Watch recordings from our past Educational Events at your leisure anywhere and anytime! Our E-Education has more than 400 presentations that cover important Alpha-1 related topics.
You can also search for more presentations on Vimeo at http://vimeo.com/a1f
This program provides the Alpha-1 Community with access to educational programs from our National Conference and National Education Series.
We gratefully acknowledge all our speakers who volunteered their time and gave permission to record and disseminate their presentations.
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Dr. Alan Barker is Professor of Medicine at Oregon Health and Science University. He has been involved in the Alpha-1 community for 25 years performing patient care and consultations, being part of national collaborative clinical research, leading educational activities, and promoting awareness efforts. He directs the OHSU Alpha-1 Foundation Center of Excellence in Portland, organizes and attends a monthly education and support group, and organizes and participates in an annual regional educational forum for Alphas, their families and friends.
Robert (Rob) Sandblom is a Pulmonary/Critical Care/Sleep consultant with Group Health in Bellevue. He attended University of Washington for both his undergraduate degree in Biology 1968-1972 and Medical School 1972-1976. He completed his Internal Medicine Residency and Chief Residency at the University of New Mexico in 1980, then returned to the University of Washington for his Pulmonary and Critical Care Fellowship. He began to work for Group Health in 1982, and has remained with Group Health ever since. He has a long interest in Alpha-1 Antitrypsin Deficiency and was involved in some of the early research with National Institute of Health on replacement therapy. He participated in the Alpha-1 Antitrypsin Registry and continues to volunteer time for both the University of Washington as clinical faculty, and Group Health and non-Group Health patients with Alpha-1 Antitrypsin Deficiency.
Dr. Charlie Strange is a Professor of Pulmonary and Critical Care Medicine at the Medical University of South Carolina in Charleston. His interest in Alpha-1 Antitrypsin Deficiency began with participation in the National Heart Lung and Blood Institute Registry in the early 1990s. Today, he manages the Alpha-1 Foundation Research Registry that has enrolled over 3000 individuals with Alpha-1. He directs the Alpha Coded Testing Study that has provided fingerstick blood tests for Alpha-1 testing to greater than 10,000 individuals recording their feelings about testing for a genetic disease. Dr. Strange is the chair of the Medical and Scientific Advisory Board of the Alpha-1 Foundation and a frequent speaker at Alpha-1 support group.
Virginia "Ginger" Clark serves as the Associate Program Director of the Transplant Hepatology Fellowship and as an Assistant Professor of Medicine at the University of Florida's Division of Gastroenterology, Hepatology, and Nutrition. She has been the recipient of the Fellowship Award from the American Association for the Study of Liver Diseases Advanced Hepatology. Her research interests are focused on Alpha-1 Antitrypsin Deficiency and Fatty Liver Disease. She serves as a member of the Board of Directors of the Alpha-1 Association.
Jeffrey Teckman is a Professor of Pediatrics and Biochemistry and Molecular Biology at the Saint Louis University School of Medicine, Cardinal Glennon Children's Medical Center. His research involves studying the mechanisms by which liver damage occurs in Alpha-1 Antitrypsin Deficiency and how this damage can be treated and prevented. He is also involved in a variety of national and international clinical studies on liver disease. He has written numerous scientific papers on Alpha-1. He also authored a "Question and Answer Book" for families living with liver disease due to Alpha-1. Dr. Teckman is familiar with patients with lung disease through his late wife who suffered from the lung complications of Cystic Fibrosis and received a lung transplant.
Kyle Hogarth received his medical degree from Case Western Reserve University in Cleveland and completed his residency in internal medicine and a fellowship in pulmonary and critical care medicine at the University of Chicago Medical Center. Dr. Hogarth’s research focuses on improving quality of life and outcomes for patients with AAT deficiency, improving AAT deficiency diagnosis, and improving the early detection and management of lung cancer. He is an investigator in numerous clinical trials for these diseases. In 2009, he received the Department of Medicine Residency Award for Outstanding Teaching. In 2011 and 2007, he received the Department of Medicine’s Outstanding Faculty Clinical Service Award. In addition to his clinical and research work, he is on the Editorial Board for the journals of CHEST and Proceedings of the American Thoracic Society. He runs a large clinic devoted to the care of Alpha-1 patients.
Walk in Memory of Jim Quill
Idaho Alpha-1 Community Outreach Support Group
Idaho Alpha-1 Community Outreach Support Group Meeting - Boise, ID
Heart of Georgia Alpha-1 Support Group
Heart of Georgia Alpha-1 Support Group Meeting - Macon, GA
Bayou City Alphas Support Group
Bayou City Alphas Support Group Meeting - Houston, TX
Connecticut Nutmeggers Support Group
Connecticut Nutmeggers Support Group Meeting - New Britain, CT
Celebration of Life 2019
Portland Alpha-1 Education Day
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