Menu

Top Stories

Published on Wednesday, April 20, 2016

Kevin Shroyer, father of Alpha lung donor, completes Boston Marathon

Kevin Shroyer, father of Alpha lung donor, completes Boston Marathon

Kevin Shroyer, the father of a 14-year-old girl whose donated lungs saved an Alpha’s life, completed the Boston Marathon on Monday, April 18 in her honor.

Kevin Shroyer

Although the experienced distance runner was happy to cross the finish line, he said he would like to post a faster time next year. He qualified for the event by completing a previous marathon in three hours and 35 minutes, but finished on Monday in 4:01.

"Since it was not what I was expecting to run, I will let everyone know what happened,” he wrote Monday on his Facebook page. “I was pretty much right on my pace upon climbing the infamous Heartbreak Hill. However, upon descending the back side, my right quad seized up suddenly, forcing me to come to a dead stop and grab onto a handrail to keep from falling.

“Fortunately, I was running close to the side of the road at the time. A sweet older woman spectator immediately saw the distress I was in as I could not straighten that leg out below the knee. She held onto me until the pain subsided and I was able to gradually massage it until it released, but my day was effectively over at that point.”

Calling it a “frustrating and humbling” experience, Shroyer struggled over the last six miles, alternating between fast walking and very slow running.

“This was something that had NEVER happened to me before in a race,” he wrote. “However, I accomplished goal #1 and that was to qualify, run, and finish the race for Korinne and to promote organ, tissue and eye donation on the biggest running stage in the world! It wasn't my plan to be out there for 4:01, but perhaps it was God's plan.

“Timewise, this was my worst marathon in years. But, maybe by me being out there all those additional minutes, someone was impacted by seeing Korinne's picture on the back of my singlet and the fact that she was an organ and tissue donor. Indeed, I had a number of other runners, male and female, offer expressions of condolence to me throughout the day, which was nice. So, if that is the one positive takeaway from today's experience, then I can accept that and would do it all over again!”

Shroyer has already qualified for the 2017 Boston Marathon, and he plans to run it.

“After looking at today's result they might not want me back, but too bad, I am coming!” he said. “Today will not be my defining Boston moment!"

To read about how Shroyer prepared for the Boston Marathon, click here.


Print

Nicotine addict finds hope after Alpha-1 Antitrypsin Deficiency diagnosis

Wednesday, July 19, 2017
Diagnosed with the lungs of a 126-year-old man from years of smoking and a rare genetic lung disorder, Ryan Taylor moved home from Alberta this past Christmas to die. But a news report his father saw on Memorial’s School of...
Divider

5-year old Alpha becomes the face of Australia’s DonateLife Week

Monday, July 17, 2017
If you still aren't sure about whether or not to become an organ donor, look into the eyes of Archer Irwin. The five-year-old from Wodonga has become the face of DonateLife Week, the federal government's push to have more...
Divider

Alpha Emma Lou Carr Glenn passes away

Monday, July 17, 2017
Emma Louise (Lou) Glenn passed away Tuesday, July 11. Many in the Alpha-1 community will remember Lou as Patti Brown's mom.  Patti is an AlphaNet Coordinator in Texas.  Lou became involved in the Alpha-1 community after Patti's...
Divider

Foundation president and CEO urges Alphas to find their place in the Alpha-1 Community

Thursday, June 29, 2017
CHICAGO, Illinois – Henry Moehring, president and CEO of the Alpha–1 Foundation, presided over the 26th and largest National Education Conference of the Alpha–1 community since its inception, he said in his Foundation update...
Divider

Alpha-1 Foundation Accepting Proposals for the John W. Walsh Translational Research Award in Alpha-1 Antitrypsin Deficiency

Wednesday, June 28, 2017
The Alpha-1 Foundation is committed to finding a cure for Alpha-1 Antitrypsin Deficiency and to improving the lives of people affected by Alpha-1 worldwide. This award is named after John W. Walsh, who dedicated his life’s work to finding...
Divider

Barbara Pusey honored in memoriam at Alpha–1 awards and recognition night

Monday, June 26, 2017
Barbara Pusey, who was the first AlphaNet Coordinator for the augmentation therapy marketed in the United States as Zemaira and was a major influence in building the AlphaNet Zemaira program into what it is today, was recognized posthumously, with...
Divider

Grifols announces $1 million grant to support Alpha-1 Foundation’s John W. Walsh Research Fund

Monday, June 26, 2017
Washington, DC  — Grifols announced that it will award a million-dollar grant to support the John. W. Walsh Research Fund, the Foundation’s peer-reviewed research program named in honor of Walsh, the Foundation’s co-founder...
Divider

Alpha-1, the "genetic component" in COPD, featured in national news magazine

Thursday, June 8, 2017
The following article on Alpha-1 Antitrypsin Deficiency is from U.S. News Health. It contains extensive quotes from Robert Sandhaus, MD, PhD, clinical director of the Alpha-1 Foundation and medical director of AlphaNet. You might not realize...
Divider

More Than 600 to Hear Top World Experts on Alpha-1 at National Conference in Chicago

Monday, June 5, 2017
CHICAGO, June 5, 2017 – More than 600 people with Alpha–1 Antitrypsin Deficiency – the most common known genetic cause of chronic obstructive pulmonary disease (COPD) – along with their family members, caregivers and...
Divider

International Research Conference explores novel treatments for Alpha-1, other health conditions

Monday, June 5, 2017
Professor Professor Noel G. "Gerry" McElvaney was delighted with the 3rd International Research Conference on Alpha-1 Antitrypsin Deficiency held in Lisbon, Portugal April 5-6. Professor McElvaney addresses the conference. "We...
Divider

Alpha-1 Foundation earns 7th consecutive 4-star rating from Charity Navigator

Friday, June 2, 2017
The Alpha-1 Foundation has earned its seventh consecutive 4-star rating from Charity Navigator. "Only 3% of the charities we evaluate have received at least 7 consecutive 4-star evaluations, indicating that the Alpha-1 Foundation...
Divider

Famed sportswriter Frank Deford passes at 78

Monday, May 29, 2017
Frank Deford, a famed sportswriter for more than half a century, a weekly commentator for National Public Radio's Morning Edition for 37 years, and who was elected U.S. Sportswriter of the Year six times for his work with Sports...
Divider
12345678910Last

Article Search

Enter keywords in text box and click Search button for results.

Archive