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The Celtic Connection 2019: The pot of gold at the end of the rainbow

The Celtic Connection 2019: The pot of gold at the end of the rainbow
Sunday, March 17, 2019
The 2019 Celtic Connection, an annual Building Friends for a Cure event held in Boston, Massachusetts, joined 385 guests for a great night to raise awareness and over $138,000 for Alpha-1 Antitrypsin Deficiency (Alpha-1) research and related programs. Alphas, families, and supporters kicked-off St. Patrick’s Day celebrations on Saturday, March 2nd, dressed in all green to fill the room...
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Alpha-1-To-One Magazine is in the mail - The true cost of competitive bidding

Thursday, March 22, 2018
This article appears in the Spring 2018 issue of Alpha-1-To-One Magazine. The multiphase competitive bidding program began in January of 2011 with the purpose of ensuring Medicare beneciaries access to quality supplemental oxygen products and...
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Race for a cure spurs biotechs to rely more on nonprofit backers

Wednesday, March 21, 2018
As biotech startups race to find a cure for rare and other diseases, they’re looking beyond venture capitalists for a leg up. Increasingly they turn to philanthropists, private foundations, and other nonprofits—not only for capital and...
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Celebrating Women: Support Group Leader Amanda Holsinger

Wednesday, March 21, 2018
During Women’s History Month, we are featuring the stories of women who help make the Alpha–1 community great. Behind every Alpha-1 support group meeting is a dedicated support group leader working diligently to foster an...
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Britons in favor of gene editing to correct inherited diseases

Monday, March 19, 2018
Britons are in favor of rewriting the genetic code of human embryos to prevent children from inheriting diseases, but draw the line at designer babies and cosmetic organisms such as micro-pigs, fluorescent fish, and perfect carrots. The views...
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Celebrating Women: Researcher Jeanine D'Armiento

Sunday, March 18, 2018
During Women’s History Month, we are featuring the stories of women who help make the Alpha–1 community great. Jeanine D’Armiento, MD, PhD, is an associate professor of medicine in anesthesiology, director of the Center for...
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Celebrating Women: Support Group Leader Amanda Salzman

Friday, March 16, 2018
During Women’s History Month, we are featuring the stories of women who help make the Alpha–1 community great. Behind every Alpha-1 support group meeting is a dedicated support group leader working diligently to foster an...
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Alphas, friends, and family celebrated the 10th annual Celtic Connection gala

Friday, March 16, 2018
The Celtic Connection - an annual Building Friends for a Cure event to raise awareness of Alpha-1 Antitrypsin Deficiency (Alpha-1) and to generate funding for research and related programs of the Alpha-1 Foundation (A1F) - celebrated its...
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Celebrating women: Alpha-1 Mom Kate Mullen & Donor Sarah McKitterick

Wednesday, March 14, 2018
During Women’s History Month, we are featuring the stories of women who help make the Alpha–1 community great. Finn O’Sullivan of New York is known to many now as “Finn the Mighty Warrior." At 8 weeks of age,...
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Environmental factors can override genetic ancestry

Wednesday, March 14, 2018
According to a new study, the environment where people live can have a greater effect on their transcriptomes than their genetic ancestry, and influence disease risk. A team led by the Ontario Institute for Cancer Research (OICR) examined the...
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Dosing in Phase 1 study of ARO-AAT for treatment of Alpha-1 liver disease begins

Tuesday, March 13, 2018
Arrowhead Pharmaceuticals announced that it has dosed the first subjects in a Phase 1 clinical study of ARO-AAT, which is being developed as treatment for a rare genetic liver disease associated with Alpha-1 Antitrypsin Deficiency...
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Celebrating women: Caregiver Donna Thornton

Friday, March 9, 2018
During Women’s History Month, we are featuring the stories of women who help make the Alpha–1 community great. Donna and Kreg Thornton could not convince their primary care physician that Kreg’s breathing issues were not...
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Mapping a genetic risk

Friday, March 9, 2018
Clinicians and health researchers often look at gene mutation to predict whether a fetus is at risk for a birth defect, or a person is at risk of developing a disease, but these predictions are not always accurate. The more information you have,...
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