Menu

Top Stories

Published on Tuesday, February 26, 2019

The Alpha-1 Foundation gears up for the 2019 Global meetings in Dubrovnik, Croatia

The Alpha-1 Foundation gears up for the 2019 Global meetings in Dubrovnik, Croatia

MIAMI, Feb. 26th, 2019 - The 7th Alpha-1 Global Patient Congress and 4th International Research Conference on Alpha-1 Antitrypsin will be held April 3-6, at the Sheraton Dubrovnik Riviera Hotel in Dubrovnik, Croatia. Patient leaders, physicians and scientists from around the world will come together to discuss the latest developments in patient advocacy, clinical care and Alpha-1 Antitrypsin Deficiency (Alpha-1) research. 

With a rich history of international collaboration, the Foundation is committed to Alphas worldwide and is proud to host representatives from 32 countries. Through the dedication of the Conference Planning Committee, we are looking forward to another outstanding event. The commitment to the mission drives the Alpha-1 Global program each day, to increase awareness, detection, and access to care for Alphas around the world.  

“The recent changes in the Alpha-1 Global program offers me the opportunity to reshape our outreach to the entire Alpha-1 community, globally. Our strategic alliances are strong and will be reaffirmed in Dubrovnik, Croatia, at our International Scientific Conference and concurrent International Patient Congress. I would like to extend my gratitude to the Internal Conference Planning Committee, Richard Lovrich, who will be our emcee, and the Foundation’s hardworking staff and volunteers,” expressed Miriam O’Day, president and CEO of the Alpha-1 Foundation.

“These events will be the first international meetings I have attended since our meeting in Barcelona, in 2013. This is an exciting opportunity to be able to collaborate and strategize about the future of the Global program in my new role as president and CEO,” she added.

The 2019 meeting will begin with the 4th International Research Conference on Wednesday and Thursday, April 3-4. The Research Conference theme titled “Beyond Folding: Disease Progression and Therapeutic Options” is chaired by Professor Rob Stockley from University Hospitals Birmingham, United Kingdom. 

The program agenda for the 4th International Research Conference is available to view here

We will continue with representatives from 32 countries at the Global Patient Congress with a welcome reception and networking dinner where Alpha-1 patients, physicians and researchers can interact on Thursday, April 4th. The patient congress will continue Friday and Saturday, April 5-6.

The program agenda for the 7th Alpha-1 Global Patient Congress is available to view here

A special thank you to our outstanding Global Conference Planning Committee and Global Advisory Committee:

  • Cristina Barbiero, National Association Alfa-1 AT Italy, EU Advocacy Working Group, Italy
  • Jim Clarke, Alpha-1 Association New Zealand Co-Leader Alpha-1 Support Group, New Zealand
  • Shane Fitch, Lovexair Foundation - President, Spain
  • Elena Goyanes, Alpha-1 Association Spain, EU Advocacy Working Group, Spain
  • Karen O'Hara, Alpha-1 UK Support Group - ERN - Lung, EARCO, UK
  • Carlos Cambon, Alpha-1 Association Argentina, Argentina  
  • Martina Cambon, Alpha-1 Association Argentina, Argentina
  • Frank Willersinn, MD, Alpha-1 Plus, Belgium
  • Marion Bouchecareilh, University of Bordeaux, Alpha-1 Liver Research, France
  • Robert Durlik, Alpha-1 Poland, Founder, Poland
  • Robert Kroesen, Patient Representative, Panama
  • Tim Frost, AlphaNet Board Member, USA

Global Advisory Committee: 

  • Jeanine D’Armiento, MD, PhD, Alpha-1 Foundation – Chair, USA
  • Robert Sandhaus, MD, PhD, FCCP, Alpha-1 Foundation Medical Director, USA
  • Robert Stockley, MD, Director Lung Immuno Biochemical Research Laboratory, UK
  • Adam Wanner, MD, Alpha-1 Foundation Scientific Director, USA

The Alpha-1 Foundation graciously thanks the 2019 Alpha-1 Global Patient Congress and Research Conference Sponsors. Presenting Sponsors: AlphaNet, CSL Behring and Grifols. Gold Sponsors: Arrowhead, Kamada and Vertex. Bronze Sponsors: Dicerna and Mereo BioPharma.

