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E-Education

E-Education

Watch recordings from our past Educational Events at your leisure anywhere and anytime! Our E-Education has more than 400 presentations that cover important Alpha-1 related topics.

You can also search for more presentations on Vimeo at http://vimeo.com/a1f

This program provides the Alpha-1 Community with access to educational programs from our National Conference and National Education Series.

We gratefully acknowledge all our speakers who volunteered their time and gave permission to record and disseminate their presentations.

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Impact of Alpha-1 Antitrypsin Deficiency on Children's Lung Health

Blakeslee E. Noyes, MD's, Bio:plus

Blake Noyes is both the Professor of Pediatrics and the Director of the Division of Pulmonary Medicine at the Saint Louis University School of Medicine and SSM Cardinal Glennon Children's Medical Center. He also serves as the director of the Cystic Fibrosis Center at Cardinal Glennon. Dr. Noyes graduated from Williams College in Williamstown, Massachusetts in 1979 and received his M.D. from Saint Louis University in 1983. Following his residency training at St. Louis University and Cardinal Glennon, he moved to the University of Pittsburgh where he completed a fellowship in Pediatric Pulmonary Medicine in 1986. He is a member of the American Thoracic Society, and has served in a variety of leadership roles in that organization having chaired the Pediatric Assembly of the ATS and served on the Board of Directors. Dr. Noyes has published numerous articles in peer-reviewed journals, has authored several authoritative chapters in textbooks, and has received national and local honors and awards.

How to Talk to Your Children About Alpha-1
Speaker : McGee, CGC, Dawn

Dawn McGee, CGC's, Bio:plus

Dawn McGee attended Villanova University and obtained a Bachelor of Science degree in Biology and a minor in Psychology. She then went on to obtain her Master of Science degree in Genetic Counseling at Arcadia University. During her genetic counseling training, Dawn completed her thesis research on the experiences of caregivers living with a spouse diagnosed with Huntington’s disease. After graduate school, Dawn worked for two years at Presbyterian Hospital in Charlotte, North Carolina. She worked primarily as a prenatal genetic counselor; however, she also provided genetic counseling services in the cancer center and the intensive care nursery. While in Charlotte, Dawn formed a monthly support group for families with Huntington’s disease and became a board member of the North Carolina Chapter of the Huntington’s Disease Society of America. She was the Director of the Alpha-1 Association Genetic Counseling Center up until 2012.

Alpha-1 Liver Disease in Adults & Children and Liver Research Update

Jeffrey Teckman, MD's, Bio:plus

Jeffrey Teckman is a Professor of Pediatrics and Biochemistry and Molecular Biology at the Saint Louis University School of Medicine, Cardinal Glennon Children's Medical Center. His research involves studying the mechanisms by which liver damage occurs in Alpha-1 Antitrypsin Deficiency and how this damage can be treated and prevented. He is also involved in a variety of national and international clinical studies on liver disease. He has written numerous scientific papers on Alpha-1. He also authored a "Question and Answer Book" for families living with liver disease due to Alpha-1. Dr. Teckman is familiar with patients with lung disease through his late wife who suffered from the lung complications of Cystic Fibrosis and received a lung transplant.

Alpha-1 Liver Disease: Children & Adults

Jeffrey Teckman, MD's, Bio:plus

Jeffrey Teckman is a Professor of Pediatrics and Biochemistry and Molecular Biology at the Saint Louis University School of Medicine, Cardinal Glennon Children's Medical Center. His research involves studying the mechanisms by which liver damage occurs in Alpha-1 Antitrypsin Deficiency and how this damage can be treated and prevented. He is also involved in a variety of national and international clinical studies on liver disease. He has written numerous scientific papers on Alpha-1. He also authored a "Question and Answer Book" for families living with liver disease due to Alpha-1. Dr. Teckman is familiar with patients with lung disease through his late wife who suffered from the lung complications of Cystic Fibrosis and received a lung transplant.

