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Annual National Education Conference

The 28th Annual Alpha-1 National Education Conference will be held June 21 – 23, 2019 in Orlando, FL.

The National Conference is the largest annual gathering of Alphas, their families, leading healthcare professionals and industry in the world. It is a three day event with educational programs given by national experts and leaders in the Alpha-1 field. The conference provides attendees and exhibitors the opportunity to network and increase their understanding of Alpha-1 and COPD.

The National Conference provides a unique opportunity to meet patients diagnosed with Alpha-1, their families, industry, and healthcare professionals such as respiratory therapists, nurse practitioners, physicians and nurses.

Stay tuned as more information becomes available about the 28th Annual Alpha-1 National Education Conference.

Registration will open in January 2019.

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Information

Conference Venueplus

Coming soon.

Online Viewing and Participationplus

All the conference sessions on Saturday will be available to view from any location on a laptop, cell phone, tablet or television as long as you have an internet connection. Links to these live videos will be distributed by email and Facebook when the conference begins.

Be sure to join our Facebook event to keep up-to-date on the latest!

Please note: continuous internet access is required to watch the conference online.

Program

Pre-Conference Eventsplus

Coming soon.

Conference Agendaplus

Don't miss the exciting general sessions and afternoon breakout sessions (also called "tracks")! All speakers have the ability to motivate, teach and inspire you to lead a healthy life. The sessions offer a large range of topics including Alpha-1 lung and liver, a research update, pulmonary rehab, advocacy and many more.


 

Speakersplus

Coming soon.  

Session Descriptionsplus

Coming soon.

 

Accomodations and Travel

Hotel Reservationsplus

Coming soon.

 

Airportplus

Preferred Airport

Coming soon.

Shuttleplus

 

Parkingplus

Coming soon

 

Explore - Orlandoplus

Coming soon.

Sponsorship and Exhibits

Sponsorsplus

The Alpha-1 Foundation would like to thank all of the sponsors for participating in this year's conference.

Thank you to our 2018 Platinum Sponsors:

  • AlphaNet
  • CSL Behring
  • Grifols
  • Shire

Thank you to our 2018 Gold Sponsor:

  • Dohmen Life Science Services

Thank you to our 2018 Silver Sponsors:

  • Accredo Health Group, Inc.
  • Coram
  • Diplomat Specialty Infusion Group

Thank you to our 2018 Bronze Sponsors:

  • Advanced Aeromedical
  • Arrowhead Pharmaceuticals
  • Adverum Biotechnologies
  • Insmed
  • Philips RespirTech

Thank you to our 2018 Non-profit Sponsors:

  • COPD Foundation
  • National Organization for Rare Disorders (NORD)
  • Patient Services, Inc (PSI)
  • Plasma Protein Therapeutics Association (PPTA)
  • University of Florida Alpha-1 Antitrypsin Research Program

Exhibit Hallplus

The Alpha-1 Foundation would like to thank all of the exhibitors for participating in this year's conference. Please take the time to visit them in the Exhibit Hall.

Exhibit Hall Hours

coming soon.

Things to Know and FAQs

Generalplus

Onsite Registration
The conference registration desk will be open the following hours for attendees, exhibitors and industry:

Thursday, June 28th
1:00 – 4:00 pm

Friday, June 29th
8:30 am to 5:00 pm

Saturday, June 30th
7:30 am to 2:00 pm

Dress Code
Dress is casual for the meetings, sessions and dinners. You may want to bring a sweater or light jacket, as the meeting rooms in the hotel may be cool.

Name Tags
Conference name tags must be worn at all times in order to enter the exhibit hall and attend sessions and meals. Anyone not wearing an official conference name tag may be asked to leave the conference area.

Cell Phones and Electronic Devices
We ask that you please silence your cell phones and other electronic communication devices during the general and breakout sessions.

Participate in Research
Representatives of Alpha-1 research studies will be attending the conference and exhibiting to enroll those individuals interested in participating in Alpha-1 research.

