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Alpha-1 Hero Walk raises funds and awareness for Alpha-1

Alpha-1 Hero Walk raises funds and awareness for Alpha-1
Thursday, May 23, 2019
The 9th Annual Alpha-1 Hero Walk took place on May 4th, in Richmond, VA, where 75 attendees walked to raise awareness and funds for Alpha-1 Antitrypsin Deficiency (Alpha-1) research and related programs, exceeding $11,000. Pamela VanScoy, Walk Chair and Support Group Leader, was interviewed on Richmond's Morning News with John Reid, on WRVA Richmond - 1140 AM / 96.1 FM. Thank you, Pam,...

Teresa Kitchen in the spotlight for National Nurses Week

Friday, May 4, 2018
Teresa Kitchen, RN, was mixing Terry Young’s augmentation infusion when he got the call: his new lungs had arrived, and he needed to rush over to the hospital for his transplant. Barnes Jewish Hospital in St. Louis, MO, was right across...

Alpha-1 Foundation holds 18th annual Celebration of Life

Friday, May 4, 2018
A beautiful day in April, sunny Miami Beach, the Indian Creek Country Club, and one big family of Alphas, friends, researchers, donors and industry partners, were the perfect combination for an excelling day to celebrate life with the 18th annual...

Targeted gene therapy with CRISPR/Cas9 leads to longer protein production

Wednesday, May 2, 2018
Researchers at the Washington University School of Medicine, in St. Louis, have developed a new way of delivering a gene-editing therapy that significantly increases the time a repaired gene can produce alpha-1 antitrypsin (AAT), in living mice....

European Alpha-1 Awareness Day

Wednesday, April 25, 2018
Following the launch of the Alpha-1 European Expert Group Recommendations in March 2017, Alpha-1 Global, a program of the Alpha-1 Foundation, worked to establish an Alpha-1 Awareness Day in the European Union (EU). That day was established this...

Update on new liver-related Alpha-1 therapeutic development

Monday, April 23, 2018
Promising results for three drugs for the treatment of three rare liver diseases were presented at the International Liver Congress 2018, which took place April 11-15 at the Paris Expo Porte de Versailles, Paris, France. Every year in April,...

David Perlmutter appointed as a Member of the American Academy of Arts and Sciences

Friday, April 20, 2018
The Alpha-1 Foundation proudly congratulates Alpha-1 pioneer and groundbreaking researcher, David H. Perlmutter, MD, for his recent appointment as Member of the American Academy of Arts and Sciences. The announcement was made on April 18,...

3D organ printing getting closer

Thursday, April 5, 2018
The idea that one day scientists will be able to 3D print replacement human organs has been a dream for many working in the field of regenerative medicine. New livers, hearts and kidneys, and the ability to print whole organs is still in the...

Happy 25th transplant anniversary to Mary Pierce

Monday, April 2, 2018
This is an excerpt of a story that originally appeared in the Spring 2013 issue of Alpha-1-To-One Magazine. Mary Pierce was diagnosed with Alpha-1 on her 40th birthday, Feb. 16, 1987. She’d been home sick from work for about a week...

Celebrating Women: Susan Stanley and Sandy Lindsey

Saturday, March 31, 2018
During Women’s History Month, we are featuring the stories of women who help make the Alpha–1 community great. When Alexandra “Sandy” Lindsey, Susan Stanley, and John Walsh met one another in the early 1990s, they...

In honor of Bruce Parker

Friday, March 30, 2018
The Alpha–1 community, including AlphaNet and the Alpha–1 Foundation, is grieving the loss of our friend, and AlphaNet REACH program coordinator Bruce Parker, from Chattanooga, TN. Bruce, who was also an Alpha, parted on March 28, 2018...

Celebrating women: Caregiver Dawn Bailey

Wednesday, March 28, 2018
During Women’s History Month, we are featuring the stories of women who help make the Alpha–1 community great. Dawn Bailey was overwhelmed with the new responsibilities of caring for Rob when he was released from an extended...

Widow traces and finds 52-year-old Alpha who received her husband’s liver

Tuesday, March 27, 2018
Artist Pete McKee is alive today because of Karen Piotr’s husband Mark, and because she acted so quickly to make sure the man she had loved for 31 years left the legacy he wanted: that others might live upon his passing. Pictured: Pete...

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