Latest Research in Alpha-1 Pediatric Liver Disease

Jeffrey Teckman, MD's, Bio:plus

Jeffrey Teckman is a Professor of Pediatrics and Biochemistry and Molecular Biology at the Saint Louis University School of Medicine, Cardinal Glennon Children's Medical Center. His research involves studying the mechanisms by which liver damage occurs in Alpha-1 Antitrypsin Deficiency and how this damage can be treated and prevented. He is also involved in a variety of national and international clinical studies on liver disease. He has written numerous scientific papers on Alpha-1. He also authored a "Question and Answer Book" for families living with liver disease due to Alpha-1. Dr. Teckman is familiar with patients with lung disease through his late wife who suffered from the lung complications of Cystic Fibrosis and received a lung transplant.

Alpha-1 Liver Disease in Adults & Children

Naim Alkhouri, MD's, Bio:plus

Dr. Naim Alkhouri serves as a Staff Physician with Cleveland Clinic's Children's Hospital and Digestive Disease Institute. He is board certified in internal medicine and pediatrics. He completed his medical degree at the University of Damascus, Damascus, Syria. He is a member of several professional organizations, including the American Association for the Study of Liver Disease, American Gastroenterology Association among others. His specialty interests include nonalcoholic fatty liver disease, viral hepatitis, autoimmune liver disease, end stage liver disease, liver transplantation, and inflammatory bowel disease.

Alpha-1 Liver Disease in Adults & Children

Virginia "Ginger" Clark, MD's, Bio:plus

Virginia "Ginger" Clark serves as the Associate Program Director of the Transplant Hepatology Fellowship and as an Assistant Professor of Medicine at the University of Florida's Division of Gastroenterology, Hepatology, and Nutrition. She has been the recipient of the Fellowship Award from the American Association for the Study of Liver Diseases Advanced Hepatology. Her research interests are focused on Alpha-1 Antitrypsin Deficiency and Fatty Liver Disease. She serves as a member of the Board of Directors of the Alpha-1 Association.

Latest Research in Alpha-1 Pediatric Liver Disease

Jeffrey Teckman, MD's, Bio:plus

Jeffrey Teckman is a Professor of Pediatrics and Biochemistry and Molecular Biology at the Saint Louis University School of Medicine, Cardinal Glennon Children's Medical Center. His research involves studying the mechanisms by which liver damage occurs in Alpha-1 Antitrypsin Deficiency and how this damage can be treated and prevented. He is also involved in a variety of national and international clinical studies on liver disease. He has written numerous scientific papers on Alpha-1. He also authored a "Question and Answer Book" for families living with liver disease due to Alpha-1. Dr. Teckman is familiar with patients with lung disease through his late wife who suffered from the lung complications of Cystic Fibrosis and received a lung transplant.

Impact of Alpha-1 Diagnosis on Parents and Children (Alpha-1 and Families)

Rachel Norwood, MD's, Bio:plus

Rachel Norwood grew up in Colorado and completed both medical school and residency in Psychiatry at the University of Colorado's Science Center. When she graduated, she began her medical career at National Jewish Medical and Research Center in Denver. There, she worked with patients with severe respiratory disease and began her study of the psychosocial impacts of those illnesses. Her research focused on how best to manage the depression that often adds to the difficulties of patients with COPD. She also developed a niche teaching patients how to manage insomnia without medication. After six great years at National Jewish in 2006, she moved into a private practice in psychiatry based in Denver, although she still takes calls at National Jewish while others are away on vacation.

Clinical Research: Where the Curious Meet the Willing

James Stocks, MD's, Bio:plus

For the past 15 years Dr. Stocks has been a faculty member of the University of Texas Health Center at Tyler. His major research focus has been Alpha-1 Antitrypsin Deficiency. He was a principal investigator in the NHLBI registry of patients with severe Alpha-1 Deficiency from 1988-1995. Over the last decade Dr. Stocks has participated as a principal investigator in almost every pharmaceutical trial for Alpha-1 conducted in the United States. He is a member of the Alpha-1 Foundation's Medical and Scientific Advisory Committee with responsibilities for oversight of the Research Registry. He is a past member of the Alpha-1 Association's Board of Directors.

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