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Jonathan Maidment completes a thru-hike of the Pacific Crest Trail raising awareness and funds for Alpha-1

Jonathan Maidment completes a thru-hike of the Pacific Crest Trail raising awareness and funds for Alpha-1
Wednesday, October 16, 2019
October 16, 2019 – Hiking the Pacific Crest Trail (PCT) for the past seven months. Jonathan Maidment completes his journey to raise awareness and funds for Alpha-1 Antitrypsin Deficiency (Alpha-1). Holding up his Alpha Angels flag to honor those that have lost their battle to this condition, Maidment, a 24-year-old from Connecticut, takes each of the 2,650 miles of this long-distance...

Study: Immunotherapy promising in lung cancer survival time

Friday, October 31, 2014
Treatment of a common form of advanced lung cancer with the experimental immunotherapy nivolumab led to a one-year survival rate of 41 percent in a midstage clinical trial, according to data to be presented at a medical meeting. While the...

Portable ventilator cuts COPD symptoms, according to findings presented at CHEST meeting

Thursday, October 30, 2014
Assessment scores for chronic obstructive pulmonary disease (COPD) improved by more than 50 percent during treatment with a noninvasive open ventilation system (NIOV), results of a small prospective trial showed. The mean score on the modified...

States proclaim November 2014 Alpha-1 Awareness Month

Tuesday, October 28, 2014
Thanks to the efforts of support groups, officials in 23 states — and one city, Houston — have proclaimed November 2014 Alpha-1 Awareness Month. Great teamwork from the Alpha-1 community in reaching out and raising...

Foundation-funded study recruiting participants who use supplemental oxygen

Friday, October 10, 2014
Do you use supplemental oxygen? Are you using your oxygen less than the ideal amount of time? If so, you may be eligible to participate in a research study funded by the Alpha-1 Foundation.  A research team, led by Kristen Holm, PhD, at...

Jonathan Maidment recounts joys, challenges of Appalachian Trail hike in Hartford Courant story

Tuesday, October 7, 2014
Jonathan Maidment, who completed his trek of the Appalachian Trail on Sept. 17, is featured this week in a story in the Hartford Courant. Over the nearly seven-month journey, Maidment, 19, raised more than $30,000 for the Alpha-1...

Heleen Groen, of Amsterdam, tells about her long, life-threatening route to treatment

Friday, August 15, 2014
Heleen Groen, 40, of Amsterdam, Netherlands, is an Alpha who has severe necrotizing panniculitis, a painful skin infection often accompanied by a rash, inflammation and skin ulcers. She shares her experience of growing up with Alpha-1 and...

Florida police officer carries Alpha flag on climb up Mount Rainier

Friday, August 15, 2014
Dorothea “Dee” Meisner is a police officer in Cocoa, Florida. At age 55, she’s been working in law enforcement for 20 years. Till very recently she was a street cop, patrolling her city beat alone in a squad car. Meisner has...

Doctors surprised to find Alpha-1 in siblings of mixed-race family

Tuesday, August 5, 2014
Doctors have been surprised to find Alpha-1 in Kathleen Griffin’s family. Griffin is African-American — although her family history, like that of many, proves it’s much more complicated. When her sister, Mary Rogers, was...

At 96, Alpha Mary Anne Ferguson sees every day as full of possibility, pleasure

Tuesday, July 29, 2014
Mary Anne Ferguson comes from a family that is no stranger to longevity. At 72, Ferguson was diagnosed with Alpha-1 and as she turns 96, she continues to enjoy life despite some obstacles. In Pittsburgh, PA, she was first diagnosed with chronic...

NACE offers Alpha-1 online course for healthcare providers in convenient "spaced learning" format

Thursday, July 24, 2014
The National Association for Continuing Education (NACE) is offering a course for healthcare providers on Alpha-1 as part of its "Spaced Education" continuing medical education mobile series.    The course, Alpha-1 Antitrypsin...

TAP partnership to help fund study of Arrowhead liver disease treatment

Thursday, June 19, 2014
The Alpha-1 Project (TAP), the venture philanthropy subsidiary of the Alpha-1 Foundation, said Thursday it will partner with biopharmaceutical company Arrowhead Research on its next clinical candidate, ARC-AAT, an RNA interference (RNAi)...

Celebration of Life honors late UM Coach and friend Ron Fraser "from the heart"

Monday, May 12, 2014
Ron Fraser was nicknamed the “Wizard of College Baseball,” but it was his power to transform the Alpha-1 community that was lauded at the Alpha-1 Foundation’s 14th annual Celebration of Life fundraiser on Friday, May 2. The...

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