Menu

Top Stories

State and city proclamations raise Alpha-1 awareness during Alpha-1 Awareness Month

State and city proclamations raise Alpha-1 awareness during Alpha-1 Awareness Month
Monday, November 11, 2019
November has been marked as Alpha-1 Awareness Month to increase knowledge and spread awareness about Alpha-1 Antitrypsin Deficiency (Alpha-1) with several activities across the United States. You can read the official press release here. Many Alphas from all over the country are requesting proclamations from their state governors and city mayors to recognize November as Alpha-1 Awareness...
Divider

Alex Harrah’s Art Cars Help Him Cope with Alpha-1

Friday, March 16, 2012
Alex Harrah is a lover of art and cars, but he is particularly a fan of fixing up old cars and adding flare, turning them into works of art. You can hear it in Harrah’s voice when he talks about building his most recent “Art...
Divider

It’s all about attitude

Friday, March 16, 2012
Andrea says that keeping a positive attitude is the key to dealing with chronic illness Growing up, Andrea Maechtle was hardly ever sick. She never went to the doctor when she got a cold. She didn’t even stay home from school, or call in...
Divider

The grim diagnosis…

Friday, March 16, 2012
Alpha-1 hasn’t kept these liver kids from living full, satisfying lives In the summer of 1986, Mike and Julia Berger had their first child, Jake. Jake had yellow skin and eyes, and his bilirubin count was very high. Family and...
Divider

A One-Minute Alpha

Friday, March 16, 2012
As chairman and chief executive officer of Clear Channel Entertainment — the almost $2 billion subsidiary of media giant Clear Channel Worldwide — Brian Becker doesn’t waste a minute: actually, he has his days scheduled almost...
Divider

Brian Jackson urges family testing and awareness

Friday, March 16, 2012
Brian Jackson, 49, of Baltimore, MD, spent 20 years loving his work as a forklift operator – but he can’t do that job anymore, or play sports and was even recently told by a doctor he may someday need a lung transplant. Jackson is...
Divider

Canadian Alphas: the challenges are greater

Friday, March 16, 2012
In 2001, a small group of Canadian Alphas, carriers and caregivers decided that something needed to be done about the lack of information and support for Alphas in Canada. The most obvious difficulty facing them: a tiny Alpha-1 population in a...
Divider

Alpha-1 Caregiver steps up to lead support group

Friday, March 16, 2012
Barb Speers, the wife of a lung-affected Alpha, knows firsthand the stressful role of an Alpha-1 caregiver after her husband, Ed Speers, was diagnosed with Alpha-1 in 1997 and put on oxygen full time. When an online email list for Alpha-1...
Divider

Curtis Hamilton’s granddaughter gives him a reason to live

Friday, March 16, 2012
It was 11 o’clock on the night of Curtis Hamilton’s 57th birthday when he heard a knock on the door of his home in Richland, Mississippi. His son Curtis Jr. and daughter-in-law Wendy were there. They told him, oddly enough, they had...
Divider

The Family that Tests Together

Friday, March 16, 2012
How much do you know? How much do you want to know? Once you know more, what will you do? When a family member is diagnosed with a genetic condition like Alpha-1, these are some of the questions that arise about family testing. For Scott...
Divider

The Human Touch

Friday, March 16, 2012
Whenever Cathey Horsak feels down and discouraged, she rereads some words that she clipped from a magazine long ago. When she finds Alphas or their family members who feel the same way, she shares the clipping with them. The words come from the...
Divider

Alpha learns his lesson — and now teaches it to others

Friday, March 16, 2012
Dan Martini learned a lot from pulmonary rehab classes—so that helped him decide to become a Respiratory Therapist Dan Martini thought he knew exactly why he was short of breath: “I was overweight, lazy and smoked two packs of...
Divider

Lost and Found

Friday, March 16, 2012
In 1994, Dennis Pollock was not looking forward to attending his first Alpha-1 support group meeting – he was 34 years old, and it had been less than a year since he had been diagnosed with Alpha-1. His pulmonologist had told him that...
Divider
First60616263646566676869Last

Article Search

Enter keywords in text box and click Search button for results.

Archive