Menu

Top Stories

Published on Tuesday, February 26, 2019

The Alpha-1 Foundation gears up for the 2019 Global meetings in Dubrovnik, Croatia

The Alpha-1 Foundation gears up for the 2019 Global meetings in Dubrovnik, Croatia

MIAMI, Feb. 26th, 2019 - The 7th Alpha-1 Global Patient Congress and 4th International Research Conference on Alpha-1 Antitrypsin will be held April 3-6, at the Sheraton Dubrovnik Riviera Hotel in Dubrovnik, Croatia. Patient leaders, physicians and scientists from around the world will come together to discuss the latest developments in patient advocacy, clinical care and Alpha-1 Antitrypsin Deficiency (Alpha-1) research. 

With a rich history of international collaboration, the Foundation is committed to Alphas worldwide and is proud to host representatives from 32 countries. Through the dedication of the Conference Planning Committee, we are looking forward to another outstanding event. The commitment to the mission drives the Alpha-1 Global program each day, to increase awareness, detection, and access to care for Alphas around the world.  

“The recent changes in the Alpha-1 Global program offers me the opportunity to reshape our outreach to the entire Alpha-1 community, globally. Our strategic alliances are strong and will be reaffirmed in Dubrovnik, Croatia, at our International Scientific Conference and concurrent International Patient Congress. I would like to extend my gratitude to the Internal Conference Planning Committee, Richard Lovrich, who will be our emcee, and the Foundation’s hardworking staff and volunteers,” expressed Miriam O’Day, president and CEO of the Alpha-1 Foundation.

“These events will be the first international meetings I have attended since our meeting in Barcelona, in 2013. This is an exciting opportunity to be able to collaborate and strategize about the future of the Global program in my new role as president and CEO,” she added.

The 2019 meeting will begin with the 4th International Research Conference on Wednesday and Thursday, April 3-4. The Research Conference theme titled “Beyond Folding: Disease Progression and Therapeutic Options” is chaired by Professor Rob Stockley from University Hospitals Birmingham, United Kingdom. 

The program agenda for the 4th International Research Conference is available to view here

We will continue with representatives from 32 countries at the Global Patient Congress with a welcome reception and networking dinner where Alpha-1 patients, physicians and researchers can interact on Thursday, April 4th. The patient congress will continue Friday and Saturday, April 5-6.

The program agenda for the 7th Alpha-1 Global Patient Congress is available to view here

A special thank you to our outstanding Global Conference Planning Committee and Global Advisory Committee:

  • Cristina Barbiero, National Association Alfa-1 AT Italy, EU Advocacy Working Group, Italy
  • Jim Clarke, Alpha-1 Association New Zealand Co-Leader Alpha-1 Support Group, New Zealand
  • Shane Fitch, Lovexair Foundation - President, Spain
  • Elena Goyanes, Alpha-1 Association Spain, EU Advocacy Working Group, Spain
  • Karen O'Hara, Alpha-1 UK Support Group - ERN - Lung, EARCO, UK
  • Carlos Cambon, Alpha-1 Association Argentina, Argentina  
  • Martina Cambon, Alpha-1 Association Argentina, Argentina
  • Frank Willersinn, MD, Alpha-1 Plus, Belgium
  • Marion Bouchecareilh, University of Bordeaux, Alpha-1 Liver Research, France
  • Robert Durlik, Alpha-1 Poland, Founder, Poland
  • Robert Kroesen, Patient Representative, Panama
  • Tim Frost, AlphaNet Board Member, USA

Global Advisory Committee: 

  • Jeanine D’Armiento, MD, PhD, Alpha-1 Foundation – Chair, USA
  • Robert Sandhaus, MD, PhD, FCCP, Alpha-1 Foundation Medical Director, USA
  • Robert Stockley, MD, Director Lung Immuno Biochemical Research Laboratory, UK
  • Adam Wanner, MD, Alpha-1 Foundation Scientific Director, USA

The Alpha-1 Foundation graciously thanks the 2019 Alpha-1 Global Patient Congress and Research Conference Sponsors. Presenting Sponsors: AlphaNet, CSL Behring and Grifols. Gold Sponsors: Arrowhead, Kamada and Vertex. Bronze Sponsors: Dicerna and Mereo BioPharma.

