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Alpha-1 Foundation earns highest not-for-profit accreditations

Alpha-1 Foundation earns highest not-for-profit accreditations
Monday, July 15, 2019
The Alpha-1 Foundation earned the 2019 Platinum Seal of Transparency, the highest level of recognition offered by GuideStar, the world’s largest database and source of nonprofit information, and received a 4-star rating from Charity Navigator, the largest charity evaluator in the U.S., for the ninth consecutive year. By sharing metrics that highlight the progress that the Alpha-1...
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November is Alpha-1 Awareness Month

Thursday, November 1, 2018
Miami, Nov. 1, 2018 – The month of November has been marked by the Alpha-1 Foundation as a month to raise awareness about Alpha-1 Antitrypsin Deficiency (Alpha-1), throughout several activities designed to increase knowledge and spread...
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AlphaNet matches gift by the Cadwgan Family

Tuesday, October 30, 2018
On Thursday, October 25th, AlphaNet announced that they would match the $100,000 gift to the Alpha-1 Foundation that the Cadwgan Family has generously donated as a sign of gratefulness to Robert (Bob) Barrett’s years of service at AlphaNet....
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Federal Health Insurance Exchange 2019 Open Enrollment

Tuesday, October 30, 2018
The Federal Health Insurance Exchange (also known as the Marketplace) Open Enrollment Period runs from November 1, 2018, to December 15, 2018, for coverage starting on January 1, 2019. Like last year, the Centers for Medicare & Medicaid...
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Alpha-1 Foundation’s position and the Zemaira shortage

Monday, October 29, 2018
It has been brought to the attention of the Alpha-1 Foundation that CSL Behring has been experiencing delays in the distribution of Zemaira for several months now. The Foundation bases its knowledge of this situation solely on the information...
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Improving plasma donations in California

Monday, October 29, 2018
A new law recently passed in the state of California, allowing trained individuals to perform a total protein test using a digital refractometer in plasma donation centers, which the Alpha-1 Foundation and other advocacy groups expect will lead to...
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Karen Erickson to lead operations in TAP

Wednesday, October 24, 2018
The Alpha-1 Project (TAP) announces the appointment of Karen Erickson as Chief Operating Officer, a new position within TAP. The appointment is effective November 1, 2018. Erickson leaves her position as Associate Executive Director for...
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Escape to the Cape was a total success for Alpha-1

Monday, October 22, 2018
A weekend in the scenic coast of Cape Cod, Massachusetts, with bike riding and lots of family fun was the perfect setting for this year’s Escape to the Cape Bike Trek, in which Team Alpha-1 raised $100,000 for Alpha-1 Antitrypsin Deficiency...
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CMS announces premiums and deductibles for Medicare and exchanges drop in 2019

Monday, October 15, 2018
2019 Medicare Parts A & B Premiums and Deductibles Last week, the Centers for Medicare & Medicaid Services (CMS) released the 2019 premiums, deductibles, and coinsurance amounts for the Medicare Part A and Part B programs. Medicare Part...
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Drug pricing bills get signed and more will come

Friday, October 12, 2018
This week, the Know the Lowest Price Act and the Patients’ Right to Know Drug Prices Act were signed by President Trump. The measure received overwhelming bipartisan approval in Congress and was part of Trump’s drug-pricing...
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Alpha leader Sally Everett passes away

Thursday, October 11, 2018
It is with great sadness and a heavy heart that the Alpha-1 Foundation announces the passing of Sarah E. (Sally) Everett, on October 10th, 2018, at age 75. Sally was an attorney for the New York state attorney general’s Medicaid Fraud...
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Alpha-1 Foundation supports letters to the U.S. Department of Health and Human Services on Step Therapy

Wednesday, October 10, 2018
The National Health Council (NHC), the American Cancer Society Cancer Action Network (ACS CAN) and several patient-advocacy organizations, including the Alpha-1 Foundation, sent a letter to Alex M. Azar II, secretary of the U.S. Department of...
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Gene-silencing therapy (RNAi) is on the move

Tuesday, October 9, 2018
“The recent announcements by Alnylam Pharmaceuticals and Arrowhead Pharmaceuticals are excellent news for our patients. Both companies are developing therapies for the liver by ‘silencing’ the production of the alpha-1...
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