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Patients increasingly influence direction of medical research

Patients increasingly influence direction of medical research
Wednesday, December 7, 2016
Patients and their advocates are getting an ever-larger voice in how medical research is carried out. They participate in the design of experiments and have a greater say in what outcomes they care about most — and it's not always simply living longer. Sharon Terry Sharon Terry has lived through a couple of decades during which patients went from being complete outsiders to...
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Scientists battle in court over lucrative patents for gene-editing technology

Tuesday, December 6, 2016
The high-stakes fight over who invented a technology that could revolutionize medicine and agriculture heads to a courtroom Tuesday. Emmanuelle Charpentier (left) and Jennifer Doudna A gene-editing technology called CRISPR-cas9 could be...
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Ryan says Obamacare repeal is top priority, says people won’t lose healthcare coverage

Monday, December 5, 2016
House Speaker Paul D. Ryan says the next Congress will pursue a repeal of Obamacare immediately, even before Republicans have a replacement in hand, though that repeal will not pull the rug out from 20 million-plus Americans who gained coverage...
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RAPID trial extension study finds augmentation therapy slows disease progression, supports early intervention

Friday, December 2, 2016
The medical journal The Lancet Respiratory Medicine on Thursday, Dec. 1, published findings of the RAPID Open Label Extension study of augmentation therapy for patients with emphysema and Alpha-1 Antitrypsin Deficiency. N. Gerard...
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House overwhelmingly passes 21st Century Cures bill

Thursday, December 1, 2016
WASHINGTON — The House overwhelmingly passed a far-reaching measure on Wednesday to increase funding for research into cancer and other diseases, address weaknesses in the nation’s mental health systems and help combat the prescription...
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Dementia rate falls sharply in older Americans

Tuesday, November 22, 2016
A new study finds that the prevalence of dementia has fallen sharply in recent years, most likely as a result of Americans’ rising educational levels and better heart health, which are both closely related to brain health. Dementia rates...
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Teens who vape twice as likely to have respiratory symptoms, study reports

Monday, November 21, 2016
Teens are getting burned by e-cigarettes even after they stop using them. Adolescents who currently vape are twice as likely to suffer respiratory symptoms like persistent cough, bronchitis, congestion and phlegm as those who have never used...
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People with moderately low oxygen levels don't benefit from oxygen use, study finds

Wednesday, October 26, 2016
Results of a 7-year study of supplemental oxygen for COPD patients with moderately low blood oxygen levels were announced today in the New England Journal of Medicine. Severely low oxygen levels in the blood are a risk factor for Alphas and...
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Questions and answers on long-term oxygen trial (LOTT)

Friday, October 21, 2016
Q1: Why was the LOTT study conducted? • Past research has shown that long-term oxygen treatment improves survival in those with chronic obstructive pulmonary disease (COPD) and severely low levels of blood oxygen. However, a...
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FDA, Alpha-1 Foundation discuss placebos, trial of augmentation after lung transplants

Friday, September 30, 2016
Just over one year ago, members of the Alpha-1 community traveled from around the country to Silver Spring, Maryland for a meeting with the U.S. Food and Drug Administration (FDA).   Charlotte Mattison, right, gives emotional testimony...
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PPTA statement says plasma protein products are safe, not affected by Zika virus

Saturday, September 24, 2016
The Plasma Protein Therapeutics Association (PPTA) has issued a statement saying that the safety of plasma protein therapies is not affected by the Zika virus (ZIKV). "According to recommendations from health authorities, measures such as...
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Number of uninsured falls again in 2015

Wednesday, September 14, 2016
The federal health overhaul may still be experiencing implementation problems. But new federal data show it is achieving its main goal — to increase the number of Americans with health insurance coverage. The Affordable Care Act...
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Arrowhead begins Phase 2 trial of possible Alpha-1 liver treatment

Tuesday, September 6, 2016
California-based Arrowhead Pharmaceuticals Inc. announced Tuesday that it has begun a Phase 2 clinical study of ARC-AAT, the company's potential treatment for liver disease in people with Alpha-1 Antitrypsin Deficiency (AATD), using the...
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