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Living donor saved her own son’s life

Tuesday, July 31, 2018
Dara Kass is an emergency physician in New York, but she did not need to be a doctor to know that something was going on with the third child, Sammy. At birth, the baby was smaller than his two siblings. He barely grew and was lethargic; his skin...
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The Assistance Fund opens new program for Alphas

Monday, July 30, 2018
The Assistance Fund, an independent charitable patient assistance foundation that helps patients and families facing high medical out-of-pocket costs, announced the launch of a new program for individuals with Alpha-1 Antitrypsin Deficiency...
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Alpha-1 Foundation board has new Chair

Friday, July 27, 2018
The Alpha-1 Foundation has the honor to announce that Jeanine D’Armiento, MD, PhD, has been named as the newest Chair of its board of directors. D’Armiento has served on the Foundation’s board since 2011, and before that, she had...
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FDA warns of imposters sending consumers fake warning letters

Thursday, July 19, 2018
The U.S. Food and Drug Administration (FDA) is warning consumers about criminals forging FDA warning letters to target individuals who tried to purchase medicines online or over the phone. Based on the agency’s experience with criminals...
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Inhaled alpha-1 antitrypsin: Kamada receives positive advice on new Phase 3 study design

Tuesday, July 17, 2018
Kamada Ltd., a plasma-derived protein therapeutics company, announced that it has received positive scientific advice from the Committee for Medicinal Products for Human Use (CHMP) of the European Medicines Agency (EMA), related to the development...
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FDA announces recall of several medicines containing valsartan

Monday, July 16, 2018
The U.S. Food and Drug Administration (FDA) is alerting healthcare professionals and patients of a voluntary recall of several drug products containing the active ingredient valsartan, used to treat high blood pressure and heart failure. This...
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New working group for patient advocacy is created

Monday, July 16, 2018
The Food and Drug Administration (FDA) and the Clinical Trials Transformation Initiative (CTTI) announced newly selected representatives for the Patient Engagement Collaborative (PEC), a joint endeavor originally disclosed in December 2017 to...
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Jonathan Maidment’s journey continues to develop

Tuesday, July 10, 2018
Jonathan Maidment, the 23-year old Alpha who undertook the challenge of doing a hike-thru of the entire 2,600-mile Pacific Coast Trail (PCT), from Southern California to the border between Washington state and Canada, interrupted his journey for...
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CRISPR gene editing may correct Alpha-1 but perhaps it is too soon

Friday, July 6, 2018
Groundbreaking research shows that CRISPR-Cas9 genome editing technology can correct the gene mutation responsible for Alpha-1 Antitrypsin Deficiency (Alpha-1), by successfully making a targeted gene correction in the livers of affected mice that...
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Tips for enjoying fireworks while living with Alpha-1 lung disease

Tuesday, July 3, 2018
Holidays are happy occasions, filled with celebrations with family and friends. The 4th of July usually includes barbecues, pool parties or beach trips. But if you or a loved one has Alpha-1, holidays can be daunting. The change of routine, the...
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The 27th National Education Conference opens with a panel on the latest Alpha-1 findings

Friday, June 29, 2018
The 27th Annual Alpha-1 National Education Conference, organized by the Alpha-1 Foundation in San Francisco, California, will open this Friday, June 29th with a panel discussion about the latest therapies and tools in Alpha-1. The session will be...
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The 27th Annual National Education Conference will be streaming online

Thursday, June 28, 2018
The 27th Annual Alpha-1 National Education Conference is the largest annual gathering of Alphas, their families, leading healthcare professionals and industry in the world. It is a three-day event with educational programs given by national...
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