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Zemaira update

Zemaira update
Tuesday, December 4, 2018
The Alpha-1 Foundation was informed by CSL Behring that Zemaira, their prescription drug for augmentation therapy for the treatment of Alpha-1 Antitrypsin Deficiency (Alpha-1), returned to normal distribution on Monday, December 3rd, 2018. This is good news for patients who rely on this product, especially as we head into the cold and flu season.  The Foundation bases its knowledge of...

Nurse practitioners raise awareness of Alpha-1

Friday, April 22, 2016
Carla Ladig suffered from shortness of breath, bronchitis and other lung problems for 17 years, but did not know the cause. Dawn Dunn Two and a half years ago, her symptoms became so severe that she was admitted to the intensive care unit at...

Growing scarcity of liquid oxygen endangers patients, advocates say

Thursday, April 21, 2016
Alphas and others with severe breathing problems who require high-flow oxygen are increasingly finding it difficult to obtain liquid oxygen, effectively making them homebound, forcing them to carry heavy compressed oxygen tanks around with them,...

The Alpha-1 Project extends funding for NIH-NCATS fellowship for a third year

Wednesday, April 13, 2016
The Alpha-1 Project has announced that it will extend funding for the postdoctoral fellowship at the National Institutes of Health’s (NIH) National Center for Advancing Translational Sciences (NCATS) for a third year. The extension follows...

Most doctors unsure how to discuss end-of-life care, survey says

Sunday, April 10, 2016
Doctors know it’s important to talk with their patients about end-of-life care. But they’re finding it tough to start those conversations — and when they do, they’re not sure what to say, according to a national poll...

UMass professors recognized for Alpha-1 research, treatments

Wednesday, April 6, 2016
The Alpha-1 Foundation has recognized Scott E. Kopec, MD, and Christian Mueller, PhD, two professors at the University of Massachusetts, for their work on Alpha-1. Scott E. Kopec, MD and Christian Mueller, PhD “We are...

ATS PAR forum to discuss empowering lung disease patients with technology

Wednesday, April 6, 2016
SAN FRANCISCO, CA – The American Thoracic Society’s Public Advisory Roundtable (ATS PAR), will present the tenth annual patient/family forum, “Meet the Experts” on May 14 in San Francisco. Huong Nguyen, PhD, RN The...

Alpha-1-To-One magazine Spring issue in your mail now

Wednesday, March 30, 2016
The Spring 2016 issue of Alpha-1-To-One magazine has been mailed to well over 20,000 people with free subscriptions, and will soon be available online. This is the cover story, "In search of new therapies for Alpha-1,"  part of a...

Celebrating Women's History Month - Miriam O’Day

Wednesday, March 23, 2016
This story first appeared in the Fall 2015 issue of Alpha-1-To-One Magazine. Miriam O’Day and John Walsh first met in the late 1990s, when O’Day was vice president of the Immune Deficiency Foundation (IDF). They worked...

Celtic Connection raises more than $115,000 for Alpha-1 Foundation

Thursday, March 17, 2016
The corn beef and cabbage, carrots and potatoes were boiled to order. The award-winning Irish step dancers and a live Irish band complemented the Celtic cuisine to create a festive mood, all while helping to raise money for the fight against...

Oklahoma House passes bill cutting 111,000 from Medicaid

Tuesday, March 1, 2016
OKLAHOMA CITY (AP) — Facing a $1.3 billion hole in next year's budget, the Oklahoma House on Wednesday passed legislation that would cut 111,000 Oklahoma residents with dependents from Medicaid and potentially save up to $130 million in...

Alpha-1 Foundation congratulates Califf on confirmation as new FDA commissioner

Thursday, February 25, 2016
The Alpha-1 Foundation today congratulated Robert Califf, MD, on his confirmation as the new commissioner of the U.S. Food and Drug Administration (FDA). Ab Rees, Alpha-1 Foundation acting CEO and president The U.S.  Senate confirmed...

Gulf Coast support group leader raises awareness for Alpha-1

Monday, February 8, 2016
Carol Logan watched her two sisters die in their 30s of a rarely diagnosed disease for which there was no treatment at the time. And while her sisters were growing increasingly ill, Carol learned that she too had the disorder that caused the...

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