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Alpha-1 Awareness Month 2019: Week 2

Alpha-1 Awareness Month 2019: Week 2
Friday, November 15, 2019
It is November 15th and the second week of Alpha-1 Awareness Month has been a huge a success. We are halfway through the month and the momentum is going strong with walks continuing to take place all over the country. More proclamations have been added to the list and government representatives have been educated on the importance of Alpha-1 awareness.   Big Red Alphas of...
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Companies partner to develop new COPD drug

Thursday, February 5, 2015
Theravance Biopharma and Mylan will partner on the development and, subject to FDA approval, commercialization of TD-4208, a new once-daily nebulized, long-acting muscarinic antagonist (LAMA) for chronic obstructive pulmonary disease...
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Alpha-1 liver disease: What therapeutic options are in the pipeline? You can help by joining studies

Thursday, February 5, 2015
David Perlmutter, MD, a longtime Alpha-1 researcher, joined with University of Pittsburgh colleagues Andrew Chu, MD, and Kapil B. Chopra, MD, for a Medscape article this week discussing potential therapies for Alpha-1 liver...
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‘Let It Breathe’ fundraiser in March celebrates memory of Alpha Michael Ratner

Thursday, February 5, 2015
Ilysse and Josh Ratner were standing outside The Valley Hospital in Ridgewood, NJ, waiting for the valet to bring their car around when a gust of wind hit their backs. "You feel this?" Josh asked his sister. "That’s dad finally...
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Eight years after Alpha community pushed for its passage, NEJM article revisits GINA

Wednesday, February 4, 2015
Eight years after the Genetic Information Nondiscrimination Act (GINA) was signed into law, an article in the Jan. 29 issue of The New England Journal of Medicine explores how effective it has been. In “GINA, Genetic...
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Happy Birthday, Alpha-1 Foundation!

Tuesday, February 3, 2015
Twenty years ago, three “impatient patients” who were determined to drive Alpha-1 research forward created the Alpha-1 Foundation. John Walsh, Sandy Lindsey and Susan Stanley knew they had to make a place dedicated to finding a cure...
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As tax time looms, a refresher on what you need to know about Obamacare and filing

Monday, February 2, 2015
If you are receiving health insurance through an exchange created under the Affordable Care Act, or Obamacare, you need to be aware of how the health law’s tax related provisions will affect your tax returns. IRS Publication...
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Study: Organ donations and transplants have saved more than 2 million years of life

Thursday, January 29, 2015
The results of a new JAMA study may double as a call to action for organ donation: More than 2 million years of life have been saved by solid-organ transplant since the late 1980s. The transplants refer to the liver, lungs, kidneys, heart,...
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Surgeon general: ‘Desperate need of clarity’ on e-cigarettes

Wednesday, January 28, 2015
Public health officials are “in desperate need of clarity” on electronic cigarettes to help guide policies, the nation’s newly appointed surgeon general said Tuesday. Vivek Murthy, MD, whose predecessors have been instrumental...
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Obama to request research funding for treatments tailored to patients’ DNA

Tuesday, January 27, 2015
President Obama will seek hundreds of millions of dollars for a new initiative to develop medical treatments tailored to genetic and other characteristics of individual patients, administration officials say. The proposal, mentioned briefly in...
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Study: Morphine after tonsillectomy tied to respiratory problems in children

Tuesday, January 27, 2015
Using morphine at home to treat pain in children after tonsil and/or adenoid removal may cause life-threatening respiratory problems, according to a new study. “The evidence here clearly suggests children with obstructive sleep apnea should...
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Federal, state lawmakers consider legislation to restrict e-cigarettes

Tuesday, January 27, 2015
Armed with the knowledge that electronic cigarettes that taste like gummy bears appeal to kids — not adults trying to stop smoking — three U.S. lawmakers sought advice from Connecticut teens Monday on how to stamp out...
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Are you prepared for winter storms? Some things you should know

Tuesday, January 27, 2015
With the first major storm of winter sweeping the East Coast, the Centers for Disease Control’s National Center on Birth Defects and Developmental Disabilities (NCBDDD) is sharing helpful information and educational materials...
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