Top Stories

Published on Tuesday, February 26, 2019

The Alpha-1 Foundation gears up for the 2019 Global meetings in Dubrovnik, Croatia

The Alpha-1 Foundation gears up for the 2019 Global meetings in Dubrovnik, Croatia

MIAMI, Feb. 26th, 2019 - The 7th Alpha-1 Global Patient Congress and 4th International Research Conference on Alpha-1 Antitrypsin will be held April 3-6, at the Sheraton Dubrovnik Riviera Hotel in Dubrovnik, Croatia. Patient leaders, physicians and scientists from around the world will come together to discuss the latest developments in patient advocacy, clinical care and Alpha-1 Antitrypsin Deficiency (Alpha-1) research. 

With a rich history of international collaboration, the Foundation is committed to Alphas worldwide and is proud to host representatives from 32 countries. Through the dedication of the Conference Planning Committee, we are looking forward to another outstanding event. The commitment to the mission drives the Alpha-1 Global program each day, to increase awareness, detection, and access to care for Alphas around the world.  

“The recent changes in the Alpha-1 Global program offers me the opportunity to reshape our outreach to the entire Alpha-1 community, globally. Our strategic alliances are strong and will be reaffirmed in Dubrovnik, Croatia, at our International Scientific Conference and concurrent International Patient Congress. I would like to extend my gratitude to the Internal Conference Planning Committee, Richard Lovrich, who will be our emcee, and the Foundation’s hardworking staff and volunteers,” expressed Miriam O’Day, president and CEO of the Alpha-1 Foundation.

“These events will be the first international meetings I have attended since our meeting in Barcelona, in 2013. This is an exciting opportunity to be able to collaborate and strategize about the future of the Global program in my new role as president and CEO,” she added.

The 2019 meeting will begin with the 4th International Research Conference on Wednesday and Thursday, April 3-4. The Research Conference theme titled “Beyond Folding: Disease Progression and Therapeutic Options” is chaired by Professor Rob Stockley from University Hospitals Birmingham, United Kingdom. 

The program agenda for the 4th International Research Conference is available to view here

We will continue with representatives from 32 countries at the Global Patient Congress with a welcome reception and networking dinner where Alpha-1 patients, physicians and researchers can interact on Thursday, April 4th. The patient congress will continue Friday and Saturday, April 5-6.

The program agenda for the 7th Alpha-1 Global Patient Congress is available to view here

A special thank you to our outstanding Global Conference Planning Committee and Global Advisory Committee:

  • Cristina Barbiero, National Association Alfa-1 AT Italy, EU Advocacy Working Group, Italy
  • Jim Clarke, Alpha-1 Association New Zealand Co-Leader Alpha-1 Support Group, New Zealand
  • Shane Fitch, Lovexair Foundation - President, Spain
  • Elena Goyanes, Alpha-1 Association Spain, EU Advocacy Working Group, Spain
  • Karen O'Hara, Alpha-1 UK Support Group - ERN - Lung, EARCO, UK
  • Carlos Cambon, Alpha-1 Association Argentina, Argentina  
  • Martina Cambon, Alpha-1 Association Argentina, Argentina
  • Frank Willersinn, MD, Alpha-1 Plus, Belgium
  • Marion Bouchecareilh, University of Bordeaux, Alpha-1 Liver Research, France
  • Robert Durlik, Alpha-1 Poland, Founder, Poland
  • Robert Kroesen, Patient Representative, Panama
  • Tim Frost, AlphaNet Board Member, USA

Global Advisory Committee: 

  • Jeanine D’Armiento, MD, PhD, Alpha-1 Foundation – Chair, USA
  • Robert Sandhaus, MD, PhD, FCCP, Alpha-1 Foundation Medical Director, USA
  • Robert Stockley, MD, Director Lung Immuno Biochemical Research Laboratory, UK
  • Adam Wanner, MD, Alpha-1 Foundation Scientific Director, USA

The Alpha-1 Foundation graciously thanks the 2019 Alpha-1 Global Patient Congress and Research Conference Sponsors. Presenting Sponsors: AlphaNet, CSL Behring and Grifols. Gold Sponsors: Arrowhead, Kamada and Vertex. Bronze Sponsors: Dicerna and Mereo BioPharma.


