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Escape to the Cape celebrates 21 years of raising Alpha-1 awareness

Escape to the Cape celebrates 21 years of raising Alpha-1 awareness
Friday, September 23, 2016
Over 20 years ago, Mary Pierce got a call from a friend. It was about a bicycle fundraiser for people with lung disorders. Sheila Favazza, left, and Sue Binnall, co-leaders of the Massachusetts Alpha-1 Support Group, helped organize Alphas' participation in Escape to the Cape. Despite having Alpha-1 lung disease, Pierce had always been very athletic, and her physical activity...
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Preparing for Awareness Month with social media, proclamations and our 2nd annual Virtual Walk

Friday, September 23, 2016
The Alpha-1 Foundation will again mark Alpha-1 Awareness Month, designed to increase knowledge about Alpha-1 Antitrypsin Deficiency (Alpha-1), throughout November. Alphas from all over the United States participated in Virtual...
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PPTA statement says plasma protein products are safe, not affected by Zika virus

Friday, September 23, 2016
The Plasma Protein Therapeutics Association (PPTA) has issued a statement saying that the safety of plasma protein therapies is not affected by the Zika virus (ZIKV). "According to recommendations from health authorities, measures such as...
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20 million would lose health coverage under Trump's plan, study finds

Friday, September 23, 2016
WASHINGTON (AP) — A new study that examines some major healthcare proposals from the presidential candidates finds that Donald Trump would cause about 20 million to lose coverage while Hillary Clinton would provide coverage for an additional...
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Rising Obamacare costs still lower than employer-sponsored insurance

Monday, September 19, 2016
People who warn that President Obama's health-care law is in dire straits often point to rising health insurance premiums as proof. Sen. John McCain (R-Ariz.) has called premium increases on Affordable Care Act exchanges "astronomically high."...
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Drones may one day zip Alpha-1 blood tests to labs

Monday, September 19, 2016
Three years ago, Geoff Baird bought a drone. The Seattle dad and hobby plane enthusiast used the 2.5-pound quadcopter to photograph the Hawaiian coastline and film his son's soccer and baseball games. Timothy Amukele, left, an assistant...
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Smoking damages DNA, study finds

Friday, September 16, 2016
Smoking scars DNA in clear patterns, researchers reported this week. But most of the damage can clear up after several years without smoking. The study of 16,000 people found that while most of the disease-causing genetic footprints left by...
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New rules to open up data from clinical trials

Friday, September 16, 2016
Universities and drug companies that use human volunteers for research face tough new rules designed to make sure that valuable information from these volunteers is widely available, not only to the volunteers themselves but to scientists trying...
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‘I am not ready to die,’ says Canadian Alpha awaiting liver transplant

Friday, September 16, 2016
A Canadian woman is hoping someone will give her the gift of life – literally. Beverley Mallyon More than a year ago, 57-year-old Beverley Mallyon was diagnosed with Alpha-1 liver disease.  When she received her diagnosis...
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COPD deaths down for most Americans, government says

Thursday, September 15, 2016
Fewer Americans are dying from chronic obstructive pulmonary disease (COPD), except for black women and the middle-aged, a new government report shows. Between 2000 and 2014, there was a 12 percent overall drop in deaths from the progressive lung...
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The ads say ‘get your flu shot today,’ but it may be wiser to wait

Thursday, September 15, 2016
The pharmacy chain pitches started in August: Come in and get your flu shot. Convenience is touted. So are incentives: CVS offers a 20-percent-off shopping pass for everyone who gets a shot, while Walgreens donates toward international...
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Employees are paying a bigger chunk of health insurance costs

Thursday, September 15, 2016
High deductible health plans are the new normal. Just over half of employees this year have a health insurance policy with a deductible of at least $1,000, according to a survey of employers from the Kaiser Family Foundation. It's the...
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Concerns about overspending on rare-disease drugs overblown, study says

Wednesday, September 14, 2016
Rising concerns about spending on prescription drugs that treat rare diseases are overblown, according to an analysis published Wednesday in the journal Health Affairs. "We wanted to focus on the true impact of orphan drugs," said Victoria...
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