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E-Education

E-Education

Watch recordings from our past Educational Events at your leisure anywhere and anytime! Our E-Education has more than 400 presentations that cover important Alpha-1 related topics.

You can also search for more presentations on Vimeo at http://vimeo.com/a1f

This program provides the Alpha-1 Community with access to educational programs from our National Conference and National Education Series.

We gratefully acknowledge all our speakers who volunteered their time and gave permission to record and disseminate their presentations.

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Impact of Alpha-1 Diagnosis on Parents and Children (Alpha-1 and Families)

Rachel Norwood, MD's, Bio:plus

Rachel Norwood grew up in Colorado and completed both medical school and residency in Psychiatry at the University of Colorado's Science Center. When she graduated, she began her medical career at National Jewish Medical and Research Center in Denver. There, she worked with patients with severe respiratory disease and began her study of the psychosocial impacts of those illnesses. Her research focused on how best to manage the depression that often adds to the difficulties of patients with COPD. She also developed a niche teaching patients how to manage insomnia without medication. After six great years at National Jewish in 2006, she moved into a private practice in psychiatry based in Denver, although she still takes calls at National Jewish while others are away on vacation.

Clinical Research: Where the Curious Meet the Willing

James Stocks, MD's, Bio:plus

For the past 15 years Dr. Stocks has been a faculty member of the University of Texas Health Center at Tyler. His major research focus has been Alpha-1 Antitrypsin Deficiency. He was a principal investigator in the NHLBI registry of patients with severe Alpha-1 Deficiency from 1988-1995. Over the last decade Dr. Stocks has participated as a principal investigator in almost every pharmaceutical trial for Alpha-1 conducted in the United States. He is a member of the Alpha-1 Foundation's Medical and Scientific Advisory Committee with responsibilities for oversight of the Research Registry. He is a past member of the Alpha-1 Association's Board of Directors.

Coping Positively with an Alpha-1 Diagnosis

Sara Wienke, CGC's, Bio:plus

Sara Wienke attended the University of North Carolina at Chapel Hill and obtained a Bachelor of Science degree in Biology with a minor in chemistry. She obtained her Master of Science degree in Genetic Counseling at the University of North Carolina at Chapel Hill. After graduate school, Ms. Wienke moved to Charleston, SC where she has been working at the Medical University of South Carolina (MUSC) as the Program Director of the Alpha-1 Association Genetic Counseling Program for the past year. She had previously taught undergraduate biology labs at UNCG and worked as a lab manager in Cell Biology at Duke University.

Family Testing Considerations
Speaker : McGee, CGC, Dawn

Dawn McGee, CGC's, Bio:plus

Dawn McGee attended Villanova University and obtained a Bachelor of Science degree in Biology and a minor in Psychology. She then went on to obtain her Master of Science degree in Genetic Counseling at Arcadia University. During her genetic counseling training, Dawn completed her thesis research on the experiences of caregivers living with a spouse diagnosed with Huntington’s disease. After graduate school, Dawn worked for two years at Presbyterian Hospital in Charlotte, North Carolina. She worked primarily as a prenatal genetic counselor; however, she also provided genetic counseling services in the cancer center and the intensive care nursery. While in Charlotte, Dawn formed a monthly support group for families with Huntington’s disease and became a board member of the North Carolina Chapter of the Huntington’s Disease Society of America. She was the Director of the Alpha-1 Association Genetic Counseling Center up until 2012.

Genetics of Alpha-1
Speaker : McGee, CGC, Dawn

Dawn McGee, CGC's, Bio:plus

Dawn McGee attended Villanova University and obtained a Bachelor of Science degree in Biology and a minor in Psychology. She then went on to obtain her Master of Science degree in Genetic Counseling at Arcadia University. During her genetic counseling training, Dawn completed her thesis research on the experiences of caregivers living with a spouse diagnosed with Huntington’s disease. After graduate school, Dawn worked for two years at Presbyterian Hospital in Charlotte, North Carolina. She worked primarily as a prenatal genetic counselor; however, she also provided genetic counseling services in the cancer center and the intensive care nursery. While in Charlotte, Dawn formed a monthly support group for families with Huntington’s disease and became a board member of the North Carolina Chapter of the Huntington’s Disease Society of America. She was the Director of the Alpha-1 Association Genetic Counseling Center up until 2012.

Family Experiences & Alpha-1 Awareness
Speaker : McGee, CGC, Dawn

Dawn McGee, CGC's, Bio:plus

Dawn McGee attended Villanova University and obtained a Bachelor of Science degree in Biology and a minor in Psychology. She then went on to obtain her Master of Science degree in Genetic Counseling at Arcadia University. During her genetic counseling training, Dawn completed her thesis research on the experiences of caregivers living with a spouse diagnosed with Huntington’s disease. After graduate school, Dawn worked for two years at Presbyterian Hospital in Charlotte, North Carolina. She worked primarily as a prenatal genetic counselor; however, she also provided genetic counseling services in the cancer center and the intensive care nursery. While in Charlotte, Dawn formed a monthly support group for families with Huntington’s disease and became a board member of the North Carolina Chapter of the Huntington’s Disease Society of America. She was the Director of the Alpha-1 Association Genetic Counseling Center up until 2012.

Family Testing Successes
Genetics of Alpha-1
Speaker : McGee, CGC, Dawn
Topics : Genetics

Dawn McGee, CGC's, Bio:plus

Dawn McGee attended Villanova University and obtained a Bachelor of Science degree in Biology and a minor in Psychology. She then went on to obtain her Master of Science degree in Genetic Counseling at Arcadia University. During her genetic counseling training, Dawn completed her thesis research on the experiences of caregivers living with a spouse diagnosed with Huntington’s disease. After graduate school, Dawn worked for two years at Presbyterian Hospital in Charlotte, North Carolina. She worked primarily as a prenatal genetic counselor; however, she also provided genetic counseling services in the cancer center and the intensive care nursery. While in Charlotte, Dawn formed a monthly support group for families with Huntington’s disease and became a board member of the North Carolina Chapter of the Huntington’s Disease Society of America. She was the Director of the Alpha-1 Association Genetic Counseling Center up until 2012.

Social Media- Pros and Cons

Sara Weinke, MS, CGC's, Bio:plus

Sara Wienke attended the University of North Carolina at Chapel Hill and obtained a Bachelor of Science degree in Biology with a minor in chemistry. She obtained her Master of Science degree in Genetic Counseling at the University of North Carolina at Chapel Hill. After graduate school, Ms. Wienke moved to Charleston, SC where she has been working at the Medical University of South Carolina (MUSC) as the Program Director of the Alpha-1 Association Genetic Counseling Program for the past year. She had previously taught undergraduate biology labs at UNCG and worked as a lab manager in Cell Biology at Duke University.

Family Testing & Confidentiality

Sara Wienke, MS, CGC's, Bio:plus

Sara Wienke attended the University of North Carolina at Chapel Hill and obtained a Bachelor of Science degree in Biology with a minor in chemistry. She obtained her Master of Science degree in Genetic Counseling at the University of North Carolina at Chapel Hill. After graduate school, Ms. Wienke moved to Charleston, SC where she has been working at the Medical University of South Carolina (MUSC) as the Program Director of the Alpha-1 Association Genetic Counseling Program for the past year. She had previously taught undergraduate biology labs at UNCG and worked as a lab manager in Cell Biology at Duke University.

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