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Alpha friend and leader Jim Quill passes away

Alpha friend and leader Jim Quill passes away
Monday, January 14, 2019
It is with a heavy heart that the Alpha-1 Foundation shares the passing of a dear friend and leader, James Quill on Sunday, January 13th, 2019 in Bluffton, South Carolina. He was 67. Jim was on the Alpha-1 Foundation Board of Directors since 2012 and recently served as the Vice Chair and Treasurer. He was a dedicated AlphaNet Coordinator for 10 years and retired as the General Manager for...
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Widow traces and finds 52-year-old Alpha who received her husband’s liver

Tuesday, March 27, 2018
Artist Pete McKee is alive today because of Karen Piotr’s husband Mark, and because she acted so quickly to make sure the man she had loved for 31 years left the legacy he wanted: that others might live upon his passing. Pictured: Pete...
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Celebrating Women: Support Group Leader Linda Mullin

Sunday, March 25, 2018
During Women’s History Month, we are featuring the stories of women who help make the Alpha–1 community great. Behind every Alpha-1 support group meeting is a dedicated support group leader working diligently to foster an...
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Alpha-1-To-One Magazine is in the mail - The true cost of competitive bidding

Thursday, March 22, 2018
This article appears in the Spring 2018 issue of Alpha-1-To-One Magazine. The multiphase competitive bidding program began in January of 2011 with the purpose of ensuring Medicare beneciaries access to quality supplemental oxygen products and...
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Race for a cure spurs biotechs to rely more on nonprofit backers

Wednesday, March 21, 2018
As biotech startups race to find a cure for rare and other diseases, they’re looking beyond venture capitalists for a leg up. Increasingly they turn to philanthropists, private foundations, and other nonprofits—not only for capital and...
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Celebrating Women: Support Group Leader Amanda Holsinger

Wednesday, March 21, 2018
During Women’s History Month, we are featuring the stories of women who help make the Alpha–1 community great. Behind every Alpha-1 support group meeting is a dedicated support group leader working diligently to foster an...
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Britons in favor of gene editing to correct inherited diseases

Monday, March 19, 2018
Britons are in favor of rewriting the genetic code of human embryos to prevent children from inheriting diseases, but draw the line at designer babies and cosmetic organisms such as micro-pigs, fluorescent fish, and perfect carrots. The views...
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Celebrating Women: Researcher Jeanine D'Armiento

Sunday, March 18, 2018
During Women’s History Month, we are featuring the stories of women who help make the Alpha–1 community great. Jeanine D’Armiento, MD, PhD, is an associate professor of medicine in anesthesiology, director of the Center for...
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Celebrating Women: Support Group Leader Amanda Salzman

Friday, March 16, 2018
During Women’s History Month, we are featuring the stories of women who help make the Alpha–1 community great. Behind every Alpha-1 support group meeting is a dedicated support group leader working diligently to foster an...
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Alphas, friends, and family celebrated the 10th annual Celtic Connection gala

Friday, March 16, 2018
The Celtic Connection - an annual Building Friends for a Cure event to raise awareness of Alpha-1 Antitrypsin Deficiency (Alpha-1) and to generate funding for research and related programs of the Alpha-1 Foundation (A1F) - celebrated its...
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Celebrating women: Alpha-1 Mom Kate Mullen & Donor Sarah McKitterick

Wednesday, March 14, 2018
During Women’s History Month, we are featuring the stories of women who help make the Alpha–1 community great. Finn O’Sullivan of New York is known to many now as “Finn the Mighty Warrior." At 8 weeks of age,...
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Environmental factors can override genetic ancestry

Wednesday, March 14, 2018
According to a new study, the environment where people live can have a greater effect on their transcriptomes than their genetic ancestry, and influence disease risk. A team led by the Ontario Institute for Cancer Research (OICR) examined the...
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Dosing in Phase 1 study of ARO-AAT for treatment of Alpha-1 liver disease begins

Tuesday, March 13, 2018
Arrowhead Pharmaceuticals announced that it has dosed the first subjects in a Phase 1 clinical study of ARO-AAT, which is being developed as treatment for a rare genetic liver disease associated with Alpha-1 Antitrypsin Deficiency...
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