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Reaching the next generation of Alpha Docs

Reaching the next generation of Alpha Docs
Monday, September 18, 2017
Alpha–1 Foundation Board Member Fred Walsh recently participated in a lecture about Alpha–1 along with longtime Alpha–1 Researcher and dean of the School of Medicine at the University of Massachussetts Medical School Terrence Flotte, MD. Walsh shares his thoughts on the unique opportunity to interact with medical students and show them the reality of living with Alpha-1:...

The FDA cracking down on stem-cell clinics

Monday, August 28, 2017
The Food and Drug Administration on Monday announced a crackdown on stem-cell clinics offering on “unapproved and potentially dangerous" treatments, including an outfit in California that has been using the smallpox vaccine on seriously...

Alpha-1 patient and The Alpha-1 Project join forces to find a new therapy

Tuesday, August 22, 2017
With seed money from The Alpha-1 Project (TAP) and alpha-1 patient and innovator Ed Krapels, the pre-clinical focused company, Apic Bio, Inc. launched to advance a therapy that would potentially treat both alpha-1 lung and liver...

CSL Behring to extend "compassionate use" access for Irish Alphas

Monday, August 14, 2017
Pharmaceutical manufacturer CSL Behring has decided to extend a compassionate use programme for its Respreeza drug in the State after the company came under fire over the timing of its closure. The Respreeza drug had been provided on...

FDA to expand public education to prevent youth e-cigarette use

Wednesday, August 9, 2017
The U.S. Food and Drug Administration announced it would pursue a strategic, new public health education campaign aimed at discouraging the use of e-cigarettes and other electronic nicotine delivery systems (ENDS) by kids. The agency plans to...

Bob Campbell passes away, Foundation Communications Director, former AlphaNet Coordinator

Friday, July 28, 2017
Our dear friend and colleague, Bob Campbell passed Thursday evening with his wife Elizabeth by his side. Campbell began his Alpha-1 journey when he was diagnosed by his allergist. In 2002, he took the leap and became an AlphaNet...

Kamada Submits Proposed Phase 3 Protocol to FDA for Inhaled Alpha-1 Antitrypsin Treatment

Friday, July 21, 2017
Kamada Ltd., a plasma-derived protein therapeutics company focused on orphan indications, today announced that the Company has submitted to the U.S. Food and Drug Administration (FDA) for review a proposed pivotal Phase 3 protocol for its...

Nicotine addict finds hope after Alpha-1 Antitrypsin Deficiency diagnosis

Wednesday, July 19, 2017
Diagnosed with the lungs of a 126-year-old man from years of smoking and a rare genetic lung disorder, Ryan Taylor moved home from Alberta this past Christmas to die. But a news report his father saw on Memorial’s School of...

5-year old Alpha becomes the face of Australia’s DonateLife Week

Monday, July 17, 2017
If you still aren't sure about whether or not to become an organ donor, look into the eyes of Archer Irwin. The five-year-old from Wodonga has become the face of DonateLife Week, the federal government's push to have more...

Alpha Emma Lou Carr Glenn passes away

Monday, July 17, 2017
Emma Louise (Lou) Glenn passed away Tuesday, July 11. Many in the Alpha-1 community will remember Lou as Patti Brown's mom.  Patti is an AlphaNet Coordinator in Texas.  Lou became involved in the Alpha-1 community after Patti's...

Foundation president and CEO urges Alphas to find their place in the Alpha-1 Community

Thursday, June 29, 2017
CHICAGO, Illinois – Henry Moehring, president and CEO of the Alpha–1 Foundation, presided over the 26th and largest National Education Conference of the Alpha–1 community since its inception, he said in his Foundation update...

Alpha-1 Foundation Accepting Proposals for the John W. Walsh Translational Research Award in Alpha-1 Antitrypsin Deficiency

Wednesday, June 28, 2017
The Alpha-1 Foundation is committed to finding a cure for Alpha-1 Antitrypsin Deficiency and to improving the lives of people affected by Alpha-1 worldwide. This award is named after John W. Walsh, who dedicated his life’s work to finding...

Barbara Pusey honored in memoriam at Alpha–1 awards and recognition night

Monday, June 26, 2017
Barbara Pusey, who was the first AlphaNet Coordinator for the augmentation therapy marketed in the United States as Zemaira and was a major influence in building the AlphaNet Zemaira program into what it is today, was recognized posthumously, with...

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