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E-Education

E-Education

Watch recordings from our past Educational Events at your leisure anywhere and anytime! Our E-Education has more than 400 presentations that cover important Alpha-1 related topics.

You can also search for more presentations on Vimeo at http://vimeo.com/a1f

This program provides the Alpha-1 Community with access to educational programs from our National Conference and National Education Series.

We gratefully acknowledge all our speakers who volunteered their time and gave permission to record and disseminate their presentations.

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Emotional Impact of COPD in Alpha-1

Rachel Norwood, MD's, Bio:plus

Rachel Norwood grew up in Colorado and completed both medical school and residency in Psychiatry at the University of Colorado's Science Center. When she graduated, she began her medical career at National Jewish Medical and Research Center in Denver. There, she worked with patients with severe respiratory disease and began her study of the psychosocial impacts of those illnesses. Her research focused on how best to manage the depression that often adds to the difficulties of patients with COPD. She also developed a niche teaching patients how to manage insomnia without medication. After six great years at National Jewish in 2006, she moved into a private practice in psychiatry based in Denver, although she still takes calls at National Jewish while others are away on vacation.

Emotional Impact of COPD in Alpha-1

Rachel Norwood, MD's, Bio:plus

Rachel Norwood grew up in Colorado and completed both medical school and residency in Psychiatry at the University of Colorado's Science Center. When she graduated, she began her medical career at National Jewish Medical and Research Center in Denver. There, she worked with patients with severe respiratory disease and began her study of the psychosocial impacts of those illnesses. Her research focused on how best to manage the depression that often adds to the difficulties of patients with COPD. She also developed a niche teaching patients how to manage insomnia without medication. After six great years at National Jewish in 2006, she moved into a private practice in psychiatry based in Denver, although she still takes calls at National Jewish while others are away on vacation.

Health Care Reform
Speaker : O'Day, , Miriam

Miriam O'Day's, Bio:plus

Miriam O'Day manages Federal government affairs, including legislative and regulatory activities for the Alpha-1 Association and Alpha-1 Foundation. She works closely with membership organizations and coalitions including collaboration with the COPD Community. She is also responsible for Federal Legislative Affairs for the American Association for Respiratory Care (AARC). She chairs the Policy Committee for the US COPD coalition, working closely with the COPD Congressional Caucus.

Overview of Alpha-1 Antitrypsin Deficiency

Michael Krowka, MD's, Bio:plus

Michael Krowka, MD is a Professor of Medicine, and the Vice Chair of the Division of Pulmonary and Critical Care Medicine at the Mayo Clinic in Rochester, MN, a position he has held since 2001. He also chairs the Mayo Clinic Public Affairs Committee. His chief interest lies in the study of Pulmonary hypertension associated with liver diseases. When asked why he chose to serve on the Alpha-1 Association Board, Dr. Krowka responded, "I have enjoyed my volunteer roles with the Alpha-1 community and physicians since the late 1980's. Most recently, I have served on and chaired the Education Materials Working Group (EMWG) for the Alpha -1 Foundation. As Vice-Chair of the Pulmonary Division at the Mayo Clinic (with clinical interests in pulmonary hypertension, lung volume reduction and lung transplantation), my clinical research derives from daily pulmonary consultation in the Mayo Liver Transplant Clinic, which allows me to see patients with Alpha-1 issues from the liver transplantation perspective. Thus, the ongoing education of pulmonary and hepatology Fellows/Residents regarding alpha-1 antitrypsin deficiency is a continued high priority and daily activity. Finally, I see the educational and research relationships between various lung and liver patient care and professional organizations as an important integration to be fostered via training our young physicians to explore innovative approaches to Alpha-1 patient care. In short, I hope to bring an additional educational emphasis to the Alpha-1 Association Board and contribute ideas that affect both the lung and liver aspects of alpha-1 antitrypsin patient care.

Rare Manifestations of Alpha-1

Michael Campos, MD's, Bio:plus

Michael Campos, M.D. is the Assistant Professor of Clinical Medicine at the Division of Pulmonary and Critical Care Medicine at the University of Miami. He graduated from Cayetano Heredia University in Lima, Peru and did all his postgraduate training at the University of Miami. He is board certified in Internal Medicine, Pulmonary Diseases and Critical Care Medicine. He joined the University of Miami after graduation in 2003 and has been an active researcher in COPD and alpha-1 antitrypsin deficiency, performing both clinical and basic science studies. His principal areas of interest include the pathophysiology of airway disease in Alpha-1, the prevalence of Alpha-1 in Hispanics and outcome studies in Alpha-1. His work has led to several recent publications about Alpha-1 in peer reviewed journals.

