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Annual National Education Conference

Alpha-1 Conference

The 26th Annual Alpha-1 National Education Conference will be held June 23 – 25, 2017 in Chicago, IL at the Loews Chicago O'Hare Hotel.

The Alpha-1 Foundation is delighted with the incredible response and overwhelming attendance for the 2017 National Conference!

We apologize for any inconvenience, but registration for the National Conference has closed. Due to the high registration for this event and hotel maximum capacities, we cannot accept anymore registrations. The National Conference will not be accepting walk-in registrations onsite.

For anyone not already registered, the conference sessions on Saturday will be available via Facebook Live. Please join our Facebook event to keep up to date on the latest!

See the Conference Flyer!

Conference Location and Hotel Reservationsplus

Conference Venue: Loews Chicago O'Hare Hotel

Hotel Address:
5300 North River Road
Rosemont, IL 60018
(847) 544-5300 or (877) 868-9134

Hotel Reservations

The Alpha-1 Foundation is delighted with the incredible response and overwhelming attendance for the 2017 National Conference! 

We apologize for the inconvenience, but the room block for the National Conference has closed. 

Airport, Shuttle and Parking Informationplus

Airport Information

O'Hare International Airport (ORD)

Shuttle Information

The Loews O'Hare Hotel offers complimentary shuttle service that includes drop off and pick-up services from and to the Loews O’Hare Hotel, CTA Rosemont Blue Line Station and O’Hare Airport. Click here to see the Shuttle Bus Service flyer from the hotel for more information.

Parking Information

Self parking at the hotel will be available for a discounted rate of $10 per day.

Patient, Family and Caregiver Registrationplus

The Alpha-1 Foundation is delighted with the incredible response and overwhelming attendance for the 2017 National Conference! 

We apologize for any inconvenience, but registration for the National Conference has closed. Due to the high registration for this event and hotel maximum capacities, we cannot accept anymore registrations.

The National Conference will not be accepting walk-in registrations onsite.

Exhibitor and Industry Registrationplus

The Alpha-1 Foundation is delighted with the incredible response and overwhelming attendance for the 2017 National Conference! 

We apologize for any inconvenience, but registration for the National Conference has closed. Due to the high registration for this event and hotel maximum capacities, we cannot accept anymore registrations.

The National Conference will not be accepting walk-in registrations onsite.

Pre-Conference Eventsplus

Pre-Conference activities are held on Thursday and Friday before the official start of the conference and are free to conference attendees. Please be sure to mark the boxes for the pre-conference activities you will be attending on your registration form.

Thursday, June 22

10th Annual CSL Behring Walk for Breath Celebration
Location: Venue One North Shore (15 minutes/20 miles from the Loews)
Timing: 3:00 pm - 8:00 pm, registration begins at 3:00pm in the Cassatt Ballroom
Details: The Walk for Breath Celebration will feature interactive activities and an educational dinner reception all at Venue One North Shore.

Friday, June 23

Breakfast Sponsored by Shire
8:00 am - 10:00 am

Luncheon Sponsored by Grifols
12:00 pm - 1:30 pm

Speaker: Richard Lovrich, Photographer, Writer and Advocate

Conference Agenda and Programplus

The Conference officially starts Friday, June 23rd at 1:30 pm.

View the 2017 Conference Agenda!

Don't miss the exciting general sessions and afternoon breakout sessions (also called "tracks")! All speakers have the ability to motivate, teach and inspire you to lead a healthy life. The sessions offer a large range of topics including Alpha-1 lung and liver, a research update, pulmonary rehab, advocacy and many more.

 

Sponsors and Exhibitorsplus

The 2017 Exhibitor List is currently being developed. Please check back for updates.

Thank you to our 2017 Platinum Sponsors:
AlphaNet
CSL Behring
Grifols
Shire

Thank you to our 2017 Gold Sponsor:
Dohmen Life Science Services

Thank you to our 2017 Silver Sponsors:
Accredo
Coram
Diplomat

Thank you to our 2017 Bronze Sponsors:
Advanced Aeromedical
Arrowhead Pharmaceuticals

Thank you to our 2017 Non-profit Sponsors:
COPD Foundation
National Organization for Rare Disorders (NORD)
Patient Services, Inc
Plasma Protein Therapeutics Association (PPTA)

Things You Need to Know and FAQsplus

Free Educational Program for Nurses - Nursing CEUs 
AlphaNet is pleased to offer a free educational program for nurses. Three (3) CEU credits will be offered for nurses participating in this program. For more information about this program and to register, contact Teresa A. Kitchen, BSN, RN, Clinical Nurse Manager at (888) 553-0093.

Kids & Teenagers 
The Alpha-1 Kids program will sponsor activities for children and teens on Saturday, June 24th. More information to come!

Oxygen Travel Fund 
The Oxygen Travel Fund provides oxygen and equipment for Alphas in financial need to travel to Alpha-1 educational events. To apply, please call (877) 228-7321 ext 251 with at least 30 days notice.

Participate in Research
Representatives of Alpha-1 research studies will be attending the conference and exhibiting to enroll those individuals interested in participating in Alpha-1 research.

Dress Code
Dress is casual for the meetings, sessions, and dinners. You may want to bring a sweater or light jacket, as the meeting rooms in the hotel can be cool.

