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Alpha friend and leader Jim Quill passes away

Alpha friend and leader Jim Quill passes away
Monday, January 14, 2019
It is with a heavy heart that the Alpha-1 Foundation shares the passing of a dear friend and leader, James Quill on Sunday, January 13th, 2019 in Bluffton, South Carolina. He was 67. Jim was on the Alpha-1 Foundation Board of Directors since 2012 and recently served as the Vice Chair and Treasurer. He was a dedicated AlphaNet Coordinator for 10 years and retired as the General Manager for...
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Arrowhead completes enrollment in Phase 1 study for treatment of Alpha-1 liver disease

Tuesday, June 19, 2018
Arrowhead Pharmaceuticals, Inc. announced that it has completed enrollment of a Phase 1 clinical trial of ARO-AAT, their second generation subcutaneously administered RNA interference (RNAi) therapeutic that is being developed as a treatment for...
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Alphas will hold one of their biggest meetings in San Francisco

Monday, June 18, 2018
The city of San Francisco, California, will be the site of one of the biggest gatherings of Alphas, when the Alpha-1 Foundation holds, between June 29 – July 1, 2018, its 27th Annual National Education Conference. Alphas – as those...
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New foundation will increase awareness about cell and gene therapy, but caution is recommended

Thursday, June 7, 2018
The Alliance for Regenerative Medicine (ARM) announced the launch of the ARM Foundation for Cell and Gene Medicine, which will be dedicated to increasing public awareness and understanding of the clinical and societal benefits of cell and gene...
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NORD opposes implementation of copay accumulator programs in health plans

Tuesday, June 5, 2018
The National Organization for Rare Disorders (NORD), the nonprofit institution that represents 30 million Americans that suffer from rare diseases, issued the following statement on the increasing use of copay accumulator programs in health...
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RNA interference therapies could be on the verge of success

Tuesday, May 29, 2018
In the mid-2000s there was a wave of excitement across the pharmaceutical industry: a new discovery about cells that had the potential to transform medicine.  “The world became enamored with this idea because it was very powerful. If...
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Consortium seeks common standards for gene-editing therapies

Thursday, May 24, 2018
How to best measure if a therapy is reaching its target gene without introducing errors in others? This is one of the big questions that remain unanswered, as the first CRISPR clinical trials begin in the U.S. and Europe, in 2018. To address...
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2018 research grants on Alpha-1 awarded

Tuesday, May 22, 2018
At a cocktail reception the evening of May 21st, held at The Prado at Balboa Park, within the framework of the American Thoracic Society (ATS) 2018 International Conference in San Diego, California, the Alpha-1 Foundation (A1F) announced the...
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Mark Brantly honored with John W. Walsh PAR Award for Excellence

Monday, May 21, 2018
The Alpha-1 Foundation (A1F) extends a heartfelt message of congratulations to Alpha-1 Antitrypsin Deficiency (Alpha-1) researcher and pioneer, Mark Brantly, MD, for being the first recipient of the newly renamed 2018 John W. Walsh PAR Award for...
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Donohue to receive the Breathing for Life Award

Friday, May 18, 2018
James F. Donohue, MD, will be honored with the Breathing for Life Award at the Tenth Annual American Thoracic Society (ATS) Foundation Research Program Benefit on Saturday, May 19th, 2018, in San Diego, California. The Award is the highest honor...
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Alpha Jonathan Maidment hikes the Pacific Crest Trail

Thursday, May 17, 2018
This story appears in the Spring 2018 issue of Alpha-1-To-One Magazine. Subscriptions are free. Determined and driven are the first two adjectives that come to mind when you get a grasp of the endeavor that 23-year old Jonathan Maidment has...
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Spring has built new friends to find a cure

Thursday, May 17, 2018
The Building Friends for a Cure (BFC) program was created by the Alpha-1 Foundation (A1F) to make new friends and nurture those friendships throughout the year, because we cannot do it alone, you are all needed! Pictured: George Washington...
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FDA files lawsuits to stop unapproved stem cell therapies

Wednesday, May 16, 2018
The Food and Drug Administration (FDA) is seeking court orders to stop several institutions and doctors from using unapproved stem cell treatments and therapies on their patients which, in some cases, have caused serious harm. The FDA filed two...
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