Cancellation Policy
All cancellation requests must be submitted via email or fax to kcaraballo@alpha1.org by June 22, 2018 to receive a full refund.

Registration or Cancellation Questions?
Kim Caraballo, Community Outreach Coordinator
(877) 228-7321, Ext. 323
Fax: (305) 503-4629
kcaraballo@alpha1.org

Kids and Teensplus

Kids’ Room
The Alpha-1 Kids program is sponsoring activities for children attending the conference on Saturday, June 30 in the kids’ room from 8:00 am to 5:00 pm.

Teen Room
The Foundation is providing a Teen Room on Saturday, June 30 from 8:00 am to 5:00 pm near the pool as a gathering place for teens attending the conference. No adult supervision will be provided.

Nursesplus

Free Educational Program for Nurses - Nursing CEUs 
AlphaNet is pleased to offer a free educational program for nurses. Three (3) CEU credits will be offered for nurses participating in this program. For more information about this program and to register, contact Teresa A. Kitchen, BSN, RN, Clinical Nurse Manager at (888) 553-0093.

Oxygenplus

Emergency Oxygen
The Alpha-1 Foundation will provide EMERGENCY ONLY oxygen supplies at the National Conference. If you require supplemental oxygen, you should work with your oxygen provider to have the necessary supplies sent to the hotel for your use. Please bring a current prescription for oxygen in the event you do require emergency use.

Unfortunately, the Alpha-1 Foundation will not be able to provide EMERGENCY SUPPLIES OF LIQUID OXYGEN this year. If you require liquid oxygen, you MUST bring adequate supplies.

Oxygen Travel Fund 
The Oxygen Travel Fund provides oxygen and equipment for Alphas in financial need to travel to Alpha-1 educational events. To apply, please call (877) 228-7321 ext 251 with at least 30 days notice.

FAQs - Frequently Asked Questionsplus

I requested a vegan or gluten free meal. How do I let the hotel know?

Attendees who have requested a vegan (V) or gluten free (G) meal will have a V or G on their nametag denoting their special meal request. Please make sure to let your server know that you need a special meal and show them your nametag.

I am industry and/or an exhibitor. Where do I pick up my registration materials?

Exhibitors and members of industry should pick up their registration materials at the conference registration desk labeled "Exhibitors & Industry" during normal onsite conference registration hours.

I’m planning to go on the CSL Walk. Where do I go?

The Walk for Breath is open to all patients and caregivers attending the conference. However, this year CSL Behring will have a cap on the number of attendees at the Walk. We encourage everyone to come to open registration early to secure their spot. You must register to attend the walk directly with CSL Behring on Thursday, June 28th. There is open registration onsite at the Hyatt Regency from 2:00 to 3:00pm on Thursday, June 28. Due to state and federal laws, we are unable to permit healthcare professionals to attend this event.

I am a first-time conference attendee. What should I attend?

Be sure to attend:

  • The Conference Orientation on Friday, June 29th at 1:30 PM PT where the speaker will give a detailed overview of the conference and agenda.
  • The sessions in Track 2 on Friday afternoon will provide introductory patient-oriented talks about Alpha-1 in the lungs and liver.

How do the afternoon breakout sessions work? Do I have to stay in the same track for the whole afternoon?

Take a look at the conference agenda and choose which presentations you would like to attend. You can mix and match which presentations in the afternoon breakout sessions you would like to attend. You do not need to stay in the same track for the whole afternoon. You can move from room to room when presentations end.

Have a question not answered above? Contact us.

