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FDA/NIH public workshop: Developing Alpha-1 Antitrypsin Therapeutics

FDA/NIH public workshop: Developing Alpha-1 Antitrypsin Therapeutics
Tuesday, September 17, 2019
The Alpha-1 Foundation is proud and grateful for the opportunity to collaborate with the FDA, Center for Biologics Evaluation and Research (CBER), and the National Institutes of Health (NIH) in organizing the public workshop entitled “Developing Alpha-1 Antitrypsin Therapeutics,” on Monday, September 16, 2019, in Bethesda, Maryland. The agenda was designed to review current...
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Patient advocacy group applauds new regulations to strengthen patients' right to appeal health insurance denials

Friday, July 23, 2010
Washington, DC—The National Health Council (NHC) today released a statement in support of today’s White House announcement of new federal regulations to strengthen patients’ rights to appeal health insurance denials. The Alpha-1...
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Charles Leonard Geiger, MD, dies; father of well-known Alpha

Friday, July 16, 2010
GAINESVILLE, GA—Charles Leonard Geiger, MD, died Wednesday, July 14. A retired pathologist, he had formerly been an officer in the US Air Force Medical Service and professor of clinical pathology at Emory Medical School. He was the father...
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Alpha-1 patient in Canada doing well after getting lung transplant despite infection with H1N1 (swine flu) virus

Wednesday, July 14, 2010
CBC News EDMONTON, Alberta—A 50-year-old Canadian with Alpha-1 Antitrypsin Deficiency underwent a successful double lung transplant last year in Edmonton even though he was infected with the H1N1 virus at the time of the surgery, doctors...
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Iowa Alpha-1 education day August 28 features talks on importance of exercise, getting to positive, advocacy opportunities and More

Tuesday, July 6, 2010
DES MOINES, IA – Josh Stolpe, a Cardiopulmonary Specialist at Mercy Medical Center, will explain “The Importance of Exercise” at the Alpha-1 Education Day on August 28. Jeff Wilson, MD, Professor of Medicine at the University of...
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FDA approves Kamada's IV drug Glassia as 4th US augmentation therapy for Alpha-1

Friday, July 2, 2010
Israeli biopharmaceutical company Kamada Inc. has been granted approval by the US Food and Drug Administration for Glassia, its intravenous augmentation therapy to treat emphysema due to Alpha-1 Antitrypsin Deficiency. Alpha-1 Antitrypsin...
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Kathy Haduck receives Helen Chase Walsh Memorial Award

Thursday, June 17, 2010
AlphaNet Coordinator Kathy Haduck of Blandburg, PA, was honored with the Helen Chase Walsh Memorial Award at the recent annual education conference of the Alpha-1 Association in Orlando, FL. The award is presented each year by the Walsh family to...
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Do you have the scoop on Alpha-1?

Thursday, June 17, 2010
Darin and Megan Chittick know exactly why it’s important to support Alpha-1 fundraisers. Their daughter, McKinley Chittick, who is now three years old, was diagnosed with Alpha-1 when she was just a month old. She developed severe jaundice...
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$1 million donation by Cadwgans to help Alpha-1 Foundation "find new therapies and ultimately, a cure"

Wednesday, June 16, 2010
Ruth and Gordon E. Cadwgan, Jr., made a surprise announcement at this past weekend’s national education conference in Orlando: the donation of a million dollars to the Alpha-1 Foundation from themselves and Gordon Cadwgan, Sr. Gordon...
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Foundation scientific director receives "outstanding investigator" award from Hungarian Respiratory Society

Wednesday, June 16, 2010
SOPRON, HUNGARY—Alpha-1 Foundation Scientific Director Adam Wanner, MD, recently received the “Outstanding Investigator Award” from the Hungarian Respiratory Society at its biennial meeting. Wanner gave the keynote speech at the...
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Foundation presents Building Friends for a Cure awards

Monday, June 14, 2010
ORLANDO, FL—The Alpha-1 Foundation presented its Building Friends for a Cure awards Friday evening during the Alpha-1 Association’s annual educational conference. The Alpha-1 Foundation presented awards to the following. All-Star...
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Alpha-1 protein to be tested as treatment for Type 1 diabetes

Wednesday, June 9, 2010
MarketWire DENVER, CO—Omni Bio Pharmaceutical, Inc. announced that the Barbara Davis Center for Childhood Diabetes has received regulatory clearance from the U.S. Food and Drug Administration (FDA) to initiate a Phase I and II clinical...
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Childhood liver disease studies enrolling patients; some travel funds available to eligible families

Tuesday, June 8, 2010
The Childhood Liver Disease Research and Education Network (ChiLDREN) is enrolling children now for vital research studies on cholestatic liver diseases of children. In cholestatic liver disease, the flow of bile from the liver into the digestive...
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