Menu

Top Stories

Update: CSL Behring announcement on their product Zemaira

Update: CSL Behring announcement on their product Zemaira
Monday, August 19, 2019
The Alpha-1 Foundation received the following communication update from CSL Behring, regarding Zemaira®, their prescription drug for augmentation therapy for the treatment of Alpha-1 Antitrypsin Deficiency (Alpha-1): "CSL Behring is pleased to inform you that we are lifting our precautionary distribution hold, and ZEMAIRA® [Alpha1-Proteinase Inhibitor (Human)] is now available...
Divider

A Golf Ball in the Woods

Friday, March 16, 2012
Gordon Cadwgan as diagnosed in 1992, when the first national meeting of the new Alpha-1 Association took place - he and his wife, Ruth, traveled from their home in Wilmington, Delaware, to the conference in Minnesota. Gordon had been running...
Divider

A Long Decade’s Journey

Friday, March 16, 2012
Some of life’s most auspicious journeys begin with a single, faltering step, and Gordon Snider, MD, began such a journey in a New York City taxicab on a rainy night in 1995. The eminent pulmonologist and researcher shared a cab to...
Divider

Black Alpha family wonders “if there are blacks that are not diagnosed because they are black — or even people of other races”

Friday, March 16, 2012
Mary Rogers, with skin the color of rich dark chocolate, was recovering from the operation when the surgeon came in, checked and found out she had Alpha-1. “He said ‘Alpha-1 is normally associated with Europeans,’”...
Divider

Two for the Road

Friday, March 16, 2012
Hap and Diane Eaton enjoy each other’s company – a necessity, when you spend a full year in the daily close proximity of a two-seater bicycle – but it also helps that the Eaton’s see themselves as a team, sharing in the...
Divider

Isabel and the honeysuckle jungle

Friday, March 16, 2012
Isabel Baynes works every day with her husband Robert (Bud) in their family business, growing ornamental willow trees for sale to florists. It’s a business with some physical demands. It requires regularly cutting branches from the...
Divider

For Jack Davis, “Music is my happy place”

Friday, March 16, 2012
How to deal with a chronic condition like Alpha-1 lung disease? Jack Davis Jr, 61, does it by keeping a positive outlook on life – and singing and playing in his country rock band. Davis lives in Birmingham AL, but was born in the small...
Divider

Jaidan’s second chance

Friday, March 16, 2012
Her mother calls it her lifeline – the 10 inch scar across her 21-month-old daughter’s tiny belly that marks the moment when she received the gift of life. “It to me defines a part of her life. It definitely shows that...
Divider

An Information Web Site Run By and For Pulmonary Patients

Friday, March 16, 2012
Jane Martin, BA, CRT is a respiratory therapist who is making great strides for pulmonary patients with her web site titled “Breathing Better, Living Well” (or BBLW, as Martin and frequent viewers like to call it). Martin...
Divider

Breathless Journey

Friday, March 16, 2012
Jim Danley grew up in Niles, Michigan, and eventually moved to Florida, where he studied hospitality management. He then married Nancy, and began a family. He worked in hotels for 15 years, and then one day decided he’d had enough....
Divider

His wings lifted him way above his depression

Friday, March 16, 2012
If you saw the movie, The Bucket List, you probably enjoyed watching Morgan Freeman and Jack Nicholson trying to do as many outrageous and unthinkable things as they could before their time was up - but what if it was your life? What would...
Divider

Go, Dad, Go!

Friday, March 16, 2012
John Kelley tackles the grueling Ironman competition to raise money and awareness for Alpha-1, all for his sons and the Alpha-1 community he loves so much. He battled the Pacific seas, gusty winds, and the stifling heat of the lava fields. But...
Divider

John Taylor: No mountain’s too high now

Friday, March 16, 2012
On a sunny day in July, John Taylor hiked along the Continental Divide, reaching 12,005 feet, where the air is too thin for trees to grow. He looked at the mountainside, dotted with specs of color from hardy wildflowers. He took a deep breath,...
Divider
First59606162636465666768

Article Search

Enter keywords in text box and click Search button for results.

Archive