira, their prescription drug for augmentation therapy for the treatment of Alpha-1 Antitrypsin Deficiency (Alpha-1), returned to normal distribution on Monday, December 3rd, 2018. This is good news for patients who rely on this product, especially as we head into the cold and flu season.  The Foundation bases its knowledge of...
Divider

Alpha-1 advocate Nancy C. Irsay, widow of former Indianapolis Colts owner, dies

Friday, November 13, 2015
Alpha Nancy C. Irsay, 65, the widow of Indianapolis Colts owner Robert Irsay, died Nov. 7, 2015. Irsay, a lung-affected Alpha, urged people with recurring asthma, breathing problems and chronic obstructive pulmonary disease (COPD) to get tested...
Divider

“Jaunt for John” Virtual Walk raises over $8,000

Thursday, November 12, 2015
To sign up for the 2016 Virtual Walk, click here. John Byrnes, a liver-affected Alpha, desperately needed a transplant. But doctors said he was not sick enough to move to the top of the transplant list. He died on Nov. 28, 2014 after fighting a...
Divider

Nurse practitioner insists on testing patients for Alpha-1

Monday, November 9, 2015
When Carolyn LaMar’s patients come to her with emphysema, shortness of breath, recurring chest colds or any other kind of ongoing breathing problem, she insists on testing them for Alpha-1. “I just rule it out,” said LaMar, 67,...
Divider

Uninsured rate drops to 9 percent under Obamacare

Friday, November 6, 2015
The Obama administration received some good news on Thursday after a Centers for Disease Control and Prevention report said the uninsured rate has hit a new low since Obamacare took effect. According to the CDC report, the uninsured rate was at 9...
Divider

PSI announces medical financial assistance for Alphas

Thursday, November 5, 2015
Patient Services, Inc. (PSI), a not-for-profit organization that supports people living with chronic conditions, has announced the program criteria that will be in place for 2016 copay and premium assistance in  Alpha-1 Antitrypsin...
Divider

Ohio recognizes November 2015 as Alpha-1 Awareness Month

Wednesday, November 4, 2015
Earlier this year, Ohio State Rep. Terry Johnson introduced a bill that designates November 2015 as “Alpha-1 Antitrypsin Deficiency Awareness Month”. HB 29 was passed unanimously by the Ohio House and Senate and was signed by the...
Divider

November is Alpha-1 Awareness Month

Monday, November 2, 2015
MIAMI, Nov. 2, 2015 – The Alpha-1 Foundation is marking Alpha-1 Awareness Month, designed to increase knowledge about Alpha-1 Antitrypsin Deficiency (Alpha-1). Throughout the month of November, people with Alpha-1 will hold educational...
Divider

Buyer beware: Alphas urged to avoid companies advertising unproven stem cell "treatments" that can cost you a fortune

Wednesday, October 28, 2015
This is a note from the Alpha-1 Foundation explaining why Alphas should be wary of claims advertised on the Internet by companies claiming benefits from unproven stem cell and other cell-based "therapies." What are stem cells? Stem cells are the...
Divider

Alphas encouraged to shop around during open enrollment

Tuesday, October 27, 2015
Open enrollment begins Nov. 1. Some critical changes are taking place with Medicare that will affect the Alpha-1 community. The changes could affect an Alpha’s augmentation therapy infusions and other essential coverage. Additionally,...
Divider

NORD launches state-by-state report on rare-disease treatment

Thursday, October 22, 2015
The National Organization for Rare Disorders (NORD)® has developed and released the first-ever State Progress Report to evaluate how states are serving the 30 million Americans with rare diseases. “By creating the State Progress Report,...
Divider

FDA launches learning tool on how to bring new drugs to market

Thursday, October 22, 2015
The U.S. Food and Drug Administration (FDA) has launched a new learning tool designed to help patients, patient advocacy groups, health professionals, small businesses, pharmaceutical and clinical innovators learn more about the drug regulatory...
Divider

Grifols opens $100 million global logistics center in Ireland

Thursday, October 22, 2015
DUBLIN, Ireland -- Grifols officially opened its 236,000-square-foot global operations center for its Bioscience Division today, to warehouse its plasma and plasma-derived products and distribute them to 67 countries around the world. Grifols...
Divider
First3456789101112Last

Article Search

Enter keywords in text box and click Search button for results.