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E-Education

E-Education

Watch recordings from our past Educational Events at your leisure anywhere and anytime! Our E-Education has more than 400 presentations that cover important Alpha-1 related topics.

You can also search for more presentations on Vimeo at http://vimeo.com/a1f

This program provides the Alpha-1 Community with access to educational programs from our National Conference and National Education Series.

We gratefully acknowledge all our speakers who volunteered their time and gave permission to record and disseminate their presentations.

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Alpha-1 Testing
Speaker : McGee, CGC, Dawn

Dawn McGee, CGC's, Bio:plus

Dawn McGee attended Villanova University and obtained a Bachelor of Science degree in Biology and a minor in Psychology. She then went on to obtain her Master of Science degree in Genetic Counseling at Arcadia University. During her genetic counseling training, Dawn completed her thesis research on the experiences of caregivers living with a spouse diagnosed with Huntington’s disease. After graduate school, Dawn worked for two years at Presbyterian Hospital in Charlotte, North Carolina. She worked primarily as a prenatal genetic counselor; however, she also provided genetic counseling services in the cancer center and the intensive care nursery. While in Charlotte, Dawn formed a monthly support group for families with Huntington’s disease and became a board member of the North Carolina Chapter of the Huntington’s Disease Society of America. She was the Director of the Alpha-1 Association Genetic Counseling Center up until 2012.

What Can You Do to Feel Better?

Trina Limberg, RRT's, Bio:plus

Trina Limberg, BS, RRT, FAARC, FAACVPR, has been working in the field of pulmonary rehabilitation for well over 25 years. She is the Director for the Pulmonary Rehabilitation Department at the University of California San Diego, Medical Center. She has received the distinguished service award from the AACVPR and the Practitioner of the Year award from the AARC. She has served in many leadership and service positions within her state rehab organization, the AARC and on the Board of Directors with the AACVPR. She has dedicated her career to the care and treatment of chronic lung disease patients. Here to give us tips on what we can do to feel better, please welcome Ms. Trina Limberg.

Alpha-1 Lung Disorder and Research Update
Topics : Lung

Robert A. Sandhaus, MD's, Bio:plus

Robert “Sandy” Sandhaus graduated from Haverford College in Pennsylvania with a degree in molecular biology. He then received a PhD in cell biology and an MD from the State University of New York at Stony Brook. He completed his residency in internal medicine at the Beth Israel Hospital in Boston and a pulmonary fellowship at the University of California San Francisco (UCSF). He was then appointed to the UCSF medical faculty and subsequently joined the medical faulty at the University of Colorado School of Medicine in 1981 where he founded the Alpha1-Antitrypsin Deficiency Program at National Jewish Medical and Research Center in Denver and remains its director. His research throughout his academic career has centered on the role of white blood cell enzymes in the prevention and promotion of lung disease. This work led to a special clinical interest in patients with the genetic deficiency of alpha-1 antitrypsin. In addition to his ongoing academic career. Dr. Sandhaus briefly left medical practice to work in research and development in the biopharmaceutical industry. He ran clinical development programs at Cortech, NeXstar Pharmaceuticals, and Gilead Sciences. Dr. Sandhaus has served on the Boards of Directors of the Alpha-1 Association, the Alpha-1 Foundation, AlphaNet, and the Osteogenesis Imperfecta Foundation. For the past five years, he has been the Executive Vice President and Medical Director of AlphaNet and the Clinical Director of the Alpha-1 Foundation. He is board certified in internal medicine, pulmonary disease, and critical care medicine. He lives in Bow Mar, Colorado.

This Alpha's Path to Action and Accountability

Karen Erickson's, Bio:plus

Karen is a lung-affected Alpha who resides in Newbury Park, California. Karen has been active in the Alpha-1 Community for four years.   She has ridden her bike under the Team Alpha-1 banner in bike treks throughout California and in the annual Cape Cod Bike Trek in Massachusetts bike ride. She created and produced t-shirts to create awareness for Alpha-1. She has been an Alpha-1 speaker at the American Thoracic Society and has spoken at Support Group meetings. She is a member of the Alpha-1 Association Los Angeles Support Group.  Karen says, “First and foremost, I will put myself to work to find a cure for Alpha-1 Antitrypsin Deficiency. My intentions with the Alpha-1 Association will follow that goal. I am under the firm belief that the empowerment of our patient population through education, advocacy and support will lend itself to that end."

Alpha-1 Antitrypsin Liver Diseases in Adults
Topics : Liver

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