CLICK HERE TO REGISTER TODAY

For additional information on the upcoming events, please contact Randel Plant, global programs manager, rplant@alpha1.org or 877-228-7321 ext. 306.

For hotel and travel arrangements, please contact Adriana De Arce, manager of scientific events, adearce@alpha1.org or 877-228-7321 ext. 269.


Print

Living donor saved her own son’s life

Tuesday, July 31, 2018
Dara Kass is an emergency physician in New York, but she did not need to be a doctor to know that something was going on with the third child, Sammy. At birth, the baby was smaller than his two siblings. He barely grew and was lethargic; his skin...
Divider

The Assistance Fund opens new program for Alphas

Monday, July 30, 2018
The Assistance Fund, an independent charitable patient assistance foundation that helps patients and families facing high medical out-of-pocket costs, announced the launch of a new program for individuals with Alpha-1 Antitrypsin Deficiency...
Divider

Alpha-1 Foundation board has new Chair

Friday, July 27, 2018
The Alpha-1 Foundation has the honor to announce that Jeanine D’Armiento, MD, PhD, has been named as the newest Chair of its board of directors. D’Armiento has served on the Foundation’s board since 2011, and before that, she had...
Divider

FDA warns of imposters sending consumers fake warning letters

Thursday, July 19, 2018
The U.S. Food and Drug Administration (FDA) is warning consumers about criminals forging FDA warning letters to target individuals who tried to purchase medicines online or over the phone. Based on the agency’s experience with criminals...
Divider

Inhaled alpha-1 antitrypsin: Kamada receives positive advice on new Phase 3 study design

Tuesday, July 17, 2018
Kamada Ltd., a plasma-derived protein therapeutics company, announced that it has received positive scientific advice from the Committee for Medicinal Products for Human Use (CHMP) of the European Medicines Agency (EMA), related to the development...
Divider

FDA announces recall of several medicines containing valsartan

Monday, July 16, 2018
The U.S. Food and Drug Administration (FDA) is alerting healthcare professionals and patients of a voluntary recall of several drug products containing the active ingredient valsartan, used to treat high blood pressure and heart failure. This...
Divider

New working group for patient advocacy is created

Monday, July 16, 2018
The Food and Drug Administration (FDA) and the Clinical Trials Transformation Initiative (CTTI) announced newly selected representatives for the Patient Engagement Collaborative (PEC), a joint endeavor originally disclosed in December 2017 to...
Divider

Jonathan Maidment’s journey continues to develop

Tuesday, July 10, 2018
Jonathan Maidment, the 23-year old Alpha who undertook the challenge of doing a hike-thru of the entire 2,600-mile Pacific Coast Trail (PCT), from Southern California to the border between Washington state and Canada, interrupted his journey for...
Divider

CRISPR gene editing may correct Alpha-1 but perhaps it is too soon

Friday, July 6, 2018
Groundbreaking research shows that CRISPR-Cas9 genome editing technology can correct the gene mutation responsible for Alpha-1 Antitrypsin Deficiency (Alpha-1), by successfully making a targeted gene correction in the livers of affected mice that...
Divider

Tips for enjoying fireworks while living with Alpha-1 lung disease

Tuesday, July 3, 2018
Holidays are happy occasions, filled with celebrations with family and friends. The 4th of July usually includes barbecues, pool parties or beach trips. But if you or a loved one has Alpha-1, holidays can be daunting. The change of routine, the...
Divider

The 27th National Education Conference opens with a panel on the latest Alpha-1 findings

Friday, June 29, 2018
The 27th Annual Alpha-1 National Education Conference, organized by the Alpha-1 Foundation in San Francisco, California, will open this Friday, June 29th with a panel discussion about the latest therapies and tools in Alpha-1. The session will be...
Divider

The 27th Annual National Education Conference will be streaming online

Thursday, June 28, 2018
The 27th Annual Alpha-1 National Education Conference is the largest annual gathering of Alphas, their families, leading healthcare professionals and industry in the world. It is a three-day event with educational programs given by national...
Divider
First45678910111213Last

Article Search

Enter keywords in text box and click Search button for results.

Archive