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Zemaira update

Zemaira update
Tuesday, December 4, 2018
The Alpha-1 Foundation was informed by CSL Behring that Zemaira, their prescription drug for augmentation therapy for the treatment of Alpha-1 Antitrypsin Deficiency (Alpha-1), returned to normal distribution on Monday, December 3rd, 2018. This is good news for patients who rely on this product, especially as we head into the cold and flu season.  The Foundation bases its knowledge of...

Flu vaccine should be more effective this season, CDC says

Monday, September 7, 2015
Last year's flu vaccine didn't work very well. This year's version should do a much better job protecting people against the flu, according to federal health officials. An analysis of the most common strains of flu virus that are circulating in...

Largest health insurers issued steepest price hikes, study shows

Monday, August 31, 2015
Bigger might be better, but it can also be pricier—at least when it comes to Obamacare. A new analysis found that the largest insurer in each of the states served by raised their prices in 2015 much more...

CSL augmentation therapy Respreeza approved for Alphas in Europe

Tuesday, August 25, 2015
Respreeza, CSL Behring's augmentation therapy for Alpha-1 Antitrypsin Deficiency, has been approved for use in Europe. The approval, following a clinical trial, came Thursday from the European Medicines Agency (EMA), the European equivalent of...

Lung transplant saves Alpha grandmother's life

Monday, August 24, 2015
Grandmother Caroline Jenkins says she will be “forever grateful” for the double lung transplant that saved her life. Jenkins, 56, said she had already planned her funeral and sorted out her will when she received a lifesaving phone...

Ranks of uninsured continue to shrink

Wednesday, August 12, 2015
WASHINGTON – The uninsured rate decreased by more than three percentage points in the first quarter of this year, according to the Centers for Disease Control and Prevention (CDC). In the first three months of 2015, the percentage of adults...

Study: Steroids may help speed pneumonia recovery

Tuesday, August 11, 2015
Steroid treatment may hasten pneumonia patients' recovery and cut their risk of complications, a new review suggests. The findings "should lead to an important change in treatment for pneumonia," lead author Dr. Reed Siemieniuk, a physician and...

Forrest Bird, inventor of respirators and ventilators, dies at 94

Monday, August 3, 2015
Forrest Bird, famed inventor responsible for several life-altering medical and aeronautical innovations, died Sunday at the age of 94.  Bird is the creator of the first low-cost, mass-produced medical respirators, including the "Babybird"...

2015 Alpha-1 National Conference opens with inspirational Appalachian Trail story, meetings with experts and session on community engagement

Friday, July 24, 2015
The 24th annual National Education Conference of the Alpha-1 community officially began Friday afternoon with a two-hour "Meet the Experts" session at which Alphas were offered the chance to ask questions about both the lung and liver diseases of...

FDA approves first COPD biomarker for use in clinical trials in "major triumph" for drug development

Monday, July 13, 2015
The U.S. Food and Drug Administration (FDA) has approved a new clinical biomarker, plasma fibrinogen, for use in clinical trials of patients with chronic obstructive pulmonary disease (COPD), the third leading cause of death in the United...

Foundation, NORD applaud House passage of 21st Century Cures Act, increasing NIH and FDA funding

Friday, July 10, 2015
The Alpha-1 Foundation and National Organization for Rare Disorders (NORD) today applauded the U.S. House for passing the 21st Century Cures Act legislation by a margin of 344-7. Peter Saltonstall, president and CEO of NORD, called the vote "a...

Foundation congratulates Alpha-1 pioneer researcher David Perlmutter on being named Washington University Medical School dean

Wednesday, July 8, 2015
The Alpha-1 Foundation today congratulated groundbreaking Alpha-1 researcher David Perlmutter, MD, on being named executive vice chancellor for medical affairs and dean of the Washington University School of Medicine in St. Louis, MO. Perlmutter,...

Alpha-1 Foundation announces funding opportunities for 2015-16 grants cycle with online application system

Wednesday, July 1, 2015
The Alpha-1 Foundation is now accepting applications for its 2015-16 grants cycle. Researchers, we hope you'll join the us in our quest to find treatments and a cure for Alpha-1 Antitrypsin Deficiency. The Foundation committed nearly $2...

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