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Telling the Alpha-1 story

Telling the Alpha-1 story
Friday, October 20, 2017
The Fall 2017 issue of Alpha-1-To-One magazine has been mailed to well over 20,000 people with free subscriptions, and will soon be available online.  In 1997, a hard-boiled newspaper editor from Prince Edward Island, Canada, Bob Campbell had been getting sick more often than usual. At the time, he was working at the St. Petersburg Times in Tampa, Fla. Campbell had been a sickly...
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Medicare Vs. Medicare Advantage: How To Choose

Thursday, October 19, 2017
To assist Alphas during this shortened enrollment period, the Foundation offered a webinar to assist in navigating the options relating to Medicare. A recording of the presentation may be viewed...
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Irish Alphas currently on augmentation therapy to continue treatment through "compassionate use program"

Monday, October 16, 2017
The Alpha-1 Foundation applauds the efforts of Irish Alphas in advocating for their treatment, and encourages them to continue in the struggle for access to augmentation therapy worldwide. The Alpha One Foundation Ireland has today cautiously...
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Uncertainty added to health insurance markets

Friday, October 13, 2017
It has been an eventful 24 hours in Washington as President Trump made a number of announcements related to health insurance policy.  First, he signed an executive order that seeks to increase competition by facilitating access to association...
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Alpha-1 Foundation names Roberto Balderas as Grassroots Advocacy Manager

Thursday, October 12, 2017
Welcome Roberto Balderas The Alpha-1 Foundation welcomes Roberto Balderas, MPH to his new role as Grassroots Advocacy Manager. Balderas had previously worked as the Florida Detection Coordinator. He brings with him experience as an Alpha-1...
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Celebrating plasma donors worldwide

Wednesday, October 11, 2017
International Plasma Awareness Week (IPAW) brings awareness to the importance of plasma donors worldwide. “During PPTA’s International Plasma Awareness Week, we want to thank all the donors that make life sustaining Alpha–1...
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Medicare says 2018 to offer more health coverage choices and decreased premiums

Friday, September 29, 2017
Today, the Centers for Medicare & Medicaid Services (CMS) announced that people with Medicare will have more choices and options for their Medicare coverage in 2018. As CMS releases the benefit and premium information for Medicare health and...
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Record-breaking year for Team Alpha-1 at Escape to the Cape

Friday, September 29, 2017
As summer wanes and fall begins, Team Alpha–1 is decompressing from another successful Autumn Escape Bike Trek. This year has seen many firsts over our 23-year history of participating in this event with the American Lung Association of the...
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Reaching the next generation of Alpha Docs

Monday, September 18, 2017
Alpha–1 Foundation Board Member Fred Walsh recently participated in a lecture about Alpha–1 along with longtime Alpha–1 Researcher and dean of the School of Medicine at the University of Massachussetts Medical School Terrence...
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The FDA cracking down on stem-cell clinics

Monday, August 28, 2017
The Food and Drug Administration on Monday announced a crackdown on stem-cell clinics offering on “unapproved and potentially dangerous" treatments, including an outfit in California that has been using the smallpox vaccine on seriously...
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Alpha-1 patient and The Alpha-1 Project join forces to find a new therapy

Tuesday, August 22, 2017
With seed money from The Alpha-1 Project (TAP) and alpha-1 patient and innovator Ed Krapels, the pre-clinical focused company, Apic Bio, Inc. launched to advance a therapy that would potentially treat both alpha-1 lung and liver...
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CSL Behring to extend "compassionate use" access for Irish Alphas

Monday, August 14, 2017
Pharmaceutical manufacturer CSL Behring has decided to extend a compassionate use programme for its Respreeza drug in the State after the company came under fire over the timing of its closure. The Respreeza drug had been provided on...
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FDA to expand public education to prevent youth e-cigarette use

Wednesday, August 9, 2017
The U.S. Food and Drug Administration announced it would pursue a strategic, new public health education campaign aimed at discouraging the use of e-cigarettes and other electronic nicotine delivery systems (ENDS) by kids. The agency plans to...
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