For additional information on the upcoming events, please contact Randel Plant, global programs manager, or 877-228-7321 ext. 306.

For hotel and travel arrangements, please contact Adriana De Arce, manager of scientific events, or 877-228-7321 ext. 269.


Canadian Alphas: the challenges are greater

Friday, March 16, 2012
In 2001, a small group of Canadian Alphas, carriers and caregivers decided that something needed to be done about the lack of information and support for Alphas in Canada. The most obvious difficulty facing them: a tiny Alpha-1 population in a...

Alpha-1 Caregiver steps up to lead support group

Friday, March 16, 2012
Barb Speers, the wife of a lung-affected Alpha, knows firsthand the stressful role of an Alpha-1 caregiver after her husband, Ed Speers, was diagnosed with Alpha-1 in 1997 and put on oxygen full time. When an online email list for Alpha-1...

Curtis Hamilton’s granddaughter gives him a reason to live

Friday, March 16, 2012
It was 11 o’clock on the night of Curtis Hamilton’s 57th birthday when he heard a knock on the door of his home in Richland, Mississippi. His son Curtis Jr. and daughter-in-law Wendy were there. They told him, oddly enough, they had...

The Family that Tests Together

Friday, March 16, 2012
How much do you know? How much do you want to know? Once you know more, what will you do? When a family member is diagnosed with a genetic condition like Alpha-1, these are some of the questions that arise about family testing. For Scott...

The Human Touch

Friday, March 16, 2012
Whenever Cathey Horsak feels down and discouraged, she rereads some words that she clipped from a magazine long ago. When she finds Alphas or their family members who feel the same way, she shares the clipping with them. The words come from the...

Alpha learns his lesson — and now teaches it to others

Friday, March 16, 2012
Dan Martini learned a lot from pulmonary rehab classes—so that helped him decide to become a Respiratory Therapist Dan Martini thought he knew exactly why he was short of breath: “I was overweight, lazy and smoked two packs of...

Lost and Found

Friday, March 16, 2012
In 1994, Dennis Pollock was not looking forward to attending his first Alpha-1 support group meeting – he was 34 years old, and it had been less than a year since he had been diagnosed with Alpha-1. His pulmonologist had told him that...

Metamorphosis of an Alpha-1 Patient

Friday, March 16, 2012
Reflecting on my confirmed diagnosis of having inherited Alpha-1 Antitrypsin Deficiency ZZ and thinking about where I am today closely parallel the metamorphosis of a butterfly. Encouraged by my younger brother and his wife, a nurse I...

Walking sticks are “functional art” — and a contribution to research

Friday, March 16, 2012
Marvin Sineath and Dick Chappell have never met, or even spoken on the phone, but they’re teaming up to raise money for Alpha-1 research, and they’re doing it from two different states. Chappell started making walking sticks for...

One Transplant, Two Cures

Friday, March 16, 2012
Michael Locke could easily run up the steps of his summer cottage in the popular Canadian vacation area of Muskoka, Ontario. Why not? He was a lean, healthy man in his 50s, never smoked, and he’d run up those steps for years without a...

The Fire Inside

Friday, March 16, 2012
When Alpha and former firefighter Ed Brailey calls himself a “steak-and-eggs guy,” he’s not just talking about breakfast. He means that he still likes hanging out at the firehouse every now and then, sharing some eats, and...

A Family Affair

Friday, March 16, 2012
The Eymer family boys formed a bicycle motocross (BMX) racing team a few years ago in Wadsworth, Ill – now, to spread the word about Alpha-1, they’re letting their wheels do the talking. Jayson Eymer is a teenager in love. Although...

Article Search

Enter keywords in text box and click Search button for results.