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Alpha-1 Foundation earns highest not-for-profit accreditations

Alpha-1 Foundation earns highest not-for-profit accreditations
Monday, July 15, 2019
The Alpha-1 Foundation earned the 2019 Platinum Seal of Transparency, the highest level of recognition offered by GuideStar, the world’s largest database and source of nonprofit information, and received a 4-star rating from Charity Navigator, the largest charity evaluator in the U.S., for the ninth consecutive year. By sharing metrics that highlight the progress that the Alpha-1...
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Officials warn about respiratory complications from red tide

Tuesday, October 9, 2018
A red tide, or harmful algal bloom, is a higher-than-normal concentration of a microscopic alga (plantlike organism). In Florida and the Gulf of Mexico, the species that causes most red tides is Karenia brevis, often abbreviated as K. brevis. To...
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Antibacterial drug for rare lung disease gets approved

Monday, October 8, 2018
The U.S. Food and Drug Administration (FDA) approved a new drug, Arikayce (amikacin liposome inhalation suspension), for the treatment of lung disease caused by a group of bacteria, Mycobacterium avium complex (MAC) in a limited population of...
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Health officials urge people to get the flu shot

Friday, October 5, 2018
U.S. Health Officials are urging the general population to get vaccinated for the flu this year after a severe outbreak killed a record number of children and led to shortages of antiviral medications, last season. In a panel hosted by the...
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Dohman Life Science Services to be renamed to EVERSANA

Thursday, October 4, 2018
The fast-growing life science services platform built in partnership with Water Street Healthcare Partners and JLL Partners unveiled its new name and brand: EVERSANA™. A combination of the Latin word "sana" for healthy and...
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Medicare Open Enrollment for 2019 Webinar

Wednesday, October 3, 2018
Save the Date!   Medicare Open Enrollment for 2019 Webinar Thursday, October 18th 4:00 PM ET (3 PM CT; 2 PM MT; 1 PM PT) Speaker: Tim Boyd, MPH Director of State Policy with National Organization for Rare Disorders...
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Peg Iverson joins the Board of Directors

Wednesday, October 3, 2018
The Alpha-1 Foundation announces that Peg Iverson was named as member of its Board of Directors. Peg is very involved with the Alpha-1 community and has played many roles throughout more than four decades in favor of Alphas all over the...
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eMedicare: New tools for Medicare enrollment launched

Monday, October 1, 2018
The Centers for Medicare & Medicaid Services (CMS) announced eMedicare, a multi-year initiative that will empower patients and update Medicare resources to meet beneficiaries’ expectations of a more personalized customer experience. The...
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FDA acts to address youth e-cigarette use

Friday, September 14, 2018
The U.S. Food and Drug Administration (FDA) announced a series of critical actions related to the sale and marketing of electronic cigarettes (e-cigarettes) and related products to minors. Since March, FDA compliance checks have uncovered more...
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Emergency preparation and lung disease

Wednesday, September 12, 2018
Everyone, especially patients that require the use of oxygen or other special medical equipment, should never wait long before putting an emergency plan into practice, for emergencies, catastrophes or natural or man-made disasters. And putting...
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Augmentation therapy patient-pioneer, Gerry Treichel, passes away

Wednesday, September 12, 2018
It is with a heavy heart that the Alpha-1 Foundation announces the passing of Gerald (Gerry) Treichel, beloved member of the Alpha-1 community for many years and one of the pioneer patients for augmentation therapy, in the evening of Sunday,...
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A good age: Denied a lung transplant, she keeps on trekking

Tuesday, September 11, 2018
In her determination, Alyce Yout has a compelling courage and buoyancy. After living with lung disease for 26 years, the former pediatric nurse had high hopes for a lung transplant last fall. “We began the journey to a transplant after...
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Sharp drop in portable oxygen access blamed on provider pay changes

Monday, September 10, 2018
A coalition of pulmonary health groups called on the Centers for Medicare & Medicaid Services (CMS) to change its supplemental oxygen reimbursement policy to remove liquid oxygen from competitive bidding requirements. The American Lung...
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