Cell Phones and Electronic Devices
We ask that you please mute or turn off cell phones and other electronic communication devices during the general and breakout sessions.

Hotel Layout
If you'd like to familiarize yourself with the hotel and meeting space floorplan before the conference, click here.

Remote Viewing
The conference sessions on Saturday, June 24th will be available to view from any remote location on a laptop, cell phone, tablet or television as long as you have an internet connection. The general session and track 1 will be available via Facebook Live on the Alpha-1 Foundation Facebook page. Tracks 2, 3, and 4 will be available via a webcast. Links to these live videos will be distributed by email and facebook when the conference begins.

FAQs - Frequently Asked Questions 

Is there a hotel shuttle?
Yes, the Loews O'Hare Hotel offers complimentary shuttle service that includes drop off and pick-up services from and to the Loews O’Hare Hotel, CTA Rosemont Blue Line Station and O’Hare Airport. Click here to see the Shuttle Bus Service flyer from the hotel for more information.

2016 National Education Conference Highlightsplus

The Alpha-1 Foundation’s Annual National Education Conference is a unique opportunity for many newly diagnosed Alphas and their families to receive answers to their questions and meet others like them. The 25th annual conference in Miami, FL was no exception. After final review, 610 attendees from 45 states and 5 countries gathered on June 24 – 26 to speak to leading experts on Alpha-1, network with peers, and get involved in the Alpha-1 community through local support groups, research, awareness activities and fundraising.

View the 2016 Conference Agenda as a PDF here.

All of the 2016 conference presentations are available to view online at your convenience.

One of the highlights Friday afternoon was the Community Forum, which offered attendees an opportunity to meet with community leaders and discuss ways they can participate in shaping the future of Alpha-1. This was especially fitting with this year’s theme “Without YOU There Is No Solution.” Further weaving the theme throughout the weekend was the Foundation’s exhibit booth, which featured a quiz entitled “What is Your Alpha-1 Personality?” Over 40 percent of attendees took the quiz and were given one of four results: advocacy, fundraising, research or support. Take the Alpha-1 quiz and share your results with the Foundation on social media!

Read more about “helping ordinary people do extraordinary things” and the rest of Friday’s conference program.

For the second year, the conference offered Meet the Experts, an opportunity for Alphas, their caregivers and families to have “15-minute conversations” with Alpha-1 Clinical Resource Center physicians and ask their questions face-to-face. Over 45 Alphas and their guests took advantage of this opportunity and met with six doctors and the Alpha-1 Genetic Counselor.

The Foundation took time over the weekend to honor the many contributions and achievements that members of the Alpha-1 community have made. Friday evening at the Building Friends for a Cure (BFC) awards, attendees heard the Starfish Story about helping to save one beach-stranded starfish at a time, to make the point that "regardless of how insignificant it may seem to the eyes of others, we can all make a difference.” Read about this year’s many creative and inspired fundraisers.

Presented jointly by the Foundation and AlphaNet, the Advancement of Research Award was given to Mark Brantly, MD on Saturday evening for his dedication and determination to finding a cure for Alpha-1. The Foundation presented six more honorees with awards including the Dennis Pollock Spirit of Advocacy Award and the Inspirational Award. Read more.

THANK YOU to our 2016 Presenting Sponsors:

  • AlphaNet
  • Baxalta
  • CSL Behring
  • Grifols

Thank you to our 2016 Lead Sponsor:

Dohmen Life Science Services

Thank you to our 2016 Exhibitors:

  • Accredo
  • BioRx
  • Coram

Thank you to our 2016 Partners, Exhibitors, Non-profit Partners, and Research Studies:

Adult Liver Study
Advanced Aeromedical
Arrowhead Pharmaceuticals, Inc.
COPD Foundation
Heritage Biologics
National Organization for Rare Disorders (NORD)
Patient Services, Inc.
Plasma Protein Therapeutics Association (PPTA)
REACH
State of Florida Detection Program
University of Florida

2015 National Education Conference Highlightsplus

View the full 2015 Conference Agenda here.

2015 Alpha-1 National Conference opens with inspirational Appalachian Trail story, meetings with experts and session on community engagement.

Building Friends for a Cure honors community fundraisers; BFC program has raised more than $5 million over 10 years.

Thank you to our 2015 Presenting Sponsors:

  • AlphaNet
  • Baxalta
  • CSL Behring
  • Grifols

Thank you to our 2015 Lead Sponsor:

Dohmen Life Science Services

Thank you to our 2015 Exhibitors:

  • Accredo
  • BioRx
  • Coram

Thank you to our 2015 Partners, Exhibitors, Non-profit Partners, and Research Studies:

Advanced Aeromedical
COPD Foundation
National Organization for Rare Disorders (NORD)
Patient Services, Inc.
Plasma Protein Therapeutics Association (PPTA)
REACH
University of Florida Clinical Trials
Alpha-1 Antitrypsin Deficiency Adult Clinical and Genetic Linkage Study
Arrowhead Research Corporation

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Platinum Sponsors

AlphaNet
CSL Behring
Grifols
Shire
 
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Gold Sponsor

 
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Silver Sponsors