General Questions:
Maddie Requejado, Marketing & Events Coordinator
(877) 228-7321, Ext. 327
mrequejado@alpha1.org

Registration:
Kim Caraballo, Community Outreach Coordinator
(877) 228-7321, Ext. 323
Fax: (305) 503-4629
kcaraballo@alpha1.org

Sponsorship and Exhibit Opportunities:
Alexis E Artiles, Director of Marketing and Events
(877) 228-7321 ext. 331
aartiles@alpha1.org

Registration

Patients, Family Members and Caregiversplus

Registration Deadline: May 15th

2018 Annual Alpha-1 National Educational Conference reaches capacity.

While we are excited to share that the 2018 Conference is now at full capacity, this means we are no longer able to accept registrations. We are once again going to share much of the programming as a web-cast so even though you may not be able to join us in California, you will be able to benefit from the educational sessions. We look forward to you joining us at the meeting or on Facebook Live.

Exhibitors and Industryplus

2018 Annual Alpha-1 National Educational Conference reaches capacity.

While we are excited to share that the 2018 Conference is now at full capacity, this means we are no longer able to accept registrations. We are once again going to share much of the programming as a web-cast so even though you may not be able to join us in California, you will be able to benefit from the educational sessions. We look forward to you joining us at the meeting or on Facebook Live.

To learn about exhibit opportunities at the National Conference, please contact Alexis Artiles, Director of Marketing and Events, at aartiles@alpha1.org.

Please note: All persons who are employed by an industry company must register to attend as an exhibitor even if they will not be participating in the exhibit booth, including MSLs and healthcare providers.

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Past National Conference Highlights

2018 National Education Conference Highlightsplus

The 27th National Education Conference opens with a panel on the latest Alpha-1 findings

The 27th Annual National Education Conference will be streaming online

Margaret Anderson will deliver keynote speech at the Alpha-1 Annual National Education Conference in San Francisco

View the 2018 conference agenda as a pdf.

All of the 2018 conference presentations will be available to view online at your convenience by August 24th.

The Alpha-1 Foundation would like to thank all of the sponsors for participating in this year's conference.

Thank you to our 2018 Platinum Sponsors:

  • AlphaNet
  • CSL Behring
  • Grifols
  • Shire

Thank you to our 2018 Gold Sponsor:

  • Dohmen Life Science Services

Thank you to our 2018 Silver Sponsors:

  • Accredo Health Group, Inc.
  • Coram
  • Diplomat Specialty Infusion Group

Thank you to our 2018 Bronze Sponsors:

  • Advanced Aeromedical
  • Arrowhead Pharmaceuticals
  • Adverum Biotechnologies
  • Insmed
  • Philips RespirTech

Thank you to our 2018 Non-profit Sponsors:

  • COPD Foundation
  • National Organization for Rare Disorders (NORD)
  • Patient Services, Inc (PSI)
  • Plasma Protein Therapeutics Association (PPTA)
  • University of Florida Alpha-1 Antitrypsin Research Program

2017 National Education Conference Highlightsplus

The Alpha-1 Foundation’s Annual National Education Conference is a unique opportunity for many newly diagnosed Alphas and their families to receive answers to their questions and meet others like them. The 26th annual conference in Chicago, IL was no exception. After final review, 652 attendees from 45 states and 5 countries gathered on June 24 – 26 to speak to leading experts on Alpha-1, network with peers, and get involved in the Alpha-1 community through local support groups, research, awareness activities and fundraising.

View the 2017 Conference Agenda as a PDF here.

All of the 2017 conference presentations are available to view online at your convenience.

Thank you to our 2017 Platinum Sponsors:
AlphaNet
CSL Behring
Grifols
Shire

Thank you to our 2017 Gold Sponsor:
Dohmen Life Science Services

Thank you to our 2017 Silver Sponsors:
Accredo
Coram
Diplomat

Thank you to our 2017 Bronze Sponsors:
Advanced Aeromedical
Arrowhead Pharmaceuticals

Thank you to our 2017 Non-profit Sponsors:
COPD Foundation
National Organization for Rare Disorders (NORD)
Patient Services, Inc
Plasma Protein Therapeutics Association (PPTA)

2016 National Education Conference Highlightsplus

The Alpha-1 Foundation’s Annual National Education Conference is a unique opportunity for many newly diagnosed Alphas and their families to receive answers to their questions and meet others like them. The 25th annual conference in Miami, FL was no exception. After final review, 610 attendees from 45 states and 5 countries gathered on June 24 – 26 to speak to leading experts on Alpha-1, network with peers, and get involved in the Alpha-1 community through local support groups, research, awareness activities and fundraising.

