Menu

Top Stories

Published on Tuesday, February 26, 2019

The Alpha-1 Foundation gears up for the 2019 Global meetings in Dubrovnik, Croatia

The Alpha-1 Foundation gears up for the 2019 Global meetings in Dubrovnik, Croatia

MIAMI, Feb. 26th, 2019 - The 7th Alpha-1 Global Patient Congress and 4th International Research Conference on Alpha-1 Antitrypsin will be held April 3-6, at the Sheraton Dubrovnik Riviera Hotel in Dubrovnik, Croatia. Patient leaders, physicians and scientists from around the world will come together to discuss the latest developments in patient advocacy, clinical care and Alpha-1 Antitrypsin Deficiency (Alpha-1) research. 

With a rich history of international collaboration, the Foundation is committed to Alphas worldwide and is proud to host representatives from 32 countries. Through the dedication of the Conference Planning Committee, we are looking forward to another outstanding event. The commitment to the mission drives the Alpha-1 Global program each day, to increase awareness, detection, and access to care for Alphas around the world.  

“The recent changes in the Alpha-1 Global program offers me the opportunity to reshape our outreach to the entire Alpha-1 community, globally. Our strategic alliances are strong and will be reaffirmed in Dubrovnik, Croatia, at our International Scientific Conference and concurrent International Patient Congress. I would like to extend my gratitude to the Internal Conference Planning Committee, Richard Lovrich, who will be our emcee, and the Foundation’s hardworking staff and volunteers,” expressed Miriam O’Day, president and CEO of the Alpha-1 Foundation.

“These events will be the first international meetings I have attended since our meeting in Barcelona, in 2013. This is an exciting opportunity to be able to collaborate and strategize about the future of the Global program in my new role as president and CEO,” she added.

The 2019 meeting will begin with the 4th International Research Conference on Wednesday and Thursday, April 3-4. The Research Conference theme titled “Beyond Folding: Disease Progression and Therapeutic Options” is chaired by Professor Rob Stockley from University Hospitals Birmingham, United Kingdom. 

The program agenda for the 4th International Research Conference is available to view here

We will continue with representatives from 32 countries at the Global Patient Congress with a welcome reception and networking dinner where Alpha-1 patients, physicians and researchers can interact on Thursday, April 4th. The patient congress will continue Friday and Saturday, April 5-6.

The program agenda for the 7th Alpha-1 Global Patient Congress is available to view here

A special thank you to our outstanding Global Conference Planning Committee and Global Advisory Committee:

  • Cristina Barbiero, National Association Alfa-1 AT Italy, EU Advocacy Working Group, Italy
  • Jim Clarke, Alpha-1 Association New Zealand Co-Leader Alpha-1 Support Group, New Zealand
  • Shane Fitch, Lovexair Foundation - President, Spain
  • Elena Goyanes, Alpha-1 Association Spain, EU Advocacy Working Group, Spain
  • Karen O'Hara, Alpha-1 UK Support Group - ERN - Lung, EARCO, UK
  • Carlos Cambon, Alpha-1 Association Argentina, Argentina  
  • Martina Cambon, Alpha-1 Association Argentina, Argentina
  • Frank Willersinn, MD, Alpha-1 Plus, Belgium
  • Marion Bouchecareilh, University of Bordeaux, Alpha-1 Liver Research, France
  • Robert Durlik, Alpha-1 Poland, Founder, Poland
  • Robert Kroesen, Patient Representative, Panama
  • Tim Frost, AlphaNet Board Member, USA

Global Advisory Committee: 

  • Jeanine D’Armiento, MD, PhD, Alpha-1 Foundation – Chair, USA
  • Robert Sandhaus, MD, PhD, FCCP, Alpha-1 Foundation Medical Director, USA
  • Robert Stockley, MD, Director Lung Immuno Biochemical Research Laboratory, UK
  • Adam Wanner, MD, Alpha-1 Foundation Scientific Director, USA

The Alpha-1 Foundation graciously thanks the 2019 Alpha-1 Global Patient Congress and Research Conference Sponsors. Presenting Sponsors: AlphaNet, CSL Behring and Grifols. Gold Sponsors: Arrowhead, Kamada and Vertex. Bronze Sponsors: Dicerna and Mereo BioPharma.

