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Virtual Walk 2019: 30 days of awareness

Virtual Walk 2019: 30 days of awareness
Thursday, December 12, 2019
November has been a busy month for Alphas around the United States raising awareness about Alpha-1 Antitrypsin Deficiency (Alpha-1). For 30 days, in 34 states, friends and family supported one strong mission to find a cure. The community set up 72 teams to total 970 walkers who walked, ran, or found their unique way to raise awareness and over $86,000 community dollars. November has been...
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Alpha-1 Awareness Month 2019: Week 4 & Thanksgiving weekend

Thursday, December 5, 2019
November has been a busy month for Alphas around the United States raising awareness about Alpha-1 Antitrypsin Deficiency (Alpha-1). For 30 days, in 34 states, friends and family supported one strong mission to find a cure. The community set up 72...
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Alpha-1 Awareness Month 2019: Going strong after week 3

Friday, November 22, 2019
The temperature is getting lower around the country but it is not stopping the momentum of Alpha-1 Awareness Month. Week three joined Alphas, family, and friends for yet another incredibly successful campaign. It is so fun to see each team put...
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Knowing is not enough: Act on your family health history

Friday, November 22, 2019
The Centers for Disease Control and Prevention (CDC) published an article about the importance of knowing your family health history and what you can do to prevent certain diseases. Alpha-1 Antitrypsin Deficiency (Alpha-1) is a genetic...
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Workshop summary: "COPD National Action Plan: Tracking Our Progress"

Thursday, November 21, 2019
The COPD National Action Plan is a comprehensive roadmap designed to change the very trajectory of a disease that not only can make it difficult for a person to breathe, but also to perform the most basic tasks of daily life: chronic obstructive...
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Vertex, CRISPR’s gene-editing treatment for blood disorders shows promise in early data

Wednesday, November 20, 2019
CRISPR Therapeutics and Vertex Pharmaceuticals unveiled early data from the first company-backed study to test a CRISPR-based medicine in humans. The data, from two patients with severe blood disorders, are "promising” for what could be...
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Bill Clark to receive the John W. Walsh Dedication to Excellence Award

Tuesday, November 19, 2019
Nov. 19, 2019 – This evening at the COPD Foundation’s 15th Anniversary Fundraising Gala, Bill Clark, an Alpha who is the COPD Foundation’s Senior Director of Patient Engagement, will receive the John W. Walsh Dedication of...
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Alpha-1 Awareness Month 2019: Week 2

Friday, November 15, 2019
It is November 15th and the second week of Alpha-1 Awareness Month has been a huge a success. We are halfway through the month and the momentum is going strong with walks continuing to take place all over the country. More proclamations have...
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Open Enrollment: A video series by NHC

Friday, November 15, 2019
The National Health Council (NHC) created a short video series to help users navigate the health insurance marketplace for Open Enrollment, which runs from Friday, November 1st through Sunday, December 15th, this year. Open Enrollment...
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State and city proclamations raise Alpha-1 awareness during Alpha-1 Awareness Month

Monday, November 11, 2019
November has been marked as Alpha-1 Awareness Month to increase knowledge and spread awareness about Alpha-1 Antitrypsin Deficiency (Alpha-1) with several activities across the United States. You can read the official press release here. Many...
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Powerful video raises awareness of COPD and the need for research funding

Monday, November 11, 2019
November is National Alpha-1 Awareness Month and is also National Chronic Obstructive Pulmonary Disease (COPD) Awareness Month, and a powerful new video has been released that raises awareness of the critical need for significantly increased COPD...
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Alpha-1 Awareness Month 2019: Virtual Walks week 1 (recap)

Saturday, November 9, 2019
November represents Alpha-1 Awareness Month and the community has set the tone for the month in week one. Alphas, friends, and family joined together on November 2nd around the country in their purple shirts to spread awareness and raise funds for...
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Grifols introduces AlphaID™, a free cheek swab to screen for Alpha-1, the most common genetic form of COPD

Friday, November 8, 2019
BARCELONA, Spain, Nov. 7, 2019 -- Grifols, a leading global producer of plasma-derived medicines and a leader in the development of innovative diagnostic solutions, has now introduced AlphaID™, a new, simple cheek swab that can be used...
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