Assistance Organizations


If you are an Alpha-1 patient and your insurance company has denied your augmentation therapy prescription, or if your insurance company will no longer provide coverage for your augmentation therapy, please contact Cathey Horsak Hernderson, Director of Community Programs, at (877) 346-3212 or by email at

Individuals seeking assistance through this program should contact their local patient coordinator, patient advocate or support group leader for a referral or contact the Alpha-1 Foundation directly at (877) 228-7321, ext. 315.

Insurance Assistanceplus

Access and Reimbursement Web Portal

A central resource for information on access to care and reimbursement issues for Alphas who require assistance to ensure access to FDA-approved augmentation therapy products in the United States.

Patient Services Incorporated

Offers funding to Alphas and other groups to help cover insurance premium cost and co-pays for those on augmentation therapy. 1-800-366-7741.


A service provided by PSI that provides Social Security and disability representation to patients diagnosed with Alpha-1 and helps educate them on Social Security Disability, Supplemental Security Income, Medicare and Medicaid. Contact the PSI A.C.C.E.S.S.® staff at 1-800-366-7741.


CSL Behring created CareZ—a community of people and services focused on providing the support you need to help you cope with your condition and help you live your life to the fullest. At CareZ, you'll find information on financial support, including insurance assistance, cost-sharing programs, and the CSL Behring AssuranceSM program, emotional support, including Patient Support Specialists and Personal Mentors, physical fitness, including the My Steps for Healthy Living program and the causes, genetics, and treatment of Alpha-1. 1-866-936-2472.

Families USA

The Voice for Healthcare Consumers is a nonprofit, non-partisan organization dedicated to the achievement of high-quality, affordable health and long-term care for all Americans since 1982. Families USA has worked to promote high-quality, affordable health care for all Americans. Their program locator can assist in locating other types of consumer assistance.

Prescription Assistanceplus

Offers resources designed to teach about patient assistance programs and other programs designed to help those who can't afford their medicines.

RX List

The internet drug index.

RX Hope

Includes information and application forms for Patient Assistance Programs Toll free: 1-877-267-0517.

Partnership for Prescription Assistance

Helps qualifying patients without prescription drug coverage get the medicines they need through the program that is right for them. Toll free: 1-888-477-2669.

Patient Medication Assistance Inc

Assists individuals receive free medications through Patient Assistance programs. Toll free: 1-866-353-9377.

Prescription Care

Assistance to pay for brand-name FDA approved medications regardless of age or employment. Toll free: 1-866-299-0857

Free Medicine Program

Assists patients in obtaining prescription drugs and medications free of charge.

Advocacy Organizationsplus

HealthCare Volunteer

Provides a practical guide to Patient Assistance Programs.

Patient Advocate Foundation

Provides effective mediation and arbitration services to patients to remove obstacles to healthcare including medical debt crisis, insurance access issues and employment issues for patients with chronic, debilitating and life-threatening illnesses. This service pairs the patient with a case manager who will assist the patient with their needs. Toll free: 1-800-532-5274.

The Kaiser Family Foundation

Kaiser is a non-profit, private operating foundation focusing on the major health care issues facing the United States. Kaiser serves as a non-partisan source of facts, information, analysis and journalism for policymakers, the media, the health care community, and the public. Their product is information, always provided free of charge.

The National Health Council

The National Health Council (NHC) is the only organization of its kind that brings together all segments of the health community to provide a united voice for the more than 133 million people with chronic diseases and disabilities and their family caregivers. Their mission is to provide a united voice for people with chronic diseases and disabilities. (202) 785-3910.

Government Resourcesplus

A Guide to Disability Rights Laws

Americans with Disabilities Act Q & A

A federal government website managed by the U.S. Department of Health & Human Services with the initiative to educate Americans about the Affordable Care Act that was signed into law two years ago on March 23, 2010. The website has a tool to find individual state’s Consumer Assistance Programs, where they have been established and other help sources with health insurance problems.

Government resources for healthcare and prescription assistance.

Independent Living Assistanceplus

Center for Independent Living

Supports disabled people in their efforts toward independence. CIL encourages people with disabilities to make their own choices and works to open doors in the community to full participation and access for all.

Directory of Independent Living Centers

Its goal is to expand the body of knowledge in independent living and to improve utilization of results of research programs and demonstration projects.

End of Life Issuesplus

AARP's End of Life Guide

Get information on estate planning, powers of attorney, hospice and palliative care

End-of-Life Decision Making

This guide from the Family Caregiver Alliance has helpful content for caregivers and patients alike.

Other Assistanceplus

Your therapy provider or the manufacture most likely has a division or third party group that is designed to assist you with insurance issues and appeals.

Each state has a bureau that could be contacted for assistance. They would have names such as: Insurance Commission office; Department of Insurance; Health Insurance Division Consumer Service; Department of Insurance Consumer Services; Office of Insurance Regulation, etc.

Patient Assistance Programsplus

Patient Assistance Programs

There are many organizations that offer private and public patient assistance programs for individuals who are in need.