Menu

E-Education

E-Education

Watch recordings from our past Educational Events at your leisure anywhere and anytime! Our E-Education has more than 400 presentations that cover important Alpha-1 related topics.

You can also search for more presentations on Vimeo at http://vimeo.com/a1f

This program provides the Alpha-1 Community with access to educational programs from our National Conference and National Education Series.

We gratefully acknowledge all our speakers who volunteered their time and gave permission to record and disseminate their presentations.

Divider
  
Talking to Family Members about Alpha-1
Speaker : McGee, , Dawn

Dawn McGee's, Bio:plus

Miriam O'Day manages Federal government affairs, including legislative and regulatory activities for the Alpha-1 Association and Alpha-1 Foundation. She works closely with membership organizations and coalitions including collaboration with the COPD Community. She is also responsible for Federal Legislative Affairs for the American Association for Respiratory Care (AARC). She chairs the Policy Committee for the US COPD coalition, working closely with the COPD Congressional Caucus.

Keynote Address - Genetics as Your Partner
Topics : Genetics

John Mulvihil , MD's, Bio:plus

John Mulvihill graduated from the College of the Holy Cross, the Dartmouth Medical School, and the University of Washington Medical School. Dr. Mulvihill also trained at University of Washington Hospital and at the Johns Hopkins Hospital. He is a medical geneticist and pediatrician with 20 years experience at the National Cancer Institute, where he was Director of the Inter institute Medical Genetics Program. In 1990, he became founder, chair, and professor of Human Genetics at the University of Pittsburgh and co-director of the Pittsburgh Genetics Institute. In 1998, Dr. Mulvihill accepted the Children’s Medical Research Institute--Kimberly V. Talley Chair of Genetics, Professor of Pediatrics - University of Oklahoma. Dr. Mulvihill has been a member of 13 professional societies and has written 314 scientific articles and edited 13 monographs. His research has focused on the delineation of malformation and of family cancer syndromes, the genetics of human cancer, with an emphasis on late effects, reproductive and genetic, in cancer survivors, and on germ cell mutagenesis.

Alpha-1 Testing
Speaker : McGee, CGC, Dawn

Dawn McGee, CGC's, Bio:plus

Dawn McGee attended Villanova University and obtained a Bachelor of Science degree in Biology and a minor in Psychology. She then went on to obtain her Master of Science degree in Genetic Counseling at Arcadia University. During her genetic counseling training, Dawn completed her thesis research on the experiences of caregivers living with a spouse diagnosed with Huntington’s disease. After graduate school, Dawn worked for two years at Presbyterian Hospital in Charlotte, North Carolina. She worked primarily as a prenatal genetic counselor; however, she also provided genetic counseling services in the cancer center and the intensive care nursery. While in Charlotte, Dawn formed a monthly support group for families with Huntington’s disease and became a board member of the North Carolina Chapter of the Huntington’s Disease Society of America. She was the Director of the Alpha-1 Association Genetic Counseling Center up until 2012.

Alpha-1 Foundation Research Registry
Basics of Alpha-1

Robert A. Sandhaus, MD, PhD, FCCP's, Bio:plus

Robert “Sandy” Sandhaus graduated from Haverford College in Pennsylvania with a degree in molecular biology. He then received a PhD in cell biology and an MD from the State University of New York at Stony Brook. He completed his residency in internal medicine at the Beth Israel Hospital in Boston and a pulmonary fellowship at the University of California San Francisco (UCSF). He was then appointed to the UCSF medical faculty and subsequently joined the medical faulty at the University of Colorado School of Medicine in 1981 where he founded the Alpha1-Antitrypsin Deficiency Program at National Jewish Medical and Research Center in Denver and remains its director. His research throughout his academic career has centered on the role of white blood cell enzymes in the prevention and promotion of lung disease. This work led to a special clinical interest in patients with the genetic deficiency of alpha-1 antitrypsin. In addition to his ongoing academic career. Dr. Sandhaus briefly left medical practice to work in research and development in the biopharmaceutical industry. He ran clinical development programs at Cortech, NeXstar Pharmaceuticals, and Gilead Sciences. Dr. Sandhaus has served on the Boards of Directors of the Alpha-1 Association, the Alpha-1 Foundation, AlphaNet, and the Osteogenesis Imperfecta Foundation. For the past five years, he has been the Executive Vice President and Medical Director of AlphaNet and the Clinical Director of the Alpha-1 Foundation. He is board certified in internal medicine, pulmonary disease, and critical care medicine. He lives in Bow Mar, Colorado.

Genetics of Alpha-1
Topics : Genetics
Genetics of Alpha-1
Topics : Genetics
Genetics of Alpha-1
Topics : Genetics
Alpha-1 Genetics and Family Testing
Importance of Family Testing and Participation in Clinical Trials
Page 3 of 4First   Previous   1  2  [3]  4  Next   Last   

Search


Search


Search

Sponsors

Thank you to our generous program sponsors.

Alphanet
 
CSL Behring
 
EVERSANA
 
Grifols