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Famed sportswriter Frank Deford passes at 78

Famed sportswriter Frank Deford passes at 78
Monday, May 29, 2017
Frank Deford, a famed sportswriter for more than half a century, a weekly commentator for National Public Radio's Morning Edition for 37 years, and who was elected U.S. Sportswriter of the Year six times for his work with Sports Illustrated magazine, passed away Sunday, May 28, at his home in Key West, FL. He was 78. Deford, who had lung disease due to Alpha-1,...

Florida Senate honors Foundation co-founder John W. Walsh with resolution

Tuesday, May 23, 2017
Robert Sandhaus, MD, PhD, clinical director of the Alpha-1 Foundation and medical director of AlphaNet, read and presented a resolution by the Florida Senate that honored Foundation co-founder John W. Walsh last month at the 17th annual...

Alpha-1 Foundation lauds COPD National Action Plan

Monday, May 22, 2017
The Alpha–1 Foundation applauded today’s launch of the COPD National Action Plan, calling it “a strong tool to identify people affected by genetic COPD caused by Alpha–1, leading to proper diagnoses and treatment for their...

AlphaNet grants $225,000 for John W. Walsh Translational Research Award

Friday, May 12, 2017
AlphaNet, the not-for-profit health management organization for Alphas, announced at the 17th annual Celebration of Life that it would match the $225,000 gift to the John W. Walsh Translational Research Award that Mark Brantly, MD, and his wife,...

Alpha baby gets life-saving liver transplant from godmother

Thursday, May 11, 2017
An Alpha baby who desperately needed a liver transplant found the perfect match when his godmother came through with the lifesaving gift. Finn O'Sullivan Eight-month-old Finn O’Sullivan has both Alpha-1 and biliary atresia, a rare...

Tenth annual George Washington Bridge Walk will honor Foundation co-founder John W. Walsh

Wednesday, May 10, 2017
Jeffrey Jewell will walk across the George Washington Bridge this weekend to raise awareness of Alpha-1, and to honor his sister Judy. Judy Jewell is held by her mother, Helen, left, as a nurse attends to her care. “She passed...

Celebration of Life to recognize AlphaNet’s $50 million in contributions and honor Foundation co-founder John W. Walsh

Friday, April 28, 2017
The 17th annual Celebration of Life, the signature fundraising event for the Alpha-1 Foundation, will take place this Sunday, April 30 and Monday, May 1 at the Indian Creek Country Club on Miami Beach, FL. This year’s event will recognize...

Alpha softball pitcher back on the mound after liver transplant

Thursday, April 27, 2017
For most 16-year-olds, a liver transplant would be enough to keep them out of the game for a while. This was not the case for Lake Michigan College’s Madi Whitlow. Madi Whitlow The now-18-year-old Red Hawks pitcher and River Valley...

AlphaNet Coordinator Celeste Morris passes away

Monday, April 24, 2017
AlphaNet Coordinator Celeste Morris of Chicago passed away on April 22. She was 63. Morris told her story about having two separate lung transplants in the Spring 2011 edition of Alpha-1-To-One magazine. Here is that story: Celeste Morris is an...

Alpha-1 genetic counselor writes blog about home DNA testing

Friday, April 21, 2017
Kimberly Brown, a genetic counselor for the Alpha-1 Foundation, wrote a blog about home genetic testing, with tips for people who have direct to consumer testing for Alpha-1. Kimberly Brown Earlier this month, the U.S. Food and Drug...

Foundation co-founder John W. Walsh honored with research conference scholarship

Friday, April 21, 2017
The University of Vermont has created a travel scholarship, funded by the Alpha-1 Foundation, that honors the legacy of Foundation co-founder John W. Walsh. John W. Walsh The scholarship will help a young researcher to attend the Vermont...

Mom’s death from Alpha-1 inspires daughter to pursue career as a respiratory therapist

Monday, April 10, 2017
Lauren Hughes had just graduated from high school when her mother was diagnosed with Alpha-1. Lauren Hughes, right, and her mother, Teneen Hughes She became her mother’s caregiver at age 18; cooking, cleaning, running errands, getting...

Alpha-1 kids inspire two April fundraisers

Saturday, April 8, 2017
Children who have been diagnosed with Alpha-1 are the driving force behind two fundraisers that are taking place this month. Grace and Lucas Johnson Richard and Sarah Johnson made a commitment to raising awareness of Alpha-1 in 2008,...

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