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Escape to the Cape 2019: Team Alpha-1 at its best

Sunday, October 6, 2019
Even though the bike trek started with heavy hearts due to the very recent passing of two amazing Alpha volunteers, Susan Binnall and Alyce Yout, Team Alpha-1 pushed through and dedicated the ride to them: “Alyce & Sue This Rides for...
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Open for comments: FDA proposes new required health warnings for cigarette packages

Tuesday, September 24, 2019
The U.S. Food and Drug Administration (FDA) issued a proposed rule to require new health warnings on cigarette packages and advertisements to promote greater public understanding of the negative health consequences of smoking. The agency...
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FDA/NIH public workshop: Developing Alpha-1 Antitrypsin Therapeutics

Tuesday, September 17, 2019
The Alpha-1 Foundation is proud and grateful for the opportunity to collaborate with the FDA, Center for Biologics Evaluation and Research (CBER), and the National Institutes of Health (NIH) in organizing the public workshop entitled...
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White House prepares to ban flavored e-cigs

Tuesday, September 17, 2019
The Trump administration said it is planning to ban all e-cigarette flavors following a recent nationwide outbreak of severe lung illnesses linked to vaping and five reported deaths, according to pool reports. President Donald Trump told...
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Breaking a 10-year streak, the number of uninsured Americans rises

Friday, September 13, 2019
For the first time in a decade, the number of Americans without health insurance has risen — by about 2 million people in 2018 — according to the annual U.S. Census Bureau report. The Census found that 8.5% of the U.S. population...
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House Speaker Nancy Pelosi to release drug pricing plan after Congress returns

Thursday, September 12, 2019
As published on the National Health Council Insider and other news outlets, House Speaker Nancy Pelosi will release a drug-pricing plan shortly after Congress returns to work after its August recess, a House Democratic aide confirmed. Democrats...
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Study analyzes the degree of concordance among international guidelines regarding Alpha-1 Antitrypsin Deficiency

Thursday, September 12, 2019
The International Journal of Chronic Obstructive Pulmonary Disease recently published the outcomes of a study entitled “An analysis of the degree of concordance among international guidelines regarding alpha-1 antitrypsin deficiency,”...
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The biological effects of double-dose alpha-1 antitrypsin augmentation therapy: A pilot clinical trial

Thursday, September 12, 2019
The American Journal of Respiratory and Critical Care Medicine, of the American Thoracic Society (ATS), recently published an article about the outcomes of a clinical trial entitled: “Effect of Double Dose of Alpha 1-antitrypsin Augmentation...
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News and updates from the U.S. COPD Coalition

Wednesday, September 11, 2019
The U.S. COPD Coalition (USCC), which the Alpha-1 Foundation is a member of, has remained engaged in issues confronting our communities and continued its collaboration with other groups to positively impact access to diagnosis, treatment, and...
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FDA and NIH public workshop: Agenda now available

Wednesday, September 4, 2019
The U.S. Food and Drug Administration (FDA) and the National Institutes of Health (NIH) are sponsoring the workshop entitled “Developing Therapeutics for Alpha-1 Antitrypsin Deficiency,” at the Natcher Conference Center, Building 45...
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Update: CSL Behring announcement on their product Zemaira

Monday, August 19, 2019
The Alpha-1 Foundation received the following communication update from CSL Behring, regarding Zemaira®, their prescription drug for augmentation therapy for the treatment of Alpha-1 Antitrypsin Deficiency (Alpha-1): "CSL Behring is...
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DNA data shared in ways patients may find surprising

Tuesday, August 13, 2019
Deals between drugmakers and hospital systems to mine the genetic profiles of hospital patients are triggering concerns over the control of valuable genetic data. Drugmakers have been spending hundreds of millions of dollars for access to...
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