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RAPID trial extension study finds augmentation therapy slows disease progression, supports early intervention

RAPID trial extension study finds augmentation therapy slows disease progression, supports early intervention
Friday, December 2, 2016
The medical journal The Lancet Respiratory Medicine on Thursday, Dec. 1, published findings of the RAPID Open Label Extension study of augmentation therapy for patients with emphysema and Alpha-1 Antitrypsin Deficiency. N. Gerard McElvaney, MD, lead author The original RAPID trial, sponsored by CSL Behring, randomly assigned 180 Alphas with emphysema to receive either...
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Poll: Some GOP voters want to keep portions of Obamacare

Friday, December 2, 2016
With their party gaining control of both the White House and Congress, some Republican voters are growing hesitant about outright abolition of the Affordable Care Act and instead favor a more circumspect approach of scaling it back, according to a...
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House overwhelmingly passes 21st Century Cures bill

Thursday, December 1, 2016
WASHINGTON — The House overwhelmingly passed a far-reaching measure on Wednesday to increase funding for research into cancer and other diseases, address weaknesses in the nation’s mental health systems and help combat the prescription...
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Veteran Alpha-1 researcher announces donation to establish John W. Walsh Research Fund to honor Foundation founder

Wednesday, November 30, 2016
John Walsh, the founder and leader who is responsible for so many of the Alpha-1 Foundation’s accomplishments over the past 21 years, has been recognized again through a $225,000 gift to the Foundation from Mark Brantly, MD, and his wife,...
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Interactive web program aims to help insomniacs

Wednesday, November 30, 2016
People find help for all sorts of maladies online. Now, insomnia might be one of them. A web-based interactive program may help chronically sleepless people get needed shuteye without taking medication or spending time on a therapist's...
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Brother, sister team up to fight Alpha-1 in Naples, Florida

Wednesday, November 30, 2016
An Alpha and his sister have teamed up to fight Alpha-1. A nurse listens to Casey Wolff's lungs as he receives his weekly augmentation therapy. Casey Wolff, a Naples, Florida Alpha, has been coping with the condition and is hell-bent on...
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Report: Lack of sleep is costing the U.S. billions

Wednesday, November 30, 2016
Americans aren’t getting enough sleep, and the result isn’t just a rough day at work, but billions of dollars down the drain each year, a new report found. A lack of sleep among U.S. workers costs the U.S. economy up to $411...
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Arrowhead halts clinical trial of Alpha-1 liver drug candidate, plans to move ahead with subcutaneous AAT program

Wednesday, November 30, 2016
Arrowhead Pharmaceuticals has halted clinical trials of several potential drug therapies using its EX1 delivery system, including ARC-AAT, which had been showing good results in clinical trials to treat Alpha-1 liver disease, the company said in a...
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Obamacare critic chosen as new Health and Human Services chief

Tuesday, November 29, 2016
President-elect Donald Trump has selected Georgia Rep. Tom Price, a leading critic of President Barack Obama's sweeping healthcare law, to head the Department of Health and Human Services. Tom Price If confirmed by the Senate, Price would...
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Support group leader: Alpha-1 is serious but not well known

Monday, November 28, 2016
Tens of thousands of people may have a serious genetic condition called Alpha-1 Antitrypsin Deficiency (Alpha-1) without knowing it. Nadine Peterson The condition is the most common known genetic cause of chronic obstructive pulmonary...
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Alpha-1-To-One magazine is in the mail

Tuesday, November 22, 2016
The Winter 2016 issue of Alpha-1-To-One magazine, in the mail now, has this article on creating the first Alpha-1 lung mouse at the University of Massachusetts, whose researchers collaborate often with Boston University researchers on developing...
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Dementia rate falls sharply in older Americans

Tuesday, November 22, 2016
A new study finds that the prevalence of dementia has fallen sharply in recent years, most likely as a result of Americans’ rising educational levels and better heart health, which are both closely related to brain health. Dementia rates...
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Teens who vape twice as likely to have respiratory symptoms, study reports

Monday, November 21, 2016
Teens are getting burned by e-cigarettes even after they stop using them. Adolescents who currently vape are twice as likely to suffer respiratory symptoms like persistent cough, bronchitis, congestion and phlegm as those who have never used...
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