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Jonathan Maidment completes a thru-hike of the Pacific Crest Trail raising awareness and funds for Alpha-1

Jonathan Maidment completes a thru-hike of the Pacific Crest Trail raising awareness and funds for Alpha-1
Wednesday, October 16, 2019
October 16, 2019 – Hiking the Pacific Crest Trail (PCT) for the past seven months. Jonathan Maidment completes his journey to raise awareness and funds for Alpha-1 Antitrypsin Deficiency (Alpha-1). Holding up his Alpha Angels flag to honor those that have lost their battle to this condition, Maidment, a 24-year-old from Connecticut, takes each of the 2,650 miles of this long-distance...
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For Sue Binnall, volunteering became a way of life

Tuesday, March 20, 2012
Susan Binnall is a wife, a mother and a grandmother at home, but in the Alpha-1 community she’s nothing short of a hero. Binnall, of Newton, MA, was a maintenance worker for United Parcel Service, monitoring the perimeter of the building...
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Angel without Wings

Tuesday, March 20, 2012
Skylar Haynes simply loves to fish – she likes it better than playing with Barbies, better than painting pictures, better than dancing – and if you get to know her even a little bit, and you begin to see why. Fishing requires...
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Standing strong with Building Friends for a Cure

Tuesday, March 20, 2012
Rose McClellan always tried to remain active in the Alpha-1 community after learning that her husband Billy suffered from Alpha-1 Antitrypsin Deficiency. The two became aware of Billy’s condition following his liver transplant in...
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BP employees take company challenge to donate $500 -- and they choose the Alpha-1 Foundation

Tuesday, March 20, 2012
If you had the opportunity to help enrich the lives of those living in your community, and the company you worked for gave you $500 to spend on a charity, organization or fundraising group, would you do it?? BP of America makes just such an...
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My Precious Breath

Monday, March 19, 2012
Even as he waited on a lung transplant list, Jim Danley could sing – in fact, he made two CDs of himself performing classic popular songs as part of a fundraising effort to help cover transplant costs. He received a lung at Shands Hospital...
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Confessions of an oxygen user

Monday, March 19, 2012
I was diagnosed with Alpha-1 and moderate emphysema in January, 1993 – for the next five years, I didn’t use oxygen – and after testing my oxygen saturation levels, my doctor prescribed oxygen for me to use during...
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Alex Harrah’s Art Cars Help Him Cope with Alpha-1

Friday, March 16, 2012
Alex Harrah is a lover of art and cars, but he is particularly a fan of fixing up old cars and adding flare, turning them into works of art. You can hear it in Harrah’s voice when he talks about building his most recent “Art...
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It’s all about attitude

Friday, March 16, 2012
Andrea says that keeping a positive attitude is the key to dealing with chronic illness Growing up, Andrea Maechtle was hardly ever sick. She never went to the doctor when she got a cold. She didn’t even stay home from school, or call in...
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The grim diagnosis…

Friday, March 16, 2012
Alpha-1 hasn’t kept these liver kids from living full, satisfying lives In the summer of 1986, Mike and Julia Berger had their first child, Jake. Jake had yellow skin and eyes, and his bilirubin count was very high. Family and...
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A One-Minute Alpha

Friday, March 16, 2012
As chairman and chief executive officer of Clear Channel Entertainment — the almost $2 billion subsidiary of media giant Clear Channel Worldwide — Brian Becker doesn’t waste a minute: actually, he has his days scheduled almost...
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Brian Jackson urges family testing and awareness

Friday, March 16, 2012
Brian Jackson, 49, of Baltimore, MD, spent 20 years loving his work as a forklift operator – but he can’t do that job anymore, or play sports and was even recently told by a doctor he may someday need a lung transplant. Jackson is...
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Canadian Alphas: the challenges are greater

Friday, March 16, 2012
In 2001, a small group of Canadian Alphas, carriers and caregivers decided that something needed to be done about the lack of information and support for Alphas in Canada. The most obvious difficulty facing them: a tiny Alpha-1 population in a...
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