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Alpha-1 research pioneer Jack A. Pierce, MD, passes away

Alpha-1 research pioneer Jack A. Pierce, MD, passes away
Thursday, December 7, 2017
“One of the early investigators of Alpha–1 and the initial head of the one of the first Pulmonary and Critical Care departments in the country at Washington University in St. Louis has died at the age of 92. I believe few of today’s young researchers and clinicians know of Jack Pierce’s contributions to our understanding of protease-mediated lung injury. He was a...
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Recruitment begins for gene therapy clinical trial for Alpha-1 Antitrypsin Deficiency

Tuesday, December 5, 2017
Enrollment for a trial for a new treatment for Alpha–1 related lung disease begins today. Adverum Biotechnologies, in partnership with the Alpha–1 Foundation will be recruiting patients, as well as healthy ZZ and Znull...
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Your helping hand has an impact for Alphas worldwide

Friday, December 1, 2017
When you donate to the Alpha–1 Foundation, you are helping Alphas everywhere by providing support services to newly diagnosed adults and children, giving access to education to both Alphas and medical professionals, allowing for family...
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Orphan Drug Tax Credits threatened by new proposal

Tuesday, November 7, 2017
Last week, the Tax Cuts and Jobs Act, tax reform legislation was introduced in the House of Representatives. If enacted, it would make a number of significant changes to our nation’s tax code. While we expect that the legislation will be...
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November is Alpha-1 Awareness Month

Wednesday, November 1, 2017
MIAMI, Nov. 1, 2017 – The Alpha–1 Foundation has marked November as Alpha–1 Awareness Month, with several activities designed to increase knowledge of Alpha–1 Antitrypsin Deficiency (Alpha–1). Throughout November,...
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UK company acquires license for a potential pill-based Alpha–1 lung therapy

Wednesday, November 1, 2017
Mereo BioPharma Group, a clinical stage, UK-based, biopharmaceutical company focused on rare and specialty diseases, announced that it has reached an agreement with AstraZeneca for an exclusive license, including an option to acquire, AZD9668, an...
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Arrowhead Pharmaceuticals presents new data on liver therapy

Friday, October 27, 2017
Arrowhead Pharmaceuticals Inc., an investment partner of The Alpha–1 Project, presented data from studies in a late breaking poster at the Liver Meeting® 2017, the Annual Meeting of the American Association for the Study of Liver Disease...
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New gene editing approach for Alpha-1 shows promise

Friday, October 27, 2017
A new study by scientists at UMass Medical School shows that using a technique called “nuclease-free” gene editing to correct cells with the mutation that causes a rare liver disease leads to repopulation of the diseased liver with...
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Ohio Alphas celebrated their Third Annual River Walk for Alpha-1.

Monday, October 23, 2017
On Saturday, the Strickly Alphas support group held their Third Annual Strickly Alphas River Walk as part of the nationwide 2017 Alpha-1 Virtual Walk. They raised $9,000 in support of Alpha-1 research and related programs. The walk itself took...
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Telling the Alpha-1 story

Friday, October 20, 2017
The Fall 2017 issue of Alpha-1-To-One magazine has been mailed to well over 20,000 people with free subscriptions, and will soon be available online.  In 1997, a hard-boiled newspaper editor from Prince Edward Island, Canada, Bob Campbell...
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Medicare Vs. Medicare Advantage: How To Choose

Thursday, October 19, 2017
To assist Alphas during this shortened enrollment period, the Foundation offered a webinar to assist in navigating the options relating to Medicare. A recording of the presentation may be viewed...
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Irish Alphas currently on augmentation therapy to continue treatment through "compassionate use program"

Monday, October 16, 2017
The Alpha-1 Foundation applauds the efforts of Irish Alphas in advocating for their treatment, and encourages them to continue in the struggle for access to augmentation therapy worldwide. The Alpha One Foundation Ireland has today cautiously...
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Uncertainty added to health insurance markets

Friday, October 13, 2017
It has been an eventful 24 hours in Washington as President Trump made a number of announcements related to health insurance policy.  First, he signed an executive order that seeks to increase competition by facilitating access to association...
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