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Top Stories
Uncertainty added to health insurance markets
Friday, October 13, 2017
It has been an eventful 24 hours in Washington as President Trump made a number of announcements related to health insurance policy. First, he signed an executive order that seeks to increase competition by facilitating access to association health plans, short-term limited duration insurance products, and health reimbursement arrangements. Nothing is changing immediately; rather,...
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Celebrating plasma donors worldwide
Wednesday, October 11, 2017
International Plasma Awareness Week (IPAW) brings awareness to the importance of plasma donors worldwide. “During PPTA’s International Plasma Awareness Week, we want to thank all the donors that make life sustaining Alpha–1...
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Medicare says 2018 to offer more health coverage choices and decreased premiums
Friday, September 29, 2017
Today, the Centers for Medicare & Medicaid Services (CMS) announced that people with Medicare will have more choices and options for their Medicare coverage in 2018. As CMS releases the benefit and premium information for Medicare health and...
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Record-breaking year for Team Alpha-1 at Escape to the Cape
Friday, September 29, 2017
As summer wanes and fall begins, Team Alpha–1 is decompressing from another successful Autumn Escape Bike Trek. This year has seen many firsts over our 23-year history of participating in this event with the American Lung Association of the...
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Bob Campbell passes away, Foundation Communications Director, former AlphaNet Coordinator
Friday, July 28, 2017
Our dear friend and colleague, Bob Campbell passed Thursday evening with his wife Elizabeth by his side. Campbell began his Alpha-1 journey when he was diagnosed by his allergist. In 2002, he took the leap and became an AlphaNet...
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Kamada Submits Proposed Phase 3 Protocol to FDA for Inhaled Alpha-1 Antitrypsin Treatment
Friday, July 21, 2017
Kamada Ltd., a plasma-derived protein therapeutics company focused on orphan indications, today announced that the Company has submitted to the U.S. Food and Drug Administration (FDA) for review a proposed pivotal Phase 3 protocol for its...
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Foundation president and CEO urges Alphas to find their place in the Alpha-1 Community
Thursday, June 29, 2017
CHICAGO, Illinois – Henry Moehring, president and CEO of the Alpha–1 Foundation, presided over the 26th and largest National Education Conference of the Alpha–1 community since its inception, he said in his Foundation update...
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Alpha-1 Foundation Accepting Proposals for the John W. Walsh Translational Research Award in Alpha-1 Antitrypsin Deficiency
Wednesday, June 28, 2017
The Alpha-1 Foundation is committed to finding a cure for Alpha-1 Antitrypsin Deficiency and to improving the lives of people affected by Alpha-1 worldwide. This award is named after John W. Walsh, who dedicated his life’s work to finding...
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Barbara Pusey honored in memoriam at Alpha–1 awards and recognition night
Monday, June 26, 2017
Barbara Pusey, who was the first AlphaNet Coordinator for the augmentation therapy marketed in the United States as Zemaira and was a major influence in building the AlphaNet Zemaira program into what it is today, was recognized posthumously, with...
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Grifols announces $1 million grant to support Alpha-1 Foundation’s John W. Walsh Research Fund
Monday, June 26, 2017
Washington, DC — Grifols announced that it will award a million-dollar grant to support the John. W. Walsh Research Fund, the Foundation’s peer-reviewed research program named in honor of Walsh, the Foundation’s co-founder...
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More Than 600 to Hear Top World Experts on Alpha-1 at National Conference in Chicago
Monday, June 5, 2017
CHICAGO, June 5, 2017 – More than 600 people with Alpha–1 Antitrypsin Deficiency – the most common known genetic cause of chronic obstructive pulmonary disease (COPD) – along with their family members, caregivers and...
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Alpha-1 Foundation lauds COPD National Action Plan
Monday, May 22, 2017
The Alpha–1 Foundation applauded today’s launch of the COPD National Action Plan, calling it “a strong tool to identify people affected by genetic COPD caused by Alpha–1, leading to proper diagnoses and treatment for their...
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Alphas in Ireland set to lose access to augmentation therapy
Friday, February 17, 2017
More than 20 people in Ireland who have severe Alpha-1 lung disease are facing the loss of “life-changing” augmentation therapy within weeks following its rejection by the Health Service Executive (HSE). Noel G....
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