During the 4th International Alpha-1 Patient Congress in Barcelona, Spain in April 2013, Alpha-1 leadership from 20 countries came together to share their experiences. Discussions regarding needs, desires, successes and failures produced a united resolve to stay connected as a collaborative global patient community.
The Alpha-1 Foundation offered its leadership and resources to assist in building a communications platform for the global Alpha-1 community with the goal to connect Alpha-1 organizations and individuals to share ideas, strategies and tools on three main topics: awareness, detection, and access to care. The start-up program was originally referred to as the "Alpha-1 Global Initiative," but its name was permanently changed to "Alpha-1 Global" on 1 June, 2014.
Alpha-1 Global seeks to:
- Build cohesive communication between the various Alpha-1 associations and organizations.
- Supply up-to-date information about research and the latest Alpha-1 developments around the world.
- Provide access to valuable resources and educational materials in a variety of languages.
- Conduct educational Alpha-1 seminars online.
- Encourage you to actively participate in the online discussion platform, by contributing your knowledge, questions, experiences and ideas.
The Alpha-1 Global website, serves as a hub for global Alpha-1 communications and networking. The following information can be found: Alpha-1 Global publications, events, country specific resources and local contact information in native language, access to care listed by country, news, research information and much more. Additionally, the website has been made available in 5 languages: English, Spanish, French, German and Portuguese. Choose a preferred language by clicking on the "Select a Language" button located in the upper left hand corner of the home page.
6th Alpha-1 Global Patient Congress
The 6th Alpha-1 Global Patient Congress and the 3rd International Research Conference on Alpha-1 Antitrypsin took place from April 5-8, 2017, in Lisbon, Portugal. Both events brought together patients and scientists from around the world to discuss the latest developments in Alpha-1 Antitrypsin Deficiency (Alpha-1) research, clinical care and patient advocacy. For more event information please visit us here.