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Alpha-1 Awareness Month 2019: Week 2

Alpha-1 Awareness Month 2019: Week 2
Friday, November 15, 2019
It is November 15th and the second week of Alpha-1 Awareness Month has been a huge a success. We are halfway through the month and the momentum is going strong with walks continuing to take place all over the country. More proclamations have been added to the list and government representatives have been educated on the importance of Alpha-1 awareness.   Big Red Alphas of...
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FDA sends warnings after several people hospitalized with infections from stem cell shots

Friday, December 21, 2018
Twelve patients became seriously ill after receiving injections that supposedly contained stem cells from umbilical cord blood, according to the U.S. Food and Drug Administration (FDA), which issued a warning to the California company, Genetech,...
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Near and far, the 2018 Virtual Walk raised the bar

Tuesday, December 18, 2018
Alphas from all over the United States joined together in November for the annual Alpha-1 Foundation Virtual Walk. For 30 days, in 36 states, friends and family supported one strong mission to find a cure. From near and far, 68 teams and 40 solo...
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Giants in chest medicine: Gerard M. Turino, MD

Thursday, December 13, 2018
“My initial encounter with Gerry Turino took place in 1976, during my first year as a pathology intern at Columbia-Presbyterian Hospital. I was referred to him by a colleague, after mentioning my interest in connective tissue research. When...
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Medicare Open Enrollment for 2019 coverage

Thursday, December 6, 2018
Medicare health and drug plan holders can make changes annually on costs, coverage, and which providers and pharmacies are in their networks. From October 15th, 2018, through December 7th, 2018, people with Medicare can change their health plan...
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Zemaira update

Tuesday, December 4, 2018
The Alpha-1 Foundation was informed by CSL Behring that Zemaira, their prescription drug for augmentation therapy for the treatment of Alpha-1 Antitrypsin Deficiency (Alpha-1), returned to normal distribution on Monday, December 3rd, 2018. This is...
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Alpha-1 Foundation announces new Director of Communications

Monday, December 3, 2018
The Alpha-1 Foundation announces the appointment of Jeanne Kushner as the new Director of Communications. Kushner leaves her position as Senior Director of Development at the Foundation where she has overseen the Development Department and...
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Alpha-1 friend Lynn Lothian passes away

Monday, November 26, 2018
It is with a heavy heart that the Alpha-1 Foundation shares the passing of Lynn Martine Lothian at the age of 61. Lynn began her leadership in the Alpha-1 community in 2007, when she started leading the Maryland Alpha-1 support group. When she...
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Looking beyond mortality in transplantation outcomes

Tuesday, November 20, 2018
To the Centers for Medicare and Medicaid Services (CMS), whose benchmarks are the basis for whether a program is certified as a transplant center, success means being alive one year after transplantation, regardless of the quality of life of the...
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Gordon L. Snider Critical Issues Workshop to focus on the COPD National Action Plan and Alpha-1

Wednesday, November 14, 2018
The 17th Gordon L. Snider Critical Issues Workshop, titled “The Alpha-1 Foundation Approach to the COPD National Action Plan” is being held on November 15th, 2018, in New York, NY, and includes expert representation from academia,...
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Escape to the Cape: Team Alpha-1 made it happen, again

Thursday, November 8, 2018
Written by Judith Vargas-Vila Every September, the scenic coast of Cape Cod, Massachusetts, is the perfect stage for the annual Escape to the Cape fundraising bike trek, a 165-mile bicycle ride from Plymouth to Provincetown. An unforgettable...
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Papers on Alpha-1 research published in the COPD Foundation Journal

Wednesday, November 7, 2018
The latest issue of the Chronic Obstructive Pulmonary Diseases: Journal of the COPD Foundation (Volume 5, Issue 4 – 2018) features papers from presenters at the “3rd Biennial International Research Conference on Alpha-1...
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Mereo BioPharma and TAP work together in clinical study

Tuesday, November 6, 2018
Mereo BioPharma Group plc announced a collaboration with (and investment from) the venture philanthropy arm of the Alpha-1 Foundation, The Alpha-1 Project, Inc. (TAP) in Mereo’s MPH-966 development program. MPH-966 is an oral neutrophil...
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