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E-Education

E-Education

Watch recordings from our past Educational Events at your leisure anywhere and anytime! Our E-Education has more than 400 presentations that cover important Alpha-1 related topics.

You can also search for more presentations on Vimeo at http://vimeo.com/a1f

This program provides the Alpha-1 Community with access to educational programs from our National Conference and National Education Series.

We gratefully acknowledge all our speakers who volunteered their time and gave permission to record and disseminate their presentations.

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The Importance of Exercise

Charlie Strange, MD's, Bio:plus

Dr. Charlie Strange is a Professor of Pulmonary and Critical Care Medicine at the Medical University of South Carolina in Charleston. His interest in Alpha-1 Antitrypsin Deficiency began with participation in the National Heart Lung and Blood Institute Registry in the early 1990s. Today, he manages the Alpha-1 Foundation Research Registry that has enrolled over 3000 individuals with Alpha-1. He directs the Alpha Coded Testing Study that has provided fingerstick blood tests for Alpha-1 testing to greater than 10,000 individuals recording their feelings about testing for a genetic disease. Dr. Strange is the chair of the Medical and Scientific Advisory Board of the Alpha-1 Foundation and a frequent speaker at Alpha-1 support group.

Preparing for Lung Transplant
Topics :

Cesar Keller, MD's, Bio:plus

Cesar Keller is a Medical Director, a Professor of Medicine, and a consultant with the Division of Pulmonary Medicine and Internal Medicine with the Mayo Clinic in Jacksonville Florida. He received his Medical Degree at the University of San Carlos in Guatemala and received his residency at Roosevelt Hospital, the Brooklyn-Cumberland Medical Center, and the State University of New York. Doctor Keller has been listed in Best Doctors® in America for twelve Consecutive Years. In addition to receiving numerous teaching awards, he has received the Distinguished Mayo Clinician Award and the 2010 Brewer Family Career Development Award. Dr. Keller has also published over 75 medical publications.

Infectious Diseases: What Are They & How Do You Avoid Them

Camile Nelson Kotton, MD's, Bio:plus

Camille Nelson is the Clinical Director of the Transplant Infectious Disease and Compromised Host Program at the Massachusetts General Hospital, Harvard Medical School in Boston Massachusetts. She also directs the outpatient Transplant Infectious Disease Clinic. She graduated from the University of Chicago's School of Medicine, and completed her internal medicine training at The Hospital of the University of Pennsylvania followed by an infectious diseases fellowship at both the Massachusetts General Hospital and the Brigham and Women's Hospital. Her clinical interests include donor-derived infections, zoonoses, and travel and tropical medicine in the transplant setting. Her research interests center primarily on vaccines, involving both immune-compromised hosts, as well as live bacterial vectors in normal hosts. She has served on advisory boards involving issues in transplant infectious diseases. Dr. Kotton is the current president of The Transplant Infectious Disease section of The Transplantation Society.

Alpha-1 101: What Every Patient Should Know
Impact of Alpha-1 Antitrypsin Deficiency on Children's Lung Health

Blakeslee E. Noyes, MD's, Bio:plus

Blake Noyes is both the Professor of Pediatrics and the Director of the Division of Pulmonary Medicine at the Saint Louis University School of Medicine and SSM Cardinal Glennon Children's Medical Center. He also serves as the director of the Cystic Fibrosis Center at Cardinal Glennon. Dr. Noyes graduated from Williams College in Williamstown, Massachusetts in 1979 and received his M.D. from Saint Louis University in 1983. Following his residency training at St. Louis University and Cardinal Glennon, he moved to the University of Pittsburgh where he completed a fellowship in Pediatric Pulmonary Medicine in 1986. He is a member of the American Thoracic Society, and has served in a variety of leadership roles in that organization having chaired the Pediatric Assembly of the ATS and served on the Board of Directors. Dr. Noyes has published numerous articles in peer-reviewed journals, has authored several authoritative chapters in textbooks, and has received national and local honors and awards.

Exercise and Pulmonary Disease

Ashley Sisson, M.ED's, Bio:plus

Coming Soon

Building Friends for a Cure

Angela McBride's, Bio:plus

Angela McBride is the Director of Community Relations and Development for the Alpha-1 Foundation. She is responsible for leading the volunteer team in developing resources to ensure a strong base of financial support for the organization's mission to fund research towards a cure for Alpha-1 Antitrypsin Deficiency. Ms. McBride has worked in the Alpha-1 Community for the past 12 years, devoting her time and energy to empowering individuals to support the mission of the Alpha-1 Foundation. In 2010 she received the "Special Appreciation Award" at the 2010 Alpha-1 National Education Conference.

Staying Healthy Through the Winter Months

Amanda Scott, RN's, Bio:plus

Amanda Scott is currently a registered nurse in the Cardiopulmonary Rehabilitation Department at Southern Ohio Medical Center. She has her Bachelor's of Science Degree in Nursing and has been a nurse for 11 years. She thoroughly enjoys her profession as she is passionate about helping others and the importance of physical fitness. She is also currently the support group leader of "Strickly Alphas", an Alpha-1 Association support group in Southern Ohio. She became more passionate about Alpha-1 back in 2008 when her father was diagnosed with the disease. Her father, Jesse Strickland, was informed of the need for Alpha-1 awareness due to the high incidence in this area and also being affected himself, wanted to help by starting a support group. "Strickly Alphas" was formed in May 2011 with great success, having 47 attendees. Because of the need for Alpha-1 awareness and the strong support of "Strickly Alphas", the Alpha-1 Association scheduled this education day.

Basic Nutrition for Lung Affected Alphas

Alina Zhukovskaya's, Bio:plus

Alina Zhukovskaya is an AADP Certified Holistic Health Coach, Raw Food Chef and Detox Specialist. She specializes in making healthy lifestyle changes attainable and fun with her Z-Tips for quick, easy, healthy, delicious and budget-friendly meals. While studying at the Institute for Integrative Nutrition, Alina learned from the best teachers in the field including Dr. Deepak Chopra, Dr. Andrew Weil, Dr. Neal Barnard, Mr. Mark Hyman and Dr. John Douillard to name a few. Alina also holds a Bachelor’s Degree in Design Marketing from Parsons School of Design and a Master’s Degree in Public Communication from American University. Alina is a frequent contributor to eHow.com Food Channel and a blogger for Boca Magazine. She has appeared in numerous magazines and in dozen of TV programs, served on the board of the Fashion Group International in Washington DC and hosted her own cooking TV show in Montgomery County, Maryland.

Alpha-1 PLUS Bronchiectasis

Alex H. Gifford, MD's, Bio:plus

Coming Soon

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