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The Celtic Connection 2019: The pot of gold at the end of the rainbow

The Celtic Connection 2019: The pot of gold at the end of the rainbow
Sunday, March 17, 2019
The 2019 Celtic Connection, an annual Building Friends for a Cure event held in Boston, Massachusetts, joined 385 guests for a great night to raise awareness and over $138,000 for Alpha-1 Antitrypsin Deficiency (Alpha-1) research and related programs. Alphas, families, and supporters kicked-off St. Patrick’s Day celebrations on Saturday, March 2nd, dressed in all green to fill the room...
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Grifols affirms commitment to patients during Alpha-1 Awareness Month

Friday, November 2, 2018
November is Alpha-1 Awareness Month, and Grifols is proud to share its efforts to further increase Alpha-1 diagnosis rates and expand treatment options. Alpha-1 awareness matters. Alpha-1 Antitrypsin Deficiency (Alpha-1) is a genetic condition...
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Significant reduction in Alzheimer progression demonstrated

Thursday, November 1, 2018
Grifols (Spain) announced that the combination of Plasmapheresis, a well-known and safe procedure used in plasma exchange, with Albutein® 20% (Albumin - a safe, well tolerated plasma protein with multiple properties) has demonstrated a...
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Alpha John Taylor passes away

Thursday, November 1, 2018
It is with a heavy heart that the Alpha-1 Foundation announces the passing of John Taylor, on September 29th, 2018. He was 60 years old. John led an incredible childhood in the town of Delran, New Jersey. He spread his wings and moved to...
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November is Alpha-1 Awareness Month

Thursday, November 1, 2018
Miami, Nov. 1, 2018 – The month of November has been marked by the Alpha-1 Foundation as a month to raise awareness about Alpha-1 Antitrypsin Deficiency (Alpha-1), throughout several activities designed to increase knowledge and spread...
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AlphaNet matches gift by the Cadwgan Family

Tuesday, October 30, 2018
On Thursday, October 25th, AlphaNet announced that they would match the $100,000 gift to the Alpha-1 Foundation that the Cadwgan Family has generously donated as a sign of gratefulness to Robert (Bob) Barrett’s years of service at AlphaNet....
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Federal Health Insurance Exchange 2019 Open Enrollment

Tuesday, October 30, 2018
The Federal Health Insurance Exchange (also known as the Marketplace) Open Enrollment Period runs from November 1, 2018, to December 15, 2018, for coverage starting on January 1, 2019. Like last year, the Centers for Medicare & Medicaid...
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Alpha-1 Foundation’s position and the Zemaira shortage

Monday, October 29, 2018
It has been brought to the attention of the Alpha-1 Foundation that CSL Behring has been experiencing delays in the distribution of Zemaira for several months now. The Foundation bases its knowledge of this situation solely on the information...
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Improving plasma donations in California

Monday, October 29, 2018
A new law recently passed in the state of California, allowing trained individuals to perform a total protein test using a digital refractometer in plasma donation centers, which the Alpha-1 Foundation and other advocacy groups expect will lead to...
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Karen Erickson to lead operations in TAP

Wednesday, October 24, 2018
The Alpha-1 Project (TAP) announces the appointment of Karen Erickson as Chief Operating Officer, a new position within TAP. The appointment is effective November 1, 2018. Erickson leaves her position as Associate Executive Director for...
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Escape to the Cape was a total success for Alpha-1

Monday, October 22, 2018
A weekend in the scenic coast of Cape Cod, Massachusetts, with bike riding and lots of family fun was the perfect setting for this year’s Escape to the Cape Bike Trek, in which Team Alpha-1 raised $100,000 for Alpha-1 Antitrypsin Deficiency...
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CMS announces premiums and deductibles for Medicare and exchanges drop in 2019

Monday, October 15, 2018
2019 Medicare Parts A & B Premiums and Deductibles Last week, the Centers for Medicare & Medicaid Services (CMS) released the 2019 premiums, deductibles, and coinsurance amounts for the Medicare Part A and Part B programs. Medicare Part...
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Drug pricing bills get signed and more will come

Friday, October 12, 2018
This week, the Know the Lowest Price Act and the Patients’ Right to Know Drug Prices Act were signed by President Trump. The measure received overwhelming bipartisan approval in Congress and was part of Trump’s drug-pricing...
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