CLICK HERE TO REGISTER TODAY

For additional information on the upcoming events, please contact Randel Plant, global programs manager, rplant@alpha1.org or 877-228-7321 ext. 306.

For hotel and travel arrangements, please contact Adriana De Arce, manager of scientific events, adearce@alpha1.org or 877-228-7321 ext. 269.


Print

Alpha-1 Awareness Month 2019: Going strong after week 3

Friday, November 22, 2019
The temperature is getting lower around the country but it is not stopping the momentum of Alpha-1 Awareness Month. Week three joined Alphas, family, and friends for yet another incredibly successful campaign. It is so fun to see each team put...
Divider

Knowing is not enough: Act on your family health history

Friday, November 22, 2019
The Centers for Disease Control and Prevention (CDC) published an article about the importance of knowing your family health history and what you can do to prevent certain diseases. Alpha-1 Antitrypsin Deficiency (Alpha-1) is a genetic...
Divider

Workshop summary: "COPD National Action Plan: Tracking Our Progress"

Thursday, November 21, 2019
The COPD National Action Plan is a comprehensive roadmap designed to change the very trajectory of a disease that not only can make it difficult for a person to breathe, but also to perform the most basic tasks of daily life: chronic obstructive...
Divider

Vertex, CRISPR’s gene-editing treatment for blood disorders shows promise in early data

Wednesday, November 20, 2019
CRISPR Therapeutics and Vertex Pharmaceuticals unveiled early data from the first company-backed study to test a CRISPR-based medicine in humans. The data, from two patients with severe blood disorders, are "promising” for what could be...
Divider

Bill Clark to receive the John W. Walsh Dedication to Excellence Award

Tuesday, November 19, 2019
Nov. 19, 2019 – This evening at the COPD Foundation’s 15th Anniversary Fundraising Gala, Bill Clark, an Alpha who is the COPD Foundation’s Senior Director of Patient Engagement, will receive the John W. Walsh Dedication of...
Divider

Alpha-1 Awareness Month 2019: Week 2

Friday, November 15, 2019
It is November 15th and the second week of Alpha-1 Awareness Month has been a huge a success. We are halfway through the month and the momentum is going strong with walks continuing to take place all over the country. More proclamations have...
Divider

Open Enrollment: A video series by NHC

Friday, November 15, 2019
The National Health Council (NHC) created a short video series to help users navigate the health insurance marketplace for Open Enrollment, which runs from Friday, November 1st through Sunday, December 15th, this year. Open Enrollment...
Divider

State and city proclamations raise Alpha-1 awareness during Alpha-1 Awareness Month

Monday, November 11, 2019
November has been marked as Alpha-1 Awareness Month to increase knowledge and spread awareness about Alpha-1 Antitrypsin Deficiency (Alpha-1) with several activities across the United States. You can read the official press release here. Many...
Divider

Powerful video raises awareness of COPD and the need for research funding

Monday, November 11, 2019
November is National Alpha-1 Awareness Month and is also National Chronic Obstructive Pulmonary Disease (COPD) Awareness Month, and a powerful new video has been released that raises awareness of the critical need for significantly increased COPD...
Divider

Alpha-1 Awareness Month 2019: Virtual Walks week 1 (recap)

Saturday, November 9, 2019
November represents Alpha-1 Awareness Month and the community has set the tone for the month in week one. Alphas, friends, and family joined together on November 2nd around the country in their purple shirts to spread awareness and raise funds for...
Divider

Grifols introduces AlphaID™, a free cheek swab to screen for Alpha-1, the most common genetic form of COPD

Friday, November 8, 2019
BARCELONA, Spain, Nov. 7, 2019 -- Grifols, a leading global producer of plasma-derived medicines and a leader in the development of innovative diagnostic solutions, has now introduced AlphaID™, a new, simple cheek swab that can be used...
Divider

November is Alpha-1 Awareness Month

Friday, November 1, 2019
Miami, Nov. 1, 2019 – The month of November has been declared as Alpha-1 Awareness Month, by the Alpha-1 Foundation, to raise awareness about Alpha-1 Antitrypsin Deficiency (Alpha-1) throughout the United States. During November, several...
Divider
12345678910Last

Article Search

Enter keywords in text box and click Search button for results.

Archive