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Annual National Education Conference

Alpha-1 Conference

The 26th Annual Alpha-1 National Education Conference will be held June 23 – 25, 2017 in Chicago, IL.

Join us for the largest gathering of Alphas and families in the world! Don't miss the chance to meet other Alphas and speak to the leading experts on Alpha-1. The conference encourages you to network, take charge of your health and get involved in the Alpha-1 Community through local support groups, research, awareness activities and advocacy. You also get to meet our exhibitors and learn about products and services that can improve your quality of life.

The conference provides two full days of educational sessions, networking opportunities, and fun activities. All registrations include meals from Thursday and Friday pre-conference events to Sunday breakfast, all educational sessions and access to the exhibit hall.

This page is currently under construction. As more information about the 2017 conference becomes available, it will be updated here. Stay tuned!

Conference Location and Hotel Reservationsplus

Info coming soon! Stay tuned.

Airport and Shuttle Informationplus

Airport Information

Info coming soon! Stay tuned.

Shuttle Information

Info coming soon! Stay tuned.

Patient, Family and Caregiver Registrationplus

Info coming soon! Stay tuned.

Exhibitor and Industry Registrationplus

This conference is the world’s largest gathering of Alphas and is a great opportunity to market your products and services. Attendees are looking for information and services on a wide range of topics from medical updates and current research to support issues as well as information and products to improve health and enhance their lives living with Alpha-1. The Foundation has built time in the agenda to ensure that all attendees can interact with all the exhibitors.

All representatives of Alpha-1 industry partners and companies, including Medical Science Liaisons, must register as Exhibitors for the conference whether they will be participating in the company exhibit booth or not.

To register as an exhibitor or if you are an Alpha-1 industry representative, please contact Alexis Artiles, Marketing and Events Manager, at aartiles@alpha1.org or 877-228-7321 ext 331. 

Pre-Conference Eventsplus

Pre-Conference activities are free to conference attendees. Please be sure to mark the boxes for the pre-conference activities you will be attending on your registration form.

Info coming soon! Stay tuned.

Conference Agenda and Programplus

The Conference officially starts Friday, June 23rd.

The conference program and agenda is currently being developed. Look out for updates beginning in January 2017!

Don't miss the exciting general sessions and afternoon breakout sessions (also called "tracks")! All speakers have the ability to motivate, teach and inspire you to lead a healthy life. The sessions offer a large range of topics including Alpha-1 lung and liver, a research update, pulmonary rehab, advocacy and many more.

 

Sponsors and Exhibitorsplus

The 2017 Exhibitor List is currently being developed. Please check back for updates.

Thank you to our 2017 Platinum Sponsors:

Thank you to our 2017 Gold Sponsor:

Thank you to our 2017 Silver Sponsors:

Thank you to our 2017 Bronze Sponsors:

Thank you to our 2017 Non-profit Sponsors:

Things You Need to Know and FAQsplus

Free Educational Program for Nurses - Nursing CEUs 
AlphaNet is pleased to offer a free educational program for nurses. Three (3) CEU credits will be offered for nurses participating in this program. 

Kids & Teenagers 
The Alpha-1 Kids program will sponsor activities for children and teens on Saturday, June 24th. More information to come!

Oxygen Travel Fund 
The Oxygen Travel Fund provides oxygen and equipment for Alphas in financial need to travel to Alpha-1 educational events. To apply, please call (877) 228-7321 ext 251 with at least 30 days notice.

Participate in Research
Representatives of Alpha-1 research studies will be attending the conference and exhibiting to enroll those individuals interested in participating in Alpha-1 research.

Dress Code
Dress is casual for the meetings, sessions, and dinners. You may want to bring a sweater or light jacket, as the meeting rooms in the hotel can be cool.

Cell Phones and Electronic Devices
We ask that you please mute or turn off cell phones and other electronic communication devices during the general and breakout sessions.

