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The Celtic Connection 2019: The pot of gold at the end of the rainbow

The Celtic Connection 2019: The pot of gold at the end of the rainbow
Sunday, March 17, 2019
The 2019 Celtic Connection, an annual Building Friends for a Cure event held in Boston, Massachusetts, joined 385 guests for a great night to raise awareness and over $138,000 for Alpha-1 Antitrypsin Deficiency (Alpha-1) research and related programs. Alphas, families, and supporters kicked-off St. Patrick’s Day celebrations on Saturday, March 2nd, dressed in all green to fill the room...
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Alpha leader Sally Everett passes away

Thursday, October 11, 2018
It is with great sadness and a heavy heart that the Alpha-1 Foundation announces the passing of Sarah E. (Sally) Everett, on October 10th, 2018, at age 75. Sally was an attorney for the New York state attorney general’s Medicaid Fraud...
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Alpha-1 Foundation supports letters to the U.S. Department of Health and Human Services on Step Therapy

Wednesday, October 10, 2018
The National Health Council (NHC), the American Cancer Society Cancer Action Network (ACS CAN) and several patient-advocacy organizations, including the Alpha-1 Foundation, sent a letter to Alex M. Azar II, secretary of the U.S. Department of...
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Gene-silencing therapy (RNAi) is on the move

Tuesday, October 9, 2018
“The recent announcements by Alnylam Pharmaceuticals and Arrowhead Pharmaceuticals are excellent news for our patients. Both companies are developing therapies for the liver by ‘silencing’ the production of the alpha-1...
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Officials warn about respiratory complications from red tide

Tuesday, October 9, 2018
A red tide, or harmful algal bloom, is a higher-than-normal concentration of a microscopic alga (plantlike organism). In Florida and the Gulf of Mexico, the species that causes most red tides is Karenia brevis, often abbreviated as K. brevis. To...
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Antibacterial drug for rare lung disease gets approved

Monday, October 8, 2018
The U.S. Food and Drug Administration (FDA) approved a new drug, Arikayce (amikacin liposome inhalation suspension), for the treatment of lung disease caused by a group of bacteria, Mycobacterium avium complex (MAC) in a limited population of...
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Health officials urge people to get the flu shot

Friday, October 5, 2018
U.S. Health Officials are urging the general population to get vaccinated for the flu this year after a severe outbreak killed a record number of children and led to shortages of antiviral medications, last season. In a panel hosted by the...
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Dohman Life Science Services to be renamed to EVERSANA

Thursday, October 4, 2018
The fast-growing life science services platform built in partnership with Water Street Healthcare Partners and JLL Partners unveiled its new name and brand: EVERSANA™. A combination of the Latin word "sana" for healthy and...
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Medicare Open Enrollment for 2019 Webinar

Wednesday, October 3, 2018
Save the Date!   Medicare Open Enrollment for 2019 Webinar Thursday, October 18th 4:00 PM ET (3 PM CT; 2 PM MT; 1 PM PT) Speaker: Tim Boyd, MPH Director of State Policy with National Organization for Rare Disorders...
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Peg Iverson joins the Board of Directors

Wednesday, October 3, 2018
The Alpha-1 Foundation announces that Peg Iverson was named as member of its Board of Directors. Peg is very involved with the Alpha-1 community and has played many roles throughout more than four decades in favor of Alphas all over the...
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eMedicare: New tools for Medicare enrollment launched

Monday, October 1, 2018
The Centers for Medicare & Medicaid Services (CMS) announced eMedicare, a multi-year initiative that will empower patients and update Medicare resources to meet beneficiaries’ expectations of a more personalized customer experience. The...
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FDA acts to address youth e-cigarette use

Friday, September 14, 2018
The U.S. Food and Drug Administration (FDA) announced a series of critical actions related to the sale and marketing of electronic cigarettes (e-cigarettes) and related products to minors. Since March, FDA compliance checks have uncovered more...
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Emergency preparation and lung disease

Wednesday, September 12, 2018
Everyone, especially patients that require the use of oxygen or other special medical equipment, should never wait long before putting an emergency plan into practice, for emergencies, catastrophes or natural or man-made disasters. And putting...
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