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Foundation among 200 patient groups seeking to preserve patient healthcare protections

Foundation among 200 patient groups seeking to preserve patient healthcare protections
Wednesday, February 22, 2017
The Alpha-1 Foundation is one of more than 200 patient groups that are asking the newly confirmed Health and Human Services secretary to preserve key patient protections, including one that guarantees coverage for people who have pre-existing conditions.   In a letter to U.S. Health and Human Services Secretary Tom Price, “I Am Essential,” a coalition of patient and community...

Utah Alpha looks forward to bright future after lung transplant

Tuesday, February 21, 2017
When Steve Bailey, a lung-affected Alpha, got his handicap parking tag several years ago, its permanent status and January 2017 expiration date made his family chuckle. Steve Bailey It was a date they weren’t sure that Bailey, of Lehi,...

Alphas in Ireland set to lose access to augmentation therapy

Friday, February 17, 2017
More than 20 people in Ireland who have severe Alpha-1 lung disease are facing the loss of “life-changing” augmentation therapy within weeks following its rejection by the Health Service Executive (HSE).  Noel G....

Alpha-1 Foundation honors co-founder John W. Walsh with title of Director Emeritus

Wednesday, February 15, 2017
Alpha-1 Foundation Co-founder and visionary John W. Walsh has been named a Director Emeritus of the Board of Directors at the February 3, 2017 Board meeting. John W. Walsh “We have now passed the one-year anniversary of the accident...

Alabama medical practice becomes Alpha-1 Clinical Resource Center

Friday, February 10, 2017
Chest Medicine (CMED) of Cullman, Alabama has been designated as an Alpha-1 Foundation Clinical Resource Center program —one of just two in the state. G. Scott Warner, MD, middle, with nurse practitioners Kristy Keiffer and Glenda...

Alphas to highlight Rare Disease Day with focus on research, awareness

Wednesday, February 8, 2017
When Jackie English was pregnant with her youngest son, she thought she was out of breath because of her pregnancy. Jackie English, left, co-leader of the Open Arms for Alpha-1 Support Group, with Deb Burwell, right, the group's other...

Genes point to who develops lung disease, study finds

Tuesday, February 7, 2017
Scientists unveiled a trove of newly discovered gene variants on Monday to help predict who will most likely develop a killer lung disease, both among smokers and non-smokers. The world's biggest probe of the genetics of lung health yielded...

John Mugford, Alpha-1 UK Support Group chair, passes away

Monday, February 6, 2017
John Mugford, chair of the Alpha-1 UK Support Group, passed away peacefully at home on Jan. 30. He was 65. From left to right: Sheila Mugford, John Mugford, Darryl Mugford, Paul Mugford and Ryan Mugford Mugford was diagnosed with...

Flu hospitalizations, deaths increasing, CDC says

Monday, January 30, 2017
Although this year's flu season appears to be an average one so far, more hospitalizations are being reported and deaths are increasing, federal health officials reported Friday. It will be several weeks before the season peaks, said...

Foundation continues to monitor Affordable Care Act changes, seeks input from Alphas

Tuesday, January 24, 2017
President Donald Trump has taken the oath of office, and one of his first acts as president was to sign an executive order giving federal agencies broad powers to unwind regulations that were created under the Affordable Care Act. The...

How to dispose of unused or expired medicines

Monday, January 23, 2017
The U.S. Food and Drug Administration has issued an advisory on how consumers should safely dispose of expired drugs as well as medications that are no longer in use.  Many community-based drug “take-back” programs offer the...

Foundation to co-sponsor community education workshop and detection effort for Floridians at risk of Alpha-1

Friday, January 13, 2017
The Alpha-1 Foundation will co-host a community education workshop and detection effort next month at The Villages, an active adult retirement community  in Florida. The purpose of the workshop is to raise awareness of Alpha-1 and Chronic...

Foundation thanks AlphaNet for $50 million in donations

Tuesday, January 10, 2017
The Alpha-1 Foundation on Tuesday thanked AlphaNet, a not-for-profit health management organization for Alphas, for contributing $50 million to the Foundation. "Fifty million dollars contributed by AlphaNet to the Foundation for...

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