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Jonathan Maidment completes a thru-hike of the Pacific Crest Trail raising awareness and funds for Alpha-1

Jonathan Maidment completes a thru-hike of the Pacific Crest Trail raising awareness and funds for Alpha-1
Wednesday, October 16, 2019
October 16, 2019 – Hiking the Pacific Crest Trail (PCT) for the past seven months. Jonathan Maidment completes his journey to raise awareness and funds for Alpha-1 Antitrypsin Deficiency (Alpha-1). Holding up his Alpha Angels flag to honor those that have lost their battle to this condition, Maidment, a 24-year-old from Connecticut, takes each of the 2,650 miles of this long-distance...
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In memory of Gavin

Friday, March 16, 2012
Alpha-1 liver disease cost Gavin his life, and now, his mother is doing whatever it takes to raise awareness so that she may one day save another child's life. In just 11 months of life, Gavin was hospitalized seven times. He went through three...
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A Golf Ball in the Woods

Friday, March 16, 2012
Gordon Cadwgan as diagnosed in 1992, when the first national meeting of the new Alpha-1 Association took place - he and his wife, Ruth, traveled from their home in Wilmington, Delaware, to the conference in Minnesota. Gordon had been running...
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A Long Decade’s Journey

Friday, March 16, 2012
Some of life’s most auspicious journeys begin with a single, faltering step, and Gordon Snider, MD, began such a journey in a New York City taxicab on a rainy night in 1995. The eminent pulmonologist and researcher shared a cab to...
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Black Alpha family wonders “if there are blacks that are not diagnosed because they are black — or even people of other races”

Friday, March 16, 2012
Mary Rogers, with skin the color of rich dark chocolate, was recovering from the operation when the surgeon came in, checked and found out she had Alpha-1. “He said ‘Alpha-1 is normally associated with Europeans,’”...
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Two for the Road

Friday, March 16, 2012
Hap and Diane Eaton enjoy each other’s company – a necessity, when you spend a full year in the daily close proximity of a two-seater bicycle – but it also helps that the Eaton’s see themselves as a team, sharing in the...
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Isabel and the honeysuckle jungle

Friday, March 16, 2012
Isabel Baynes works every day with her husband Robert (Bud) in their family business, growing ornamental willow trees for sale to florists. It’s a business with some physical demands. It requires regularly cutting branches from the...
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For Jack Davis, “Music is my happy place”

Friday, March 16, 2012
How to deal with a chronic condition like Alpha-1 lung disease? Jack Davis Jr, 61, does it by keeping a positive outlook on life – and singing and playing in his country rock band. Davis lives in Birmingham AL, but was born in the small...
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Jaidan’s second chance

Friday, March 16, 2012
Her mother calls it her lifeline – the 10 inch scar across her 21-month-old daughter’s tiny belly that marks the moment when she received the gift of life. “It to me defines a part of her life. It definitely shows that...
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An Information Web Site Run By and For Pulmonary Patients

Friday, March 16, 2012
Jane Martin, BA, CRT is a respiratory therapist who is making great strides for pulmonary patients with her web site titled “Breathing Better, Living Well” (or BBLW, as Martin and frequent viewers like to call it). Martin...
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Breathless Journey

Friday, March 16, 2012
Jim Danley grew up in Niles, Michigan, and eventually moved to Florida, where he studied hospitality management. He then married Nancy, and began a family. He worked in hotels for 15 years, and then one day decided he’d had enough....
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His wings lifted him way above his depression

Friday, March 16, 2012
If you saw the movie, The Bucket List, you probably enjoyed watching Morgan Freeman and Jack Nicholson trying to do as many outrageous and unthinkable things as they could before their time was up - but what if it was your life? What would...
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Go, Dad, Go!

Friday, March 16, 2012
John Kelley tackles the grueling Ironman competition to raise money and awareness for Alpha-1, all for his sons and the Alpha-1 community he loves so much. He battled the Pacific seas, gusty winds, and the stifling heat of the lava fields. But...
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