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Annual National Education Conference

The 28th Annual Alpha-1 National Education Conference will be held June 21 – 23, 2019 in Orlando, FL.

The National Conference is the largest annual gathering of Alphas, their families, leading healthcare professionals and industry in the world. It is a three day event with educational programs given by national experts and leaders in the Alpha-1 field. The conference provides attendees and exhibitors the opportunity to network and increase their understanding of Alpha-1 and COPD.

The National Conference provides a unique opportunity to meet patients diagnosed with Alpha-1, their families, industry, and healthcare professionals such as respiratory therapists, nurse practitioners, physicians and nurses.

Stay tuned as more information becomes available about the 28th Annual Alpha-1 National Education Conference.

Registration will open in February 2019.

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Information

Conference Venueplus

Coming soon.

Online Viewing and Participationplus

 

Coming soon.

Please note: continuous internet access is required to watch the conference online.

Program

Pre-Conference Eventsplus

Coming soon.

Conference Agendaplus

Coming soon.


 

Speakersplus

Coming soon.  

Session Descriptionsplus

Coming soon.

 

Accommodations and Travel

Hotel Reservationsplus

Coming soon.

 

Airportplus

Preferred Airport

Coming soon.

Shuttleplus

Coming soon.

Parkingplus

Coming soon.

 

Explore - Orlandoplus

Coming soon.

Sponsorship and Exhibits

Sponsorsplus

Coming soon.

Exhibit Hallplus

Coming soon.

Exhibit Hall Hours

Coming soon.

Things to Know and FAQs

Generalplus

Coming soon.

Dress Code
Dress is casual for the meetings, sessions and dinners. You may want to bring a sweater or light jacket, as the meeting rooms in the hotel may be cool.

Name Tags
Conference name tags must be worn at all times in order to enter the exhibit hall and attend sessions and meals. Anyone not wearing an official conference name tag may be asked to leave the conference area.

Cell Phones and Electronic Devices
We ask that you please silence your cell phones and other electronic communication devices during the general and breakout sessions.

Participate in Research
Representatives of Alpha-1 research studies will be attending the conference and exhibiting to enroll those individuals interested in participating in Alpha-1 research.

Cancellation Policy
All cancellation requests must be submitted via email or fax to kcaraballo@alpha1.org by June 22, 2018 to receive a full refund.

Registration or Cancellation Questions?
Kim Caraballo, Community Outreach Coordinator
(877) 228-7321, Ext. 323
Fax: (305) 503-4629
kcaraballo@alpha1.org

Kids and Teensplus

Kids’ Room
Coming soon.

Teen Room
Coming soon.

Nursesplus

 
Coming soon.

Oxygenplus

Emergency Oxygen

Coming soon.

Oxygen Travel Fund 
The Oxygen Travel Fund provides oxygen and equipment for Alphas in financial need to travel to Alpha-1 educational events. To apply, please call (877) 228-7321 ext 251 with at least 30 days notice.

FAQs - Frequently Asked Questionsplus

I requested a vegan or gluten free meal. How do I let the hotel know?

Coming soon.

Have a question not answered above? Contact us.

General Questions:
Maddie Requejado, Marketing & Events Coordinator
(877) 228-7321, Ext. 327
mrequejado@alpha1.org

Registration:
Kim Caraballo, Community Outreach Coordinator
(877) 228-7321, Ext. 323
Fax: (305) 503-4629
kcaraballo@alpha1.org

Sponsorship and Exhibit Opportunities:
Alexis E Artiles, Director of Marketing and Events
(877) 228-7321 ext. 331
aartiles@alpha1.org

Registration

Patients, Family Members and Caregiversplus

Coming soon.

Exhibitors and Industryplus

Coming soon.

To learn about exhibit opportunities at the National Conference, please contact Alexis Artiles, Director of Marketing and Events, at aartiles@alpha1.org.

Please note: All persons who are employed by an industry company must register to attend as an exhibitor even if they will not be participating in the exhibit booth, including MSLs and healthcare providers.

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Past National Conference Highlights

2018 National Education Conference Highlightsplus

The 27th National Education Conference opens with a panel on the latest Alpha-1 findings

The 27th Annual National Education Conference will be streaming online

Margaret Anderson will deliver keynote speech at the Alpha-1 Annual National Education Conference in San Francisco

View the 2018 conference agenda as a pdf.

All of the 2018 conference presentations will be available to view online at your convenience by August 24th.

The Alpha-1 Foundation would like to thank all of the sponsors for participating in this year's conference.

Thank you to our 2018 Platinum Sponsors:

  • AlphaNet
  • CSL Behring
  • Grifols
  • Shire

Thank you to our 2018 Gold Sponsor:

  • Dohmen Life Science Services

Thank you to our 2018 Silver Sponsors:

  • Accredo Health Group, Inc.
  • Coram
  • Diplomat Specialty Infusion Group

Thank you to our 2018 Bronze Sponsors:

  • Advanced Aeromedical
  • Arrowhead Pharmaceuticals
  • Adverum Biotechnologies
  • Insmed
  • Philips RespirTech

Thank you to our 2018 Non-profit Sponsors:

  • COPD Foundation
  • National Organization for Rare Disorders (NORD)
  • Patient Services, Inc (PSI)
  • Plasma Protein Therapeutics Association (PPTA)
  • University of Florida Alpha-1 Antitrypsin Research Program

2017 National Education Conference Highlightsplus

The Alpha-1 Foundation’s Annual National Education Conference is a unique opportunity for many newly diagnosed Alphas and their families to receive answers to their questions and meet others like them. The 26th annual conference in Chicago, IL was no exception. After final review, 652 attendees from 45 states and 5 countries gathered on June 24 – 26 to speak to leading experts on Alpha-1, network with peers, and get involved in the Alpha-1 community through local support groups, research, awareness activities and fundraising.