Nutrition for Alphas
Speaker : Pierce, , Mary
Helpful Hints for Caregivers in the Home

Mary Gilmartin, BSN, RRT's, Bio:plus

Mary Gilmartin graduated from Mount Auburn Hospital in Cambridge, Massachusetts in 1962 and then earned her B.S., Nursing at Excelsior College. Gilmartin has received many honors and awards; taught and lectured throughout the country, and authored numerous publications focusing on Respiratory Care, Ventilator Management, Patient Education, and Rehabilitation. Ms. Gilmartin joined National Jewish Health in 1988 as a Clinical Nurse Specialist. During her tenure at National Jewish, she served as Director of Respiratory Care and Coordinator of the Clinical Research Network. She also conducted clinical research studies related to COPD and genetics. For more than 30 years, Ms. Gilmartin has helped patients with lung disease maintain better control and understanding of their illness. She is now retired from the National Jewish Health.

Lung Transplant Allocation System
Topics : Lung , Transplantation

Martin Zamora, MD's, Bio:plus

Martin R. Zamora, M.D., is Professor of Medicine, Division of Pulmonary Sciences and Critical Care Medicine, at the University of Colorado at Denver School of Medicine, Aurora, Colorado. He is the Medical Director of Lung Transplantation, at the University of Colorado at Denver Health Sciences Center. He received his medical degree from the University of Colorado School of Medicine, and did his internship and residency in Internal Medicine and Pulmonary and Critical Care Fellowship at The University of Colorado Health Sciences Center, Denver. Dr. Zamora has been a member of the American Society of Transplantation Thoracic Committee, a member of the United Network for Organ Sharing Board of Directors, the UNOS Thoracic Committee and Chaired the Lung Allocation Subcommittee and was involved in the development and implementation of the Lung Allocation System. He is a member of several other professional societies. He is the author of several book chapters and over 150 articles and abstracts published in peer-reviewed journals. Dr. Zamora has been an NIH funded researcher, has been the principal investigator of multiple industry sponsored studies, and has been awarded many honors, including most recently the America's Top Doctors Award in 2009 and the Best Doctors in America Award for 2009-2010. His research interests include mechanisms of transplant rejection and the role of viral infections in lung transplant outcomes and the prevention and management of cytomegalovirus infection following solid organ transplantation.

Integrative and Complementary Therapies for Lung Disease

Marshal Hertz, MD's, Bio:plus

Marshall Hertz is the Judith H. and John M. Murphy Professor of Pulmonary, Allergy, Critical Care and Sleep Medicine at theUniversity of Minnesota. He was awarded BS and MD degrees from the University of Michigan. His post-MD training was completed at the University of Minnesota. Dr. Hertz' career has focused on lung transplantation medicine. He has been the Medical Director of the University of Minnesota Lung Transplant program since its inception in 1986 and has published over 100 journal articles and chapters regarding medical aspects of lung transplantation. Recently, Dr. Hertz has become interested in the potential use of integrative therapies by individuals with a variety of lung diseases. He is a co-editor of a soon-to-be published book on "Integrative Therapies in Lung Health and Sleep".

Alpha-1 Lung Disease and Shortness of Breath
Topics : Lung

Mark Brantly, MD's, Bio:plus

Dr. Brantly is Professor of Medicine, Molecular Genetics and Microbiology in the University of Florida’s Division of Pulmonary and Critical Care Medicine. He is also Associate Director of the University of Florida’s Clinical Resource Center. The Alpha-1 Foundation DNA and Tissue Bank is operated under the direction of Dr. Brantly at the University of Florida. He has been extremely active in researching Alpha-1 Antitrypsin Deficiency for over 20 years and has worked with the Alpha-1 Foundation to increase national awareness about the disease and its effects on deficient individuals. Dr. Brantly has been influential in expanding the Florida screening program and has helped coordinate efforts with the Medical University of South Carolina to increase responses to the Alpha-1 Coded Testing Study, a confidential and free testing service encouraging people to screen themselves for early detection. Dr. Brantly has been awarded several honors including the Parker Family Fellowship in Pulmonary Research, the Alpha One Research Professorship, the Alpha-1 National Association Award, and the Visiting Professor Award from the Universita degli Studi di Modena.


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