Alpha-1 Foundation’s position and the Zemaira shortage

Monday, October 29, 2018

It has been brought to the attention of the Alpha-1 Foundation that CSL Behring has been experiencing delays in the distribution of Zemaira for several months now. The Foundation bases its knowledge of this situation solely on the information provided by CSL Behring, and from different reports that patients have sent to our attention. CSL Behring has acknowledged the fact that this is an...

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Dohman Life Science Services to be renamed to EVERSANA

Thursday, October 4, 2018

The fast-growing life science services platform built in partnership with Water Street Healthcare Partners and JLL Partners unveiled its new name and brand: EVERSANA™. A combination of the Latin word "sana" for healthy and...

Inhaled alpha-1 antitrypsin: Kamada receives positive advice on new Phase 3 study design

Tuesday, July 17, 2018

Kamada Ltd., a plasma-derived protein therapeutics company, announced that it has received positive scientific advice from the Committee for Medicinal Products for Human Use (CHMP) of the European Medicines Agency (EMA), related to the development...

2018 research grants on Alpha-1 awarded

Tuesday, May 22, 2018

At a cocktail reception the evening of May 21st, held at The Prado at Balboa Park, within the framework of the American Thoracic Society (ATS) 2018 International Conference in San Diego, California, the Alpha-1 Foundation (A1F) announced the...

Alpha Jonathan Maidment hikes the Pacific Crest Trail

Thursday, May 17, 2018

This story appears in the Spring 2018 issue of Alpha-1-To-One Magazine. Subscriptions are free. Determined and driven are the first two adjectives that come to mind when you get a grasp of the endeavor that 23-year old Jonathan Maidment has...

Teresa Kitchen in the spotlight for National Nurses Week

Friday, May 4, 2018

Teresa Kitchen, RN, was mixing Terry Young’s augmentation infusion when he got the call: his new lungs had arrived, and he needed to rush over to the hospital for his transplant. Barnes Jewish Hospital in St. Louis, MO, was right across...

Happy 25th transplant anniversary to Mary Pierce

Monday, April 2, 2018

This is an excerpt of a story that originally appeared in the Spring 2013 issue of Alpha-1-To-One Magazine. Mary Pierce was diagnosed with Alpha-1 on her 40th birthday, Feb. 16, 1987. She’d been home sick from work for about a week...

In honor of Bruce Parker

Friday, March 30, 2018

The Alpha–1 community, including AlphaNet and the Alpha–1 Foundation, is grieving the loss of our friend, and AlphaNet REACH program coordinator Bruce Parker, from Chattanooga, TN. Bruce, who was also an Alpha, parted on March 28, 2018...

Alpha-1-To-One Magazine is in the mail - The true cost of competitive bidding

Thursday, March 22, 2018

This article appears in the Spring 2018 issue of Alpha-1-To-One Magazine. The multiphase competitive bidding program began in January of 2011 with the purpose of ensuring Medicare beneciaries access to quality supplemental oxygen products and...

Spark Therapeutics explores payment options after revealing price tag for first gene therapy in the US

Thursday, January 4, 2018

Philadelphia based pharmaceutical company, Spark Therapeutics, confirmed conversations with the U.S. Centers of Medicare and Medicaid Services on a proposal that would allow for multi-year payment plans for its innovative treatment, Luxturna, the...

Arrowhead Pharmaceuticals submits for regulatory clearance for first-in-human study

Friday, December 29, 2017

Arrowhead Pharmaceuticals Inc. announced that it filed a regulatory submission to begin a first-in-human study of ARO-AAT, a second-generation investigational medicine for the treatment of Alpha-1 liver disease. Pending approval, Arrowhead intends...

ATS renames PAR Excellence Award after John W. Walsh

Wednesday, December 13, 2017

The American Thoracic Society (ATS) Public Advisory Roundtable was moved to rename the annual PAR Excellence Award by a unanimous vote in November. The award, presented at the ATS International Conference, will now be referred to as the...

Alpha-1 research pioneer Jack A. Pierce, MD, passes away

Thursday, December 7, 2017

“One of the early investigators of Alpha–1 and the initial head of the one of the first Pulmonary and Critical Care departments in the country at Washington University in St. Louis has died at the age of 92. I believe few of...