View the 2017 Conference Agenda as a PDF here.

All of the 2017 conference presentations are available to view online at your convenience.

Thank you to our 2017 Platinum Sponsors:
AlphaNet
CSL Behring
Grifols
Shire

Thank you to our 2017 Gold Sponsor:
Dohmen Life Science Services

Thank you to our 2017 Silver Sponsors:
Accredo
Coram
Diplomat

Thank you to our 2017 Bronze Sponsors:
Advanced Aeromedical
Arrowhead Pharmaceuticals

Thank you to our 2017 Non-profit Sponsors:
COPD Foundation
National Organization for Rare Disorders (NORD)
Patient Services, Inc
Plasma Protein Therapeutics Association (PPTA)

2016 National Education Conference Highlightsplus

The Alpha-1 Foundation’s Annual National Education Conference is a unique opportunity for many newly diagnosed Alphas and their families to receive answers to their questions and meet others like them. The 25th annual conference in Miami, FL was no exception. After final review, 610 attendees from 45 states and 5 countries gathered on June 24 – 26 to speak to leading experts on Alpha-1, network with peers, and get involved in the Alpha-1 community through local support groups, research, awareness activities and fundraising.

View the 2016 Conference Agenda as a PDF here.

All of the 2016 conference presentations are available to view online at your convenience.

One of the highlights Friday afternoon was the Community Forum, which offered attendees an opportunity to meet with community leaders and discuss ways they can participate in shaping the future of Alpha-1. This was especially fitting with this year’s theme “Without YOU There Is No Solution.” Further weaving the theme throughout the weekend was the Foundation’s exhibit booth, which featured a quiz entitled “What is Your Alpha-1 Personality?” Over 40 percent of attendees took the quiz and were given one of four results: advocacy, fundraising, research or support. Take the Alpha-1 quiz and share your results with the Foundation on social media!

Read more about “helping ordinary people do extraordinary things” and the rest of Friday’s conference program.

For the second year, the conference offered Meet the Experts, an opportunity for Alphas, their caregivers and families to have “15-minute conversations” with Alpha-1 Clinical Resource Center physicians and ask their questions face-to-face. Over 45 Alphas and their guests took advantage of this opportunity and met with six doctors and the Alpha-1 Genetic Counselor.

The Foundation took time over the weekend to honor the many contributions and achievements that members of the Alpha-1 community have made. Friday evening at the Building Friends for a Cure (BFC) awards, attendees heard the Starfish Story about helping to save one beach-stranded starfish at a time, to make the point that "regardless of how insignificant it may seem to the eyes of others, we can all make a difference.” Read about this year’s many creative and inspired fundraisers.

Presented jointly by the Foundation and AlphaNet, the Advancement of Research Award was given to Mark Brantly, MD on Saturday evening for his dedication and determination to finding a cure for Alpha-1. The Foundation presented six more honorees with awards including the Dennis Pollock Spirit of Advocacy Award and the Inspirational Award. Read more.

THANK YOU to our 2016 Presenting Sponsors:

  • AlphaNet
  • Baxalta
  • CSL Behring
  • Grifols

Thank you to our 2016 Lead Sponsor:

Dohmen Life Science Services

Thank you to our 2016 Exhibitors:

  • Accredo
  • BioRx
  • Coram

Thank you to our 2016 Partners, Exhibitors, Non-profit Partners, and Research Studies:

Adult Liver Study
Advanced Aeromedical
Arrowhead Pharmaceuticals, Inc.
COPD Foundation
Heritage Biologics
National Organization for Rare Disorders (NORD)
Patient Services, Inc.
Plasma Protein Therapeutics Association (PPTA)
REACH
State of Florida Detection Program
University of Florida

2015 National Education Conference Highlightsplus

View the full 2015 Conference Agenda here.

2015 Alpha-1 National Conference opens with inspirational Appalachian Trail story, meetings with experts and session on community engagement.

Building Friends for a Cure honors community fundraisers; BFC program has raised more than $5 million over 10 years.

Thank you to our 2015 Presenting Sponsors:

  • AlphaNet
  • Baxalta
  • CSL Behring
  • Grifols

Thank you to our 2015 Lead Sponsor:

Dohmen Life Science Services

Thank you to our 2015 Exhibitors:

  • Accredo
  • BioRx
  • Coram

Thank you to our 2015 Partners, Exhibitors, Non-profit Partners, and Research Studies:

Advanced Aeromedical
COPD Foundation
National Organization for Rare Disorders (NORD)
Patient Services, Inc.
Plasma Protein Therapeutics Association (PPTA)
REACH
University of Florida Clinical Trials
Alpha-1 Antitrypsin Deficiency Adult Clinical and Genetic Linkage Study
Arrowhead Research Corporation

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Platinum Sponsors

 
 
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Gold Sponsor

 
 
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Silver Sponsors