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Zemaira update

Zemaira update
Tuesday, December 4, 2018
The Alpha-1 Foundation was informed by CSL Behring that Zemaira, their prescription drug for augmentation therapy for the treatment of Alpha-1 Antitrypsin Deficiency (Alpha-1), returned to normal distribution on Monday, December 3rd, 2018. This is good news for patients who rely on this product, especially as we head into the cold and flu season.  The Foundation bases its knowledge of...
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NORD to offer Alpha-1 patient premium and copayment assistance

Thursday, January 21, 2016
The National Organization for Rare Disorders (NORD) is offering Alpha-1 premium and copayment assistance programs for 2016. The NORD program begins at the opening of business on Monday, Jan. 25, at 9 am Eastern Time. The program will offer...
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PSI will continue Alpha-1 premium, copay assistance programs in 2016

Thursday, January 21, 2016
Patient Services, Inc. (PSI) has announced that it will continue Alpha-1 premium and copayment assistance programs in 2016. PSI, a not-for-profit organization that supports people living with chronic conditions, has released a document that...
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Mayo Clinic to create lung restoration center to increase the number of lungs available for transplant

Thursday, January 21, 2016
The Mayo Clinic in Jacksonville, Florida and United Therapeutics Corp., a biotechnology company, are working together to create a lung restoration center that they say could double the number of lungs available for transplant in the U.S. The Mayo...
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No health insurance yet for 2016? Here’s what to do by Jan. 31

Monday, January 18, 2016
The 2016 Open Enrollment period for individuals and families to choose a health insurance plan under the Affordable Care Act is quickly coming to a close. While you may not plan on getting hurt or sick this year, these things happen every day....
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Study: Music therapy improves COPD symptoms

Friday, January 15, 2016
A new study has found that patients with chronic obstructive pulmonary disease (COPD) and other chronic respiratory conditions showed signs of improvement in symptoms, psychological well-being, and quality of life when exposed to music therapy in...
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Obama highlights health issues in State of the Union address

Wednesday, January 13, 2016
WASHINGTON — With Americans soon to begin choosing his successor, President Barack Obama is casting his seven divisive years as a time of positive change, implicitly asking voters to replace him with a Democrat who would continue his...
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Alpha-1 Foundation scientific, clinical directors edit book on Alpha-1 for clinicians and researchers

Tuesday, January 12, 2016
A new book edited by two prominent Alpha-1 experts explores the causes and symptoms of the condition, and highlights the role of healthcare organizations in providing treatment. Geared toward pulmonary clinicians and scientists, “Alpha-1...
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Obama vetoes bill to repeal signature healthcare law

Monday, January 11, 2016
WASHINGTON — Protecting his signature domestic achievement, President Barack Obama on Friday vetoed Republican-inspired legislation to repeal his health care law, saying to do so “would reverse the significant progress we have made in...
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U.S. seeks strong finish on healthcare sign-ups amid doubts

Friday, January 8, 2016
WASHINGTON — Seeking a strong showing in President Barack Obama's last year in office, the administration said Thursday 11.3 million people have enrolled for health law coverage with three weeks still left in the sign-up season. But a major...
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Skyrocketing drug prices leave cures out of reach for some patients

Thursday, January 7, 2016
Sophisticated drugs are opening the door, scientists say, to an era of "precision medicine." They're also ushering in an age of astronomical prices. New cancer drugs are routinely priced at more than $100,000 a year — nearly twice the...
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House vote to send health law repeal to Obama for first time

Monday, January 4, 2016
WASHINGTON — After dozens of failed attempts to undo President Barack Obama’s health care law, the GOP-led Congress will finally put a bill on the president’s desk striking at the heart of his signature legislative...
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Family of actor Brooke McCarter encourages donations to Alpha-1 research

Wednesday, December 23, 2015
The family of Lost Boys actor Brooke McCarter, who died Tuesday from Alpha-1 liver disease, is encouraging people to make donations in his memory toward research for a cure. The 52-year-old actor “died from liver failure at his Tampa,...
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