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E-Education

E-Education

Watch recordings from our past Educational Events at your leisure anywhere and anytime! Our E-Education has more than 400 presentations that cover important Alpha-1 related topics.

You can also search for more presentations on Vimeo at http://vimeo.com/a1f

This program provides the Alpha-1 Community with access to educational programs from our National Conference and National Education Series.

We gratefully acknowledge all our speakers who volunteered their time and gave permission to record and disseminate their presentations.

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Alpha-1 Antitrypsin Deficiency 101: Lung & Liver

Alan Barker, MD's, Bio:plus

Dr. Alan Barker is Professor of Medicine at Oregon Health and Science University. He has been involved in the Alpha-1 community for 25 years performing patient care and consultations, being part of national collaborative clinical research, leading educational activities, and promoting awareness efforts. He directs the OHSU Alpha-1 Foundation Center of Excellence in Portland, organizes and attends a monthly education and support group, and organizes and participates in an annual regional educational forum for Alphas, their families and friends.

Robert Sandblom, MD's, Bio:plus

Robert (Rob) Sandblom is a Pulmonary/Critical Care/Sleep consultant with Group Health in Bellevue. He attended University of Washington for both his undergraduate degree in Biology 1968-1972 and Medical School 1972-1976. He completed his Internal Medicine Residency and Chief Residency at the University of New Mexico in 1980, then returned to the University of Washington for his Pulmonary and Critical Care Fellowship. He began to work for Group Health in 1982, and has remained with Group Health ever since. He has a long interest in Alpha-1 Antitrypsin Deficiency and was involved in some of the early research with National Institute of Health on replacement therapy. He participated in the Alpha-1 Antitrypsin Registry and continues to volunteer time for both the University of Washington as clinical faculty, and Group Health and non-Group Health patients with Alpha-1 Antitrypsin Deficiency.

Alpha-1 PLUS Bronchiectasis

Alex H. Gifford, MD's, Bio:plus

Coming Soon

Basic Nutrition for Lung Affected Alphas

Alina Zhukovskaya's, Bio:plus

Alina Zhukovskaya is an AADP Certified Holistic Health Coach, Raw Food Chef and Detox Specialist. She specializes in making healthy lifestyle changes attainable and fun with her Z-Tips for quick, easy, healthy, delicious and budget-friendly meals. While studying at the Institute for Integrative Nutrition, Alina learned from the best teachers in the field including Dr. Deepak Chopra, Dr. Andrew Weil, Dr. Neal Barnard, Mr. Mark Hyman and Dr. John Douillard to name a few. Alina also holds a Bachelor’s Degree in Design Marketing from Parsons School of Design and a Master’s Degree in Public Communication from American University. Alina is a frequent contributor to eHow.com Food Channel and a blogger for Boca Magazine. She has appeared in numerous magazines and in dozen of TV programs, served on the board of the Fashion Group International in Washington DC and hosted her own cooking TV show in Montgomery County, Maryland.

Staying Healthy Through the Winter Months

Amanda Scott, RN's, Bio:plus

Amanda Scott is currently a registered nurse in the Cardiopulmonary Rehabilitation Department at Southern Ohio Medical Center. She has her Bachelor's of Science Degree in Nursing and has been a nurse for 11 years. She thoroughly enjoys her profession as she is passionate about helping others and the importance of physical fitness. She is also currently the support group leader of "Strickly Alphas", an Alpha-1 Association support group in Southern Ohio. She became more passionate about Alpha-1 back in 2008 when her father was diagnosed with the disease. Her father, Jesse Strickland, was informed of the need for Alpha-1 awareness due to the high incidence in this area and also being affected himself, wanted to help by starting a support group. "Strickly Alphas" was formed in May 2011 with great success, having 47 attendees. Because of the need for Alpha-1 awareness and the strong support of "Strickly Alphas", the Alpha-1 Association scheduled this education day.

Exercise and Pulmonary Disease

Ashley Sisson, M.ED's, Bio:plus

Coming Soon

Alpha-1 101: What Every Patient Should Know
Infectious Diseases: What Are They & How Do You Avoid Them

Camile Nelson Kotton, MD's, Bio:plus

Camille Nelson is the Clinical Director of the Transplant Infectious Disease and Compromised Host Program at the Massachusetts General Hospital, Harvard Medical School in Boston Massachusetts. She also directs the outpatient Transplant Infectious Disease Clinic. She graduated from the University of Chicago's School of Medicine, and completed her internal medicine training at The Hospital of the University of Pennsylvania followed by an infectious diseases fellowship at both the Massachusetts General Hospital and the Brigham and Women's Hospital. Her clinical interests include donor-derived infections, zoonoses, and travel and tropical medicine in the transplant setting. Her research interests center primarily on vaccines, involving both immune-compromised hosts, as well as live bacterial vectors in normal hosts. She has served on advisory boards involving issues in transplant infectious diseases. Dr. Kotton is the current president of The Transplant Infectious Disease section of The Transplantation Society.

The Importance of Exercise

Charlie Strange, MD's, Bio:plus

Dr. Charlie Strange is a Professor of Pulmonary and Critical Care Medicine at the Medical University of South Carolina in Charleston. His interest in Alpha-1 Antitrypsin Deficiency began with participation in the National Heart Lung and Blood Institute Registry in the early 1990s. Today, he manages the Alpha-1 Foundation Research Registry that has enrolled over 3000 individuals with Alpha-1. He directs the Alpha Coded Testing Study that has provided fingerstick blood tests for Alpha-1 testing to greater than 10,000 individuals recording their feelings about testing for a genetic disease. Dr. Strange is the chair of the Medical and Scientific Advisory Board of the Alpha-1 Foundation and a frequent speaker at Alpha-1 support group.

Bronchoscopic Lung Volume Reduction for Emphysema Patients

Charlie Strange, MD's, Bio:plus

Dr. Charlie Strange is a Professor of Pulmonary and Critical Care Medicine at the Medical University of South Carolina in Charleston. His interest in Alpha-1 Antitrypsin Deficiency began with participation in the National Heart Lung and Blood Institute Registry in the early 1990s. Today, he manages the Alpha-1 Foundation Research Registry that has enrolled over 3000 individuals with Alpha-1. He directs the Alpha Coded Testing Study that has provided fingerstick blood tests for Alpha-1 testing to greater than 10,000 individuals recording their feelings about testing for a genetic disease. Dr. Strange is the chair of the Medical and Scientific Advisory Board of the Alpha-1 Foundation and a frequent speaker at Alpha-1 support group. 

Pulmonary Function Test Procedures

Cheryl Zirger, RRT, RPSGT's, Bio:plus

Cheryl Zirger, is both a Registered Respiratory Therapist and a Registered Polysomnographic Technician. She routinely performs Pulmonary Function Tests and Bronchoscopies. She enjoys teaching patients to work with their lungs and helping people breath better whether asleep or awake.

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