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Zemaira update

Zemaira update
Tuesday, December 4, 2018
The Alpha-1 Foundation was informed by CSL Behring that Zemaira, their prescription drug for augmentation therapy for the treatment of Alpha-1 Antitrypsin Deficiency (Alpha-1), returned to normal distribution on Monday, December 3rd, 2018. This is good news for patients who rely on this product, especially as we head into the cold and flu season.  The Foundation bases its knowledge of...
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Barbara Pusey honored in memoriam at Alpha–1 awards and recognition night

Monday, June 26, 2017
Barbara Pusey, who was the first AlphaNet Coordinator for the augmentation therapy marketed in the United States as Zemaira and was a major influence in building the AlphaNet Zemaira program into what it is today, was recognized posthumously, with...
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Grifols announces $1 million grant to support Alpha-1 Foundation’s John W. Walsh Research Fund

Monday, June 26, 2017
Washington, DC  — Grifols announced that it will award a million-dollar grant to support the John. W. Walsh Research Fund, the Foundation’s peer-reviewed research program named in honor of Walsh, the Foundation’s co-founder...
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More Than 600 to Hear Top World Experts on Alpha-1 at National Conference in Chicago

Monday, June 5, 2017
CHICAGO, June 5, 2017 – More than 600 people with Alpha–1 Antitrypsin Deficiency – the most common known genetic cause of chronic obstructive pulmonary disease (COPD) – along with their family members, caregivers and...
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Alpha-1 Foundation lauds COPD National Action Plan

Monday, May 22, 2017
The Alpha–1 Foundation applauded today’s launch of the COPD National Action Plan, calling it “a strong tool to identify people affected by genetic COPD caused by Alpha–1, leading to proper diagnoses and treatment for their...
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Alphas in Ireland set to lose access to augmentation therapy

Friday, February 17, 2017
More than 20 people in Ireland who have severe Alpha-1 lung disease are facing the loss of “life-changing” augmentation therapy within weeks following its rejection by the Health Service Executive (HSE).  Noel G....
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Alabama medical practice becomes Alpha-1 Clinical Resource Center

Friday, February 10, 2017
Chest Medicine (CMED) of Cullman, Alabama has been designated as an Alpha-1 Foundation Clinical Resource Center program —one of just two in the state. G. Scott Warner, MD, middle, with nurse practitioners Kristy Keiffer and Glenda...
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Patients increasingly influence direction of medical research

Wednesday, December 7, 2016
Patients and their advocates are getting an ever-larger voice in how medical research is carried out. They participate in the design of experiments and have a greater say in what outcomes they care about most — and it's not always simply...
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Scientists battle in court over lucrative patents for gene-editing technology

Tuesday, December 6, 2016
The high-stakes fight over who invented a technology that could revolutionize medicine and agriculture heads to a courtroom Tuesday. Emmanuelle Charpentier (left) and Jennifer Doudna A gene-editing technology called CRISPR-cas9 could be...
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Ryan says Obamacare repeal is top priority, says people won’t lose healthcare coverage

Monday, December 5, 2016
House Speaker Paul D. Ryan says the next Congress will pursue a repeal of Obamacare immediately, even before Republicans have a replacement in hand, though that repeal will not pull the rug out from 20 million-plus Americans who gained coverage...
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RAPID trial extension study finds augmentation therapy slows disease progression, supports early intervention

Friday, December 2, 2016
The medical journal The Lancet Respiratory Medicine on Thursday, Dec. 1, published findings of the RAPID Open Label Extension study of augmentation therapy for patients with emphysema and Alpha-1 Antitrypsin Deficiency. N. Gerard...
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House overwhelmingly passes 21st Century Cures bill

Thursday, December 1, 2016
WASHINGTON — The House overwhelmingly passed a far-reaching measure on Wednesday to increase funding for research into cancer and other diseases, address weaknesses in the nation’s mental health systems and help combat the prescription...
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Dementia rate falls sharply in older Americans

Tuesday, November 22, 2016
A new study finds that the prevalence of dementia has fallen sharply in recent years, most likely as a result of Americans’ rising educational levels and better heart health, which are both closely related to brain health. Dementia rates...
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