2017 Webinars

October 10th - Medicare Open Enrollment for 2018plus

 Click here to watch the webinar.

 Click here to download a PDF of the powerpoint.

 Speaker: Barbara Tucciarone, Operations Specialist, National Organization for Rare Disorders (NORD)

It is that time of year again to review your Medicare plans and make sure they meet your needs. This year the Medicare Open Enrollment Period is from October 15th through to December 7th, so you don’t have very much time to waste. You should take time and review your “Evidence of Coverage” (EOC) and “Annual Notice of Change” (ANOC) to see if any changes have been made to your coverage. Some key areas to review are cost, coverage, and what providers and pharmacies will be included in their networks the following year. If you have more questions or would like to learn more about your options and compare plans, feel free to call 1-800-MEDICARE or visit

October 17th - Marketplace Open Enrollment for 2018plus

 Click here to watch the webinar.

 Speaker: Kristin Shifflett, Program Manager, Patient Services, Inc. (PSI)




2018 Webinars

January 23rd - State of the Union Addressplus

 Click here to watch the webinar.

 Speaker: Henry R. Moehring, MBA, President & CEO, Alpha-1 Foundation




March 13th - Research Registry & Clinical Trials Updateplus

 Click here to watch the webinar.

 Speaker: Charlie Strange, MD, Professor of Pulmonary Medicine, Medical University of South Carolina (MUSC)



2019 Webinars

October 18th - Medicare Open Enrollment for 2019plus

Time: 4:00 PM ET (3 PM CT; 2 PM MT; 1 PM PT)

Speaker: Tim Boyd, MPH, Director of State Policy with National Organization for Rare Disorders (NORD)

How to Participate:

These presentations will be hosted as webinars with a powerpoint presentation. You can join both the audio portion and the web portion, or you can join just the audio portion.

Web: To join the web conference – CLICK HERE - and then follow these instructions:

  • On the right hand side of the screen you will see a box titled “Conference Entry”.
  • Type in your name and email address. 
  • Make sure “web/audio conference” is selected. 
  • Click the red “Join” button.

Audio: Five minutes before the start time, call 1-800-920-7487. When prompted, enter the participant code 9335 9985 #.

**Please call in and join the web portion at least 5 minutes before the start of the presentation.**

To see more information, visit