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E-Education

E-Education

Watch recordings from our past Educational Events at your leisure anywhere and anytime! Our E-Education has more than 400 presentations that cover important Alpha-1 related topics.

You can also search for more presentations on Vimeo at http://vimeo.com/a1f

This program provides the Alpha-1 Community with access to educational programs from our National Conference and National Education Series.

We gratefully acknowledge all our speakers who volunteered their time and gave permission to record and disseminate their presentations.

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Infectious Disease and Alpha-1

Camile Nelson Kotton, MD's, Bio:plus

Camille Nelson is the Clinical Director of the Transplant Infectious Disease and Compromised Host Program at the Massachusetts General Hospital, Harvard Medical School in Boston Massachusetts. She also directs the outpatient Transplant Infectious Disease Clinic. She graduated from the University of Chicago's School of Medicine, and completed her internal medicine training at The Hospital of the University of Pennsylvania followed by an infectious diseases fellowship at both the Massachusetts General Hospital and the Brigham and Women's Hospital. Her clinical interests include donor-derived infections, zoonoses, and travel and tropical medicine in the transplant setting. Her research interests center primarily on vaccines, involving both immune-compromised hosts, as well as live bacterial vectors in normal hosts. She has served on advisory boards involving issues in transplant infectious diseases. Dr. Kotton is the current president of The Transplant Infectious Disease section of The Transplantation Society.

Latest Research in Alpha-1 Pediatric Liver Disease

Jeffrey Teckman, MD's, Bio:plus

Jeffrey Teckman is a Professor of Pediatrics and Biochemistry and Molecular Biology at the Saint Louis University School of Medicine, Cardinal Glennon Children's Medical Center. His research involves studying the mechanisms by which liver damage occurs in Alpha-1 Antitrypsin Deficiency and how this damage can be treated and prevented. He is also involved in a variety of national and international clinical studies on liver disease. He has written numerous scientific papers on Alpha-1. He also authored a "Question and Answer Book" for families living with liver disease due to Alpha-1. Dr. Teckman is familiar with patients with lung disease through his late wife who suffered from the lung complications of Cystic Fibrosis and received a lung transplant.

Alpha-1 Testing
Speaker : McGee, CGC, Dawn

Dawn McGee, CGC's, Bio:plus

Dawn McGee attended Villanova University and obtained a Bachelor of Science degree in Biology and a minor in Psychology. She then went on to obtain her Master of Science degree in Genetic Counseling at Arcadia University. During her genetic counseling training, Dawn completed her thesis research on the experiences of caregivers living with a spouse diagnosed with Huntington’s disease. After graduate school, Dawn worked for two years at Presbyterian Hospital in Charlotte, North Carolina. She worked primarily as a prenatal genetic counselor; however, she also provided genetic counseling services in the cancer center and the intensive care nursery. While in Charlotte, Dawn formed a monthly support group for families with Huntington’s disease and became a board member of the North Carolina Chapter of the Huntington’s Disease Society of America. She was the Director of the Alpha-1 Association Genetic Counseling Center up until 2012.

Alpha-1 Liver Disease PLUS Nutrition
Speaker : Koppe, MD, Sean
Topics : Nutrition , Liver
Patient Perspective on Lung Transplant
Speaker : Taylor, , John
Topics : Lung , Transplantation
Alpha-1 Genetics and the Role of Healthcare Providers
Topics : Genetics

Sara Wienke, MS, CGC's, Bio:plus

Sara Wienke attended the University of North Carolina at Chapel Hill and obtained a Bachelor of Science degree in Biology with a minor in chemistry. She obtained her Master of Science degree in Genetic Counseling at the University of North Carolina at Chapel Hill. After graduate school, Ms. Wienke moved to Charleston, SC where she has been working at the Medical University of South Carolina (MUSC) as the Program Director of the Alpha-1 Association Genetic Counseling Program for the past year. She had previously taught undergraduate biology labs at UNCG and worked as a lab manager in Cell Biology at Duke University.

Alpha-1 Liver Disease in Adults & Children

Virginia "Ginger" Clark, MD's, Bio:plus

Virginia "Ginger" Clark serves as the Associate Program Director of the Transplant Hepatology Fellowship and as an Assistant Professor of Medicine at the University of Florida's Division of Gastroenterology, Hepatology, and Nutrition. She has been the recipient of the Fellowship Award from the American Association for the Study of Liver Diseases Advanced Hepatology. Her research interests are focused on Alpha-1 Antitrypsin Deficiency and Fatty Liver Disease. She serves as a member of the Board of Directors of the Alpha-1 Association.

Nutrition in Alpha-1 Antitrypsin Deficiency
Speaker : Lamb, RD, Lisa

Lisa Lamb, RD's, Bio:plus

Lisa attended Florida International University and obtained a Bachelor of Science degree in food and nutrition. Lisa is registered and licensed dietitian in the state of Florida. She has worked in the medical profession for 25 years in varied roles of food service management, nutrition support services,and is a professional speaker and educator.Lisa began her experience with the Alpha-1 community over the last year.

Keynote: The Affordable Care Act and the Shifting Landscape of Health Care
Topics : Advocacy

Marc M. Boutin, Esq.'s, Bio:plus

Marc Boutin is the Executive Vice President and Chief Operating Officer of the National Health Council, an organization that brings together all segments of the health care community to provide a united voice for the more than 133 million people with chronic diseases and disabilities and their family caregivers. In addition to overseeing financial management and operations, Boutin builds consensus among member patient advocacy organizations enabling them to speak with one voice on systemic health research and health care policy initiatives. This united effort results in legislation and regulations that address the collective needs of patients and their family caregivers. Boutin has been actively involved in health advocacy, policy, and both federal and state legislation throughout his career. He is a member of the International Alliance of Patients' Organizations Governing Board, Community Health Charities Board of Directors, PCORI Advisory Panel on Patient Engagement and the North America Advisory Board to the Drug Information Association. He has also served on Institute of Medicine committees, National Institute of Health panels, and the Agency for Healthcare Research and Quality's stakeholder group.

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