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Karen Erickson to lead operations in TAP

Wednesday, October 24, 2018
The Alpha-1 Project (TAP) announces the appointment of Karen Erickson as Chief Operating Officer, a new position within TAP. The appointment is effective November 1, 2018. Erickson leaves her position as Associate Executive Director for...
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Escape to the Cape was a total success for Alpha-1

Monday, October 22, 2018
A weekend in the scenic coast of Cape Cod, Massachusetts, with bike riding and lots of family fun was the perfect setting for this year’s Escape to the Cape Bike Trek, in which Team Alpha-1 raised $100,000 for Alpha-1 Antitrypsin Deficiency...
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CMS announces premiums and deductibles for Medicare and exchanges drop in 2019

Monday, October 15, 2018
2019 Medicare Parts A & B Premiums and Deductibles Last week, the Centers for Medicare & Medicaid Services (CMS) released the 2019 premiums, deductibles, and coinsurance amounts for the Medicare Part A and Part B programs. Medicare Part...
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Drug pricing bills get signed and more will come

Friday, October 12, 2018
This week, the Know the Lowest Price Act and the Patients’ Right to Know Drug Prices Act were signed by President Trump. The measure received overwhelming bipartisan approval in Congress and was part of Trump’s drug-pricing...
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Alpha leader Sally Everett passes away

Thursday, October 11, 2018
It is with great sadness and a heavy heart that the Alpha-1 Foundation announces the passing of Sarah E. (Sally) Everett, on October 10th, 2018, at age 75. Sally was an attorney for the New York state attorney general’s Medicaid Fraud...
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Alpha-1 Foundation supports letters to the U.S. Department of Health and Human Services on Step Therapy

Wednesday, October 10, 2018
The National Health Council (NHC), the American Cancer Society Cancer Action Network (ACS CAN) and several patient-advocacy organizations, including the Alpha-1 Foundation, sent a letter to Alex M. Azar II, secretary of the U.S. Department of...
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Gene-silencing therapy (RNAi) is on the move

Tuesday, October 9, 2018
“The recent announcements by Alnylam Pharmaceuticals and Arrowhead Pharmaceuticals are excellent news for our patients. Both companies are developing therapies for the liver by ‘silencing’ the production of the alpha-1...
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Officials warn about respiratory complications from red tide

Tuesday, October 9, 2018
A red tide, or harmful algal bloom, is a higher-than-normal concentration of a microscopic alga (plantlike organism). In Florida and the Gulf of Mexico, the species that causes most red tides is Karenia brevis, often abbreviated as K. brevis. To...
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Antibacterial drug for rare lung disease gets approved

Monday, October 8, 2018
The U.S. Food and Drug Administration (FDA) approved a new drug, Arikayce (amikacin liposome inhalation suspension), for the treatment of lung disease caused by a group of bacteria, Mycobacterium avium complex (MAC) in a limited population of...
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Health officials urge people to get the flu shot

Friday, October 5, 2018
U.S. Health Officials are urging the general population to get vaccinated for the flu this year after a severe outbreak killed a record number of children and led to shortages of antiviral medications, last season. In a panel hosted by the...
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Dohman Life Science Services to be renamed to EVERSANA

Thursday, October 4, 2018
The fast-growing life science services platform built in partnership with Water Street Healthcare Partners and JLL Partners unveiled its new name and brand: EVERSANA™. A combination of the Latin word "sana" for healthy and...
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Medicare Open Enrollment for 2019 Webinar

Wednesday, October 3, 2018
Save the Date!   Medicare Open Enrollment for 2019 Webinar Thursday, October 18th 4:00 PM ET (3 PM CT; 2 PM MT; 1 PM PT) Speaker: Tim Boyd, MPH Director of State Policy with National Organization for Rare Disorders...
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