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Alpha-1 Foundation earns highest not-for-profit accreditations

Alpha-1 Foundation earns highest not-for-profit accreditations
Monday, July 15, 2019
The Alpha-1 Foundation earned the 2019 Platinum Seal of Transparency, the highest level of recognition offered by GuideStar, the world’s largest database and source of nonprofit information, and received a 4-star rating from Charity Navigator, the largest charity evaluator in the U.S., for the ninth consecutive year. By sharing metrics that highlight the progress that the Alpha-1...
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Consortium seeks common standards for gene-editing therapies

Thursday, May 24, 2018
How to best measure if a therapy is reaching its target gene without introducing errors in others? This is one of the big questions that remain unanswered, as the first CRISPR clinical trials begin in the U.S. and Europe, in 2018. To address...
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2018 research grants on Alpha-1 awarded

Tuesday, May 22, 2018
At a cocktail reception the evening of May 21st, held at The Prado at Balboa Park, within the framework of the American Thoracic Society (ATS) 2018 International Conference in San Diego, California, the Alpha-1 Foundation (A1F) announced the...
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Mark Brantly honored with John W. Walsh PAR Award for Excellence

Monday, May 21, 2018
The Alpha-1 Foundation (A1F) extends a heartfelt message of congratulations to Alpha-1 Antitrypsin Deficiency (Alpha-1) researcher and pioneer, Mark Brantly, MD, for being the first recipient of the newly renamed 2018 John W. Walsh PAR Award for...
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Donohue to receive the Breathing for Life Award

Friday, May 18, 2018
James F. Donohue, MD, will be honored with the Breathing for Life Award at the Tenth Annual American Thoracic Society (ATS) Foundation Research Program Benefit on Saturday, May 19th, 2018, in San Diego, California. The Award is the highest honor...
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Alpha Jonathan Maidment hikes the Pacific Crest Trail

Thursday, May 17, 2018
This story appears in the Spring 2018 issue of Alpha-1-To-One Magazine. Subscriptions are free. Determined and driven are the first two adjectives that come to mind when you get a grasp of the endeavor that 23-year-old Jonathan Maidment has...
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Spring has built new friends to find a cure

Thursday, May 17, 2018
The Building Friends for a Cure (BFC) program was created by the Alpha-1 Foundation (A1F) to make new friends and nurture those friendships throughout the year, because we cannot do it alone, you are all needed! Pictured: George Washington...
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FDA files lawsuits to stop unapproved stem cell therapies

Wednesday, May 16, 2018
The Food and Drug Administration (FDA) is seeking court orders to stop several institutions and doctors from using unapproved stem cell treatments and therapies on their patients which, in some cases, have caused serious harm. The FDA filed two...
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NIH launches new “All of Us” Research Program

Friday, May 11, 2018
The National Institutes of Health (NIH) launched the new All of Us Research Program in the beginning of May 2018, with a set mission: to speed up health research breakthroughs. The All of Us Research Program is a historic effort to gather data...
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Teresa Kitchen in the spotlight for National Nurses Week

Friday, May 4, 2018
Teresa Kitchen, RN, was mixing Terry Young’s augmentation infusion when he got the call: his new lungs had arrived, and he needed to rush over to the hospital for his transplant. Barnes Jewish Hospital in St. Louis, MO, was right across...
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Alpha-1 Foundation holds 18th annual Celebration of Life

Friday, May 4, 2018
A beautiful day in April, sunny Miami Beach, the Indian Creek Country Club, and one big family of Alphas, friends, researchers, donors and industry partners, were the perfect combination for an excelling day to celebrate life with the 18th annual...
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Targeted gene therapy with CRISPR/Cas9 leads to longer protein production

Wednesday, May 2, 2018
Researchers at the Washington University School of Medicine, in St. Louis, have developed a new way of delivering a gene-editing therapy that significantly increases the time a repaired gene can produce alpha-1 antitrypsin (AAT), in living mice....
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European Alpha-1 Awareness Day

Wednesday, April 25, 2018
Following the launch of the Alpha-1 European Expert Group Recommendations in March 2017, Alpha-1 Global, a program of the Alpha-1 Foundation, worked to establish an Alpha-1 Awareness Day in the European Union (EU). That day was established this...
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