FAQs - Frequently Asked Questions 

2016 National Education Conference Highlightsplus

The Alpha-1 Foundation’s Annual National Education Conference is a unique opportunity for many newly diagnosed Alphas and their families to receive answers to their questions and meet others like them. The 25th annual conference in Miami, FL was no exception. After final review, 610 attendees from 45 states and 5 countries gathered on June 24 – 26 to speak to leading experts on Alpha-1, network with peers, and get involved in the Alpha-1 community through local support groups, research, awareness activities and fundraising.

View the 2016 Conference Agenda as a PDF here.

All of the 2016 conference presentations are available to view online at your convenience.

One of the highlights Friday afternoon was the Community Forum, which offered attendees an opportunity to meet with community leaders and discuss ways they can participate in shaping the future of Alpha-1. This was especially fitting with this year’s theme “Without YOU There Is No Solution.” Further weaving the theme throughout the weekend was the Foundation’s exhibit booth, which featured a quiz entitled “What is Your Alpha-1 Personality?” Over 40 percent of attendees took the quiz and were given one of four results: advocacy, fundraising, research or support. Take the Alpha-1 quiz and share your results with the Foundation on social media!

Read more about “helping ordinary people do extraordinary things” and the rest of Friday’s conference program.

For the second year, the conference offered Meet the Experts, an opportunity for Alphas, their caregivers and families to have “15-minute conversations” with Alpha-1 Clinical Resource Center physicians and ask their questions face-to-face. Over 45 Alphas and their guests took advantage of this opportunity and met with six doctors and the Alpha-1 Genetic Counselor.

The Foundation took time over the weekend to honor the many contributions and achievements that members of the Alpha-1 community have made. Friday evening at the Building Friends for a Cure (BFC) awards, attendees heard the Starfish Story about helping to save one beach-stranded starfish at a time, to make the point that "regardless of how insignificant it may seem to the eyes of others, we can all make a difference.” Read about this year’s many creative and inspired fundraisers.

Presented jointly by the Foundation and AlphaNet, the Advancement of Research Award was given to Mark Brantly, MD on Saturday evening for his dedication and determination to finding a cure for Alpha-1. The Foundation presented six more honorees with awards including the Dennis Pollock Spirit of Advocacy Award and the Inspirational Award. Read more.

THANK YOU to our 2016 Presenting Sponsors:

  • AlphaNet
  • Baxalta
  • CSL Behring
  • Grifols

Thank you to our 2016 Lead Sponsor:

Dohmen Life Science Services

Thank you to our 2016 Exhibitors:

  • Accredo
  • BioRx
  • Coram

Thank you to our 2016 Partners, Exhibitors, Non-profit Partners, and Research Studies:

Adult Liver Study
Advanced Aeromedical
Arrowhead Pharmaceuticals, Inc.
COPD Foundation
Heritage Biologics
National Organization for Rare Disorders (NORD)
Patient Services, Inc.
Plasma Protein Therapeutics Association (PPTA)
REACH
State of Florida Detection Program
University of Florida

2015 National Education Conference Highlightsplus

View the full 2015 Conference Agenda here.

2015 Alpha-1 National Conference opens with inspirational Appalachian Trail story, meetings with experts and session on community engagement.

Building Friends for a Cure honors community fundraisers; BFC program has raised more than $5 million over 10 years.

Thank you to our 2015 Presenting Sponsors:

  • AlphaNet
  • Baxalta
  • CSL Behring
  • Grifols

Thank you to our 2015 Lead Sponsor:

Dohmen Life Science Services

Thank you to our 2015 Exhibitors:

  • Accredo
  • BioRx
  • Coram

Thank you to our 2015 Partners, Exhibitors, Non-profit Partners, and Research Studies:

Advanced Aeromedical
COPD Foundation
National Organization for Rare Disorders (NORD)
Patient Services, Inc.
Plasma Protein Therapeutics Association (PPTA)
REACH
University of Florida Clinical Trials
Alpha-1 Antitrypsin Deficiency Adult Clinical and Genetic Linkage Study
Arrowhead Research Corporation

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Presenting Sponsors

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Lead Sponsors

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Exhibitors