View the 2016 Conference Agenda as a PDF here.

All of the 2016 conference presentations are available to view online at your convenience.

One of the highlights Friday afternoon was the Community Forum, which offered attendees an opportunity to meet with community leaders and discuss ways they can participate in shaping the future of Alpha-1. This was especially fitting with this year’s theme “Without YOU There Is No Solution.” Further weaving the theme throughout the weekend was the Foundation’s exhibit booth, which featured a quiz entitled “What is Your Alpha-1 Personality?” Over 40 percent of attendees took the quiz and were given one of four results: advocacy, fundraising, research or support. Take the Alpha-1 quiz and share your results with the Foundation on social media!

Read more about “helping ordinary people do extraordinary things” and the rest of Friday’s conference program.

For the second year, the conference offered Meet the Experts, an opportunity for Alphas, their caregivers and families to have “15-minute conversations” with Alpha-1 Clinical Resource Center physicians and ask their questions face-to-face. Over 45 Alphas and their guests took advantage of this opportunity and met with six doctors and the Alpha-1 Genetic Counselor.

The Foundation took time over the weekend to honor the many contributions and achievements that members of the Alpha-1 community have made. Friday evening at the Building Friends for a Cure (BFC) awards, attendees heard the Starfish Story about helping to save one beach-stranded starfish at a time, to make the point that "regardless of how insignificant it may seem to the eyes of others, we can all make a difference.” Read about this year’s many creative and inspired fundraisers.

Presented jointly by the Foundation and AlphaNet, the Advancement of Research Award was given to Mark Brantly, MD on Saturday evening for his dedication and determination to finding a cure for Alpha-1. The Foundation presented six more honorees with awards including the Dennis Pollock Spirit of Advocacy Award and the Inspirational Award. Read more.

THANK YOU to our 2016 Presenting Sponsors:

  • AlphaNet
  • Baxalta
  • CSL Behring
  • Grifols

Thank you to our 2016 Lead Sponsor:

Dohmen Life Science Services

Thank you to our 2016 Exhibitors:

  • Accredo
  • BioRx
  • Coram

Thank you to our 2016 Partners, Exhibitors, Non-profit Partners, and Research Studies:

Adult Liver Study
Advanced Aeromedical
Arrowhead Pharmaceuticals, Inc.
COPD Foundation
Heritage Biologics
National Organization for Rare Disorders (NORD)
Patient Services, Inc.
Plasma Protein Therapeutics Association (PPTA)
REACH
State of Florida Detection Program
University of Florida

2015 National Education Conference Highlightsplus

View the full 2015 Conference Agenda here.

2015 Alpha-1 National Conference opens with inspirational Appalachian Trail story, meetings with experts and session on community engagement.

Building Friends for a Cure honors community fundraisers; BFC program has raised more than $5 million over 10 years.

Thank you to our 2015 Presenting Sponsors:

  • AlphaNet
  • Baxalta
  • CSL Behring
  • Grifols

Thank you to our 2015 Lead Sponsor:

Dohmen Life Science Services

Thank you to our 2015 Exhibitors:

  • Accredo
  • BioRx
  • Coram

Thank you to our 2015 Partners, Exhibitors, Non-profit Partners, and Research Studies:

Advanced Aeromedical
COPD Foundation
National Organization for Rare Disorders (NORD)
Patient Services, Inc.
Plasma Protein Therapeutics Association (PPTA)
REACH
University of Florida Clinical Trials
Alpha-1 Antitrypsin Deficiency Adult Clinical and Genetic Linkage Study
Arrowhead Research Corporation

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Platinum Sponsors

AlphaNet
CSL Behring
Grifols
Shire
 
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Gold Sponsor

 
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Silver Sponsors