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Update: CSL Behring announcement on their product Zemaira

Update: CSL Behring announcement on their product Zemaira
Monday, August 19, 2019
The Alpha-1 Foundation received the following communication update from CSL Behring, regarding Zemaira®, their prescription drug for augmentation therapy for the treatment of Alpha-1 Antitrypsin Deficiency (Alpha-1): "CSL Behring is pleased to inform you that we are lifting our precautionary distribution hold, and ZEMAIRA® [Alpha1-Proteinase Inhibitor (Human)] is now available...
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NORD to honor Alpha-1 Foundation president with lifetime achievement award

Wednesday, April 23, 2014
Alpha-1 Foundation President and co-founder John Walsh will be honored with a lifetime achievement award by the National Organization for Rare Disorders (NORD) next month at its “Portraits of Courage” celebration in...
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Over the mountains, through the streets, Alphas make great strides

Wednesday, March 12, 2014
This week, two Alphas covered a lot of distance in both raising awareness and personal accomplishment — 110 miles and 26.2 miles, respectively. Jonathan Maidment celebrated his 19th birthday March 10 on the Appalachian Trail in North...
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Connecticut Alpha ‘will be carrying the Alpha Angels’ on Appalachian Trail hike

Monday, March 3, 2014
On Feb. 27, Jonathan Maidment took the first step in a 2,200-mile journey. Jonathan, 18, plans to hike the full Appalachian Trail, starting at Springer Mountain, GA, and ending at Mount Katahdin, ME. He’ll be carrying a flag that says,...
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At age 2, Martim Margaça receives ‘a beautiful piece of liver’ from dad

Thursday, October 17, 2013
On the blog Martim Margaça’s mother created to record his life, there is a ticker showing how many days, hours, minutes and seconds it has been since his liver transplant on Oct. 24, 2009. Martim was diagnosed with Alpha-1...
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A beautiful piece of liver

Thursday, October 17, 2013
On the blog Martim Margaça’s mother created to record his life, there is a ticker showing how many days, hours, minutes and seconds it has been since his liver transplant on Oct. 24, 2009. Martim was diagnosed with Alpha-1...
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In 100-mile race, Matt Dulin inspired by memory of dad’s strength and endurance

Friday, August 23, 2013
“I’ll be challenging myself this year, running the Leadville 100,” Matt Dulin wrote on his fundraising page. On Aug. 17, Dulin, 25, a runner who has done marathons, set out on the two-day, 100-mile “Race Across The...
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For Trent Walling, Alpha-1 is no limitation

Monday, July 22, 2013
  Trent Walling may be the third of six children but he surely knows how to stand out. Born in 2002 to Sheri and David Walling of Kingwood, Texas, Trent went home a healthy baby. At three months old, however, his skin and eyes turned...
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Obama earmarks $150 million for centers to enroll uninsured

Friday, May 10, 2013
The U.S. Department of Health and Human Services announced Thursday, May 9, that the Obama Administration is providing $150 million to community health centers across the country to help them educate and enroll the uninsured in Affordable Care Act...
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Alphas invited to submit original art for "Art by Alphas: Creating Hope for the Future"

Friday, May 10, 2013
Calling all Alphas! Commemorate the 50th anniversary of the discovery of Alpha-1 by spreading your message of hope. Submit your original piece of art to be featured in AlphaNet and Grifols' traveling exhibition, "Art by Alphas: Creating Hope for...
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Lisa Kosak: Down to earth

Monday, May 6, 2013
  For 12 years, Lisa Kosak lived the high life: 7,000 feet above sea level in in the mountains of Eagle, Colorado. But in 2007, she began facing major health issues that no one seemed able to diagnose. The owner of two businesses, Kosak...
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"Mom will be walking with us" at Hero Walk in Virginia April 20

Wednesday, April 17, 2013
Although the 3rd Annual Alpha-1 Hero Walk, to raise awareness and funds to cure Alpha-1, was minus one very important participant this year, her spirit was there in the many who love her. This year's event took place at Deep Run Park in...
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Alpha Don Davis overcomes COPD, lives a full life

Tuesday, November 20, 2012
Don Davis grew up having asthma. A trip to the doctor’s office when he was 40 years old may have saved his life. “I noticed that I was getting out of breath much quicker than usual,” Davis remembered. “I told the doctor I...
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