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Alpha-1 Virtual Support Groups

There are four Virtual Support Groups, all conducted by teleconference, which provide expert speakers, often including physicians. The Virtual Support Groups are

  • Alpha-1 Kids: Parents of young children diagnosed with Alpha-1 liver disease
  • Caregivers: Family members of Alphas
  • Pre and Post Transplant: Alphas considering organ transplants and those who had transplants
  • Timely Topics Forum: Everyone in the Alpha-1 community

Alpha-1 Kids Virtual Support Groupplus

The Alpha-1 Kids Virtual Support Group is dedicated to providing support, education and information for Alpha-1 families. This is accomplished by:

  • Centralizing educational and informational resources on this webpage
  • Facilitating Peer Connections
  • Providing information and resource links
  • Facilitating an online Discussion Forum
  • Conducting Telecalls with Physicians/Experts/Parents

A committee of Alpha-1 parents help to identify needs for this group and engage in planning for support and educational telecalls and programs at the Alpha-1 Association National Education Conference. Members include: Jen Childress, Mark Rabush, Sarah Johnson, Lora Shelton and Leah & Brad Zelk.

To request more information about Alpha-1 Families or to request a peer connection please contact Cathey Horsak, Director of Community Programs & Outreach, at 1-877-346-3212 or chorsak@alpha1.org

Caregivers Virtual Support Groupplus

The Alpha-1 Caregivers Virtual Support Group is dedicated to providing support, education and information for Alpha-1 caregivers. This is accomplished by:

  • Centralizing educational and informational resources
  • Facilitating peer connections
  • Providing links to resource
  • Facilitating an online Discussion Forum
  • Conducting Telecalls with Physicians/Experts/Parents

A committee of Alpha-1 caregivers help to identify needs and resources for this Virtual Support Group as well as recommend support and educational programs and plan periodic telecalls. Committee members inlcude: Nancy Cropper, Carol Hosley, Barb Speers and Larry Tipper.

Timely Topics Forumplus

The Alpha-1 Foundation’s Timely Topics Forum is a Virtual Support Group designed to provide information and resources to those individuals who do not have access to a local support group in their area or who would like to gain access to more information about Alpha-1 related topics.

Telecalls are held at least quarterly and cover a broad range of topics that help Alphas improve the quality of their life such as ways to access more information, live healthier lives and gain access to important programs and services available to them.

Join our mailing list to recieve invitations to Timely Topics Forum telecalls.

Pre & Post Transplant Virtual Support Groupplus

The Alpha-1 Foundation's Pre & Post Transplant Virtual Support Group is dedicated to providing information and resources for Alphas considering a lung or liver transplant and for those Alphas who have undergone a lung or liver transplant.

A variety of resources are available through this group:

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Missed any of the previous telecalls?

Click on any of the links below to listen to the recordings.