CLICK HERE TO REGISTER TODAY

For additional information on the upcoming events, please contact Randel Plant, global programs manager, rplant@alpha1.org or 877-228-7321 ext. 306.

For hotel and travel arrangements, please contact Adriana De Arce, manager of scientific events, adearce@alpha1.org or 877-228-7321 ext. 269.


Print

Breathless Journey

Friday, March 16, 2012
Jim Danley grew up in Niles, Michigan, and eventually moved to Florida, where he studied hospitality management. He then married Nancy, and began a family. He worked in hotels for 15 years, and then one day decided he’d had enough....
Divider

His wings lifted him way above his depression

Friday, March 16, 2012
If you saw the movie, The Bucket List, you probably enjoyed watching Morgan Freeman and Jack Nicholson trying to do as many outrageous and unthinkable things as they could before their time was up - but what if it was your life? What would...
Divider

Go, Dad, Go!

Friday, March 16, 2012
John Kelley tackles the grueling Ironman competition to raise money and awareness for Alpha-1, all for his sons and the Alpha-1 community he loves so much. He battled the Pacific seas, gusty winds, and the stifling heat of the lava fields. But...
Divider

John Taylor: No mountain’s too high now

Friday, March 16, 2012
On a sunny day in July, John Taylor hiked along the Continental Divide, reaching 12,005 feet, where the air is too thin for trees to grow. He looked at the mountainside, dotted with specs of color from hardy wildflowers. He took a deep breath,...
Divider

“One of the Originals” Retires from AlphaNet

Friday, March 16, 2012
Joyce Finch has retired after more than a decade with AlphaNet, and although she does it with regret, she’s had more than her share of medical challenges in recent years. “It’s just time,” she says. One of the first...
Divider

Juan Pino, 9/11 Survivor

Friday, March 16, 2012
At 40, Juan Pino was a man who knew how to live: he got up at six every morning, summer and winter, and ran six miles before breakfast, he took a long train ride from his home in Yonkers into New York’s Grand Central Station every...
Divider

Moving Forward

Friday, March 16, 2012
As a child, Barden had asthma, and her family’s smoking made it worse – by age 10, she had decided she would never smoke, “even though I couldn’t verbalize it as a child, I managed to refuse to buy my mother...
Divider

I hope you dance: the story of Kaitlin’s wedding

Friday, March 16, 2012
Lace-wrapped potpourri, heart-shaped soap and picture frames are among the most popular wedding favors, but for their wedding, Kaitlin Boyd and Patrick Kelly of Long Island, NY, wanted keepsakes that would make a lasting impression. So they...
Divider

Team Player

Friday, March 16, 2012
While it’s not unusual to work out with equipment at a gym, that equipment is rarely an oxygen tank: but for Karen Erickson, a biotech employee from Thousand Oaks, California, strapping on that tank lets her push herself to the...
Divider

Katie: She won’t let Alpha-1 or Breast Cancer slow her down!

Friday, March 16, 2012
When Katie Schwalbe’s older sister was diagnosed with Alpha-1 in 1995, she blew off getting herself tested – just because her sister had some health condition, why should she have it, too? Schwalbe even started smoking again. But...
Divider

Super Alpha

Friday, March 16, 2012
Can a skinny 17-year-old girl be a Super-Heroine in a book full of villains? If she has no special powers? In the graphic novel world? Where all the good guys are like Superman, Batman or Wonder Woman? If it’s Katherine Arnoldi, she not...
Divider

Ken: The Story Behind the Alpha-1 Angel

Friday, March 16, 2012
It might surprise you that a guy like me loves to do cross-stitch - I’m not really into crafts, I’m actually more of a hunter, an athletic type of guy, but having Alpha-1 has brought about many changes in my life, and led me to...
Divider
First62636465666768697071

Article Search

Enter keywords in text box and click Search button for results.

Archive