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Zemaira update

Zemaira update
Tuesday, December 4, 2018
The Alpha-1 Foundation was informed by CSL Behring that Zemaira, their prescription drug for augmentation therapy for the treatment of Alpha-1 Antitrypsin Deficiency (Alpha-1), returned to normal distribution on Monday, December 3rd, 2018. This is good news for patients who rely on this product, especially as we head into the cold and flu season.  The Foundation bases its knowledge of...

Teens who vape twice as likely to have respiratory symptoms, study reports

Monday, November 21, 2016
Teens are getting burned by e-cigarettes even after they stop using them. Adolescents who currently vape are twice as likely to suffer respiratory symptoms like persistent cough, bronchitis, congestion and phlegm as those who have never used...

People with moderately low oxygen levels don't benefit from oxygen use, study finds

Wednesday, October 26, 2016
Results of a 7-year study of supplemental oxygen for COPD patients with moderately low blood oxygen levels were announced today in the New England Journal of Medicine. Severely low oxygen levels in the blood are a risk factor for Alphas and...

Questions and answers on long-term oxygen trial (LOTT)

Friday, October 21, 2016
Q1: Why was the LOTT study conducted? • Past research has shown that long-term oxygen treatment improves survival in those with chronic obstructive pulmonary disease (COPD) and severely low levels of blood oxygen. However, a...

FDA, Alpha-1 Foundation discuss placebos, trial of augmentation after lung transplants

Friday, September 30, 2016
Just over one year ago, members of the Alpha-1 community traveled from around the country to Silver Spring, Maryland for a meeting with the U.S. Food and Drug Administration (FDA).   Charlotte Mattison, right, gives emotional testimony...

PPTA statement says plasma protein products are safe, not affected by Zika virus

Saturday, September 24, 2016
The Plasma Protein Therapeutics Association (PPTA) has issued a statement saying that the safety of plasma protein therapies is not affected by the Zika virus (ZIKV). "According to recommendations from health authorities, measures such as...

Number of uninsured falls again in 2015

Wednesday, September 14, 2016
The federal health overhaul may still be experiencing implementation problems. But new federal data show it is achieving its main goal — to increase the number of Americans with health insurance coverage. The Affordable Care Act...

Arrowhead begins Phase 2 trial of possible Alpha-1 liver treatment

Tuesday, September 6, 2016
California-based Arrowhead Pharmaceuticals Inc. announced Tuesday that it has begun a Phase 2 clinical study of ARC-AAT, the company's potential treatment for liver disease in people with Alpha-1 Antitrypsin Deficiency (AATD), using the...

Education Day, then Step Forward for Alpha-1 walk in Colorado this weekend

Monday, August 1, 2016
Learn more about Alpha-1, take a walk in the park, and get a free scoop of ice cream during a weekend packed with learning, exercise and fun in Colorado. Robert Sandhaus, MD, addresses Alphas during a 2014 support group picnic at his home,...

Clinical Practice Guidelines published to help physicians identify and treat Alpha-1 Antitrypsin Deficiency in adults

Wednesday, July 20, 2016
The Journal of the COPD Foundation has published new clinical recommendations designed to guide doctors and other healthcare providers on how to properly diagnose and treat Alpha-1 Antitrypsin Deficiency (Alpha-1) in adults. Robert Sandhaus,...

House Republicans win battle In major legal challenge to Obamacare

Thursday, May 5, 2016
The Affordable Care Act could be headed for another major legal showdown after a federal judge on Thursday handed a victory to House Republicans seeking to block subsidies for millions of low-income people. John Boehner Affordable Care Act...

Pope calls for "empathy" in treating people with rare diseases

Tuesday, May 3, 2016
Pope Francis told participants in a Vatican health summit on Friday that a renewed sense of empathy should fuel their work and research, particularly regarding treatment for people who have rare diseases. Pope Francis “It is fundamentally...

Medical errors overtake COPD as No. 3 cause of death in US, study finds

Monday, May 2, 2016
Heart disease, cancer ... and medical errors? A new tally of mistakes made in American hospitals suggests that medical errors are the No. 3 cause of death in the U.S. At least 250,000 deaths each year can be attributed to medical care that has...

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