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E-Education

E-Education

Watch recordings from our past Educational Events at your leisure anywhere and anytime! Our E-Education has more than 400 presentations that cover important Alpha-1 related topics.

You can also search for more presentations on Vimeo at http://vimeo.com/a1f

This program provides the Alpha-1 Community with access to educational programs from our National Conference and National Education Series.

We gratefully acknowledge all our speakers who volunteered their time and gave permission to record and disseminate their presentations.

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Latest Research in Alpha-1 Pediatric Liver Disease

Jeffrey Teckman, MD's, Bio:plus

Jeffrey Teckman is a Professor of Pediatrics and Biochemistry and Molecular Biology at the Saint Louis University School of Medicine, Cardinal Glennon Children's Medical Center. His research involves studying the mechanisms by which liver damage occurs in Alpha-1 Antitrypsin Deficiency and how this damage can be treated and prevented. He is also involved in a variety of national and international clinical studies on liver disease. He has written numerous scientific papers on Alpha-1. He also authored a "Question and Answer Book" for families living with liver disease due to Alpha-1. Dr. Teckman is familiar with patients with lung disease through his late wife who suffered from the lung complications of Cystic Fibrosis and received a lung transplant.

Enviornmental Safety & Precautions for Alphas

Jorge Lascano, MD's, Bio:plus

Jorge Lascano, MD, is the Assistant Director of the Adult Cystic Fibrosis Center at the University of Florida's Department of Medicine Division of Pulmonary, Critical Care and Sleep Medicine. His clinical research interests include Alpha-1, COPD, Cystic Fibrosis and Non-CF Brochiectasis. He is a member of the American Thoracic Society and the American College of Chest Physicians.

Genetics of Alpha-1
Event :
Speaker : McGee, CGC, Dawn
Topics : Genetics

Dawn McGee, CGC's, Bio:plus

Dawn McGee attended Villanova University and obtained a Bachelor of Science degree in Biology and a minor in Psychology. She then went on to obtain her Master of Science degree in Genetic Counseling at Arcadia University. During her genetic counseling training, Dawn completed her thesis research on the experiences of caregivers living with a spouse diagnosed with Huntington’s disease. After graduate school, Dawn worked for two years at Presbyterian Hospital in Charlotte, North Carolina. She worked primarily as a prenatal genetic counselor; however, she also provided genetic counseling services in the cancer center and the intensive care nursery. While in Charlotte, Dawn formed a monthly support group for families with Huntington’s disease and became a board member of the North Carolina Chapter of the Huntington’s Disease Society of America. She was the Director of the Alpha-1 Association Genetic Counseling Center up until 2012.

A Patient Perspective of Lung Transplant
The Importance of Exercise

Trina Limberg, RRT's, Bio:plus

Trina Limberg, BS, RRT, FAARC, FAACVPR, has been working in the field of pulmonary rehabilitation for well over 25 years. She is the Director for the Pulmonary Rehabilitation Department at the University of California San Diego, Medical Center. She has received the distinguished service award from the AACVPR and the Practitioner of the Year award from the AARC. She has served in many leadership and service positions within her state rehab organization, the AARC and on the Board of Directors with the AACVPR. She has dedicated her career to the care and treatment of chronic lung disease patients. Here to give us tips on what we can do to feel better, please welcome Ms. Trina Limberg.

Cardiac Complications of Alpha-1
Tips for traveling with Oxygen

Eben "Skip" Scribner 's, Bio:plus

Skip speaks on respiratory assist devices to the airline industry educating them on allowed and disallowed devices as well as common problems and misconceptions that occur during the travel process. He spoke at the DOT Disability Forum in Cairo, Egypt in December 2009 and Miami, FL in 2010 Retired as a 29-year veteran Fire/Paramedic Lieutenant of the City of Norfolk, VA Fire Rescue service, Skip began his EMS career in the volunteer rescue squad. During his professional EMS career, he was a Neonatal-Transport paramedic with the Children's Hospital of The Kings Daughters Transport Team and was one of the original Flight Paramedics on the Nightingale trauma helicopter in Norfolk, VA. Skip has been a private pilot since 1976 and the founder of Advanced Aeromedical in 1981. The early days were primarily long-haul critical care patients on turbo-props and jets to all points around the globe and he still serves that clientele. Skip's company enables oxygen dependent people to realize their dream as they travel around the globe. This includes logistical coordination for equipment, oxygen and support for trips all over the world. Whether it be an urgently needed POC on the other side of the country for a flight in the morning, or a 10 liter per minute client going on a cruise, he and his staff will calmly and methodically evaluate and provide a solution to the situation in short order.

Cathey Horsak 's, Bio:plus

Cathey Horsak, Director of Community Programs and Outreach, works with Alpha-1 Association Support Groups throughout the United States and with the Support Group Leader Advisory Council to set policy and guidelines for local Support Groups. Cathey works from her office in Texas and is responsible for providing direction, support and guidance to the newly diagnosed Alphas who call the association. Cathey first became involved with the Association as a volunteer after the death of her MZ liver-affected husband, Richard.  As a speaker at Education Days and Support Group Meetings, Cathey has shared her experiences as a caregiver to a liver affected Alpha, detailing Richard’s Alpha story.  As an employee of the Alpha-1 Association, Cathey provides updates on Association programs and goals.

Tips & Techniques Daily Living

Sherrie Evenson 's, Bio:plus

Sherrie began her exercise physiology career in 1981. She has undergraduate and master's degrees in Exercise Science from Eastern Washington University and the University of Massachusetts at Amherst. She works at Adventist Medical Center in Cardiopulmonary Rehab and directs her own business, Onward! Productions. She holds two certifications by the American College of Sports Medicine as a Registered Clinical Exercise Physiologist and as a Cancer Exercise Trainer.

An Alpha-1 Diagnosis: Coping Positively and Family Testing

Sara Wienke, MS, CGC's, Bio:plus

Sara Wienke attended the University of North Carolina at Chapel Hill and obtained a Bachelor of Science degree in Biology with a minor in chemistry. She obtained her Master of Science degree in Genetic Counseling at the University of North Carolina at Chapel Hill. After graduate school, Ms. Wienke moved to Charleston, SC where she has been working at the Medical University of South Carolina (MUSC) as the Program Director of the Alpha-1 Association Genetic Counseling Program for the past year. She had previously taught undergraduate biology labs at UNCG and worked as a lab manager in Cell Biology at Duke University.

Genetics of Alpha-1 & Testing Options

Sara Wienke, MS, CGC's, Bio:plus

Sara Wienke attended the University of North Carolina at Chapel Hill and obtained a Bachelor of Science degree in Biology with a minor in chemistry. She obtained her Master of Science degree in Genetic Counseling at the University of North Carolina at Chapel Hill. After graduate school, Ms. Wienke moved to Charleston, SC where she has been working at the Medical University of South Carolina (MUSC) as the Program Director of the Alpha-1 Association Genetic Counseling Program for the past year. She had previously taught undergraduate biology labs at UNCG and worked as a lab manager in Cell Biology at Duke University.

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