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Alpha-1-To-One Podcast

Alpha-1-To-One Podcast

The Alpha-1-To-One Audio Podcast shares captivating personal stories of Alphas, caregivers, healthcare providers, researchers and others who help make the Alpha-1 community great.

Each audio episode will include their story - how they became involved in the Alpha-1 community, and what motivates them to continue their work.

 

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Ep. 4 - Alpha-1 Research - the making of a lifelong mission - Irina Petrache, MD

 

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Featured interview

Alpha-1 researcher and clinician Irina Petrache, MD of National Jewish Health in Denver, CO, talks with Alpha-1 Foundation Editorial Manager Alejandro Hernandez Padilla about the people and things that motivate her and those in her lab to keep pressing towards a cure and better treatments for people affected by Alpha-1.

This episode's co-host

This episode is co-hosted by Martin Zamora, MD, scientific advisor for the Alpha-1 Foundation Board of Directors. Dr. Zamora is Professor of Medicine, Division of Pulmonary Sciences and Critical Care Medicine, at the University of Colorado at Denver School of Medicine, Aurora, Colorado. He was also the Medical Director of Lung Transplantation at the University of Colorado at Denver Health Sciences Center. He received his medical degree from the University of Colorado School of Medicine, and did his internship and residency in Internal Medicine and Pulmonary and Critical Care Fellowship at the University of Colorado Health Sciences Center, Denver. Dr. Zamora has been a member of the American Society of Transplantation Thoracic Committee, a member of the United Network for Organ Sharing Board of Directors, the UNOS Thoracic Committee and Chaired the Lung Allocation Subcommittee and was involved in the development and implementation of the Lung Allocation System. He also served as the Chair of the Foundation’s Transplant Issues Working Group and has been involved for many years with the Foundation’s Education Days, both locally and nationally. He has been an NIH funded researcher, has been the principal investigator of multiple industry sponsored studies, and has been awarded many honors, including most recently the America’s Top Doctors Award in 2017 and the Best Doctors in America Award for 2017.

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Ep. 3 - How not to get diagnosed with Alpha-1 - Karen Ericksonplus

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Featured interview

In this episode of the Alpha-1-To-One Podcast, Karen Erickson, associate executive director of community engagement at the Alpha-1 Foundation, shares the unlikely, but all too common story of how she was finally diagnosed with Alpha-1 Antitrypsin Deficiency. She also shares how connecting with people in the community and getting involved in fundraising were gamechangers throughout her journey to transplant and beyond.

You can connect with Karen Erickson at kerickson@alpha1.org.

Robert Sandhaus, MD, PhD returns to our Ask the Alpha Doc segment to answer a question about augmentation therapy. Submit your question to podcast@alpha1.org.

This episode's hosts

Our co-host is Alexis Artiles, director of marketing and events at the A1F. She can be reached at 877-228-7321, ext. 331 or aartiles@alpha1.org.

Learn more about the 27th Annual National Conference.

Maria Virginia Deliz is the A1F's digital media manager. You can reach her at mdeliz@alpha1.org.

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Ep. 2 - Hiking for a Cure - Jonathan Maidmentplus

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Featured interview

We sat down with Jonathan Maidment, a 23-year old Alpha, who raised more than $56,000 for the Alpha-1 Foundation’s research programs hiking the Appalachian Trail in 2014.

Now for 2018 the challenge has become bigger, as he is getting ready to hike the entire Pacific Crest Trail (PCT), also as a fundraiser for the A1F. The PCT is a long-distance hiking trail aligned with the highest portion of the Sierra Nevada and Cascade mountain ranges.

To follow and share Jonathan’s hike along the PCT, please visit facebook.com/hiking4acure

Proceeds from the fundraising activities relating to Jonathan will be dedicated to research and programs of the Alpha–1 Foundation to find a cure for the rare genetic condition Alpha-1 Antitrypsin Deficiency.

To contribute, visit alpha1.org/maidment

New Segment: Ask the Alpha Doc

This episode, we're also introducing a new segment - Ask the Alpha Doc, where various Alpha-1 specialists will answer your questions about Alpha-1 lung and liver disease. This episode, our guest doctor is Robert A. Sandhaus, MD, PhD, FCCP, from National Jewish Health in Denver, CO.

Submit your question to podcast@alpha1.org.

This episode's hosts

Our co-host is Angela McBride, director of corporate relations and community engagement at the A1F. She can be reached at 877-228-7321, ext. 233 or amcbride@alpha1.org.

Learn more about the Building Friends for a Cure program.

Maria Virginia Deliz is the A1F's digital media manager. You can reach her at mdeliz@alpha1.org.

Ep. 1 - A Caregiver's Storyplus

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On the inaugural episode of the Alpha-1-To-One Podcast, host, Maria Virginia Deliz, sits down with caregiver and Alpha-1 Foundation Director of Community Programs, Cathey Horsak.

Horsak shares the story of how she became involved with the Alpha-1 community after her husband's death due to liver disease caused by Alpha-1 Antitrypsin Deficiency. She also shares why caregivers to play a major role in helping Alphas.

Cathey Horsak: 800-245-6809 or chorsak@alpha1.org.

Sponsors

Thank you to our generous program sponsors.

Alphanet
 
CSL Behring
 
Dohmen Life Science Services
 
Grifols