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E-Education

E-Education

Watch recordings from our past Educational Events at your leisure anywhere and anytime! Our E-Education has more than 400 presentations that cover important Alpha-1 related topics.

You can also search for more presentations on Vimeo at http://vimeo.com/a1f

This program provides the Alpha-1 Community with access to educational programs from our National Conference and National Education Series.

We gratefully acknowledge all our speakers who volunteered their time and gave permission to record and disseminate their presentations.

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Strangers in a Strange Land: Supporting the Newly Diagnosed

Bonnie Charkravorty, PhD's, Bio:plus

Bonnie Chakravorty, PhD, MSW, CHES, Professor, Tennessee State University, is currently the Principal Investigator on a study of psychosocial aspects of Multiple Sclerosis funded by the National Multiple Sclerosis Society. She is on the Board of Directors of AlphaNet, Inc., and is a leader in the American Public Health Association's HIV/AIDS Section. She was diagnosed with Alpha-1 in 1997.

Liver Allocation

Julie Heimbach, MD's, Bio:plus

Julie Heimbach is an Associate Professor of Surgery and the Surgical Director of Liver Transplantation at Mayo Clinic in Rochester, MN. She completed her undergraduate degree at Carleton College in Northfield, MN, attended Medical School at the University of Minnesota and completed her surgical residency at the University of Colorado. Dr. Heimbach completed her transplantation Surgery Fellowship training at Mayo Clinic in Rochester, MN and then was subsequently hired on staff. Major research interests include living donor transplantation, cholangiocarcinoma, and issues of obesity and transplantation. Dr. Heimbach currently serves on the United Network for Organ Sharing (UNOS) Liver Intestine Committee and has a s

Healthcare Co-pay
Speaker : Romano, , James
Topics : Advocacy

James Romano's, Bio:plus

James is Director of Government Relations for Patient Services Incorporated. He began his career in patient advocacy at 19, lobbying Congress for passage of the Ricky Ray Hemophilia Relief Fund Act on behalf of the Hemophilia Community. Mr.Romano is the fourth generation of his family to advocate for the plasma community. He worked on Capitol Hill as a legislative assistant and as a contract lobbyist. Mr. Romano earned a BA from Marymount University, an MPA from George Mason University and is currently working on his MBA. He resides in Fredericksburg, Virginia with his wife and daughter whom he is training to be the fifth generation to advocate for the plasma community.

Alpha-1 Testing
Speaker : McGee, CGC, Dawn

Dawn McGee, CGC's, Bio:plus

Dawn McGee attended Villanova University and obtained a Bachelor of Science degree in Biology and a minor in Psychology. She then went on to obtain her Master of Science degree in Genetic Counseling at Arcadia University. During her genetic counseling training, Dawn completed her thesis research on the experiences of caregivers living with a spouse diagnosed with Huntington’s disease. After graduate school, Dawn worked for two years at Presbyterian Hospital in Charlotte, North Carolina. She worked primarily as a prenatal genetic counselor; however, she also provided genetic counseling services in the cancer center and the intensive care nursery. While in Charlotte, Dawn formed a monthly support group for families with Huntington’s disease and became a board member of the North Carolina Chapter of the Huntington’s Disease Society of America. She was the Director of the Alpha-1 Association Genetic Counseling Center up until 2012.

Regenerative Medicine: Exploring a New Frontier
Topics : Research

Stephen D. Cassivi, MD's, Bio:plus

Stephen Cassivi received his Doctorate in university of Ottawa. He completed his General Surgery residency at the University of Toronto, Canada and is certified by the Royal College of Physicians and Surgeons of Canada and the American Board of Surgery. He completed a subspecialty fellowship in Cardiothoracic Surgery at Washington University in St. Louis, Missouri and is certified by the American Board of Thoracic Surgery. In 1998, Dr. Cassivi was awarded the 1st Annual C. Walton Lillehei Award for research in Lung Transplantation from the American Association for Thoracic Surgery. In 2004, Dr. Cassivi was named Surgical Director of the Lung Transplantation Program at Mayo Clinic in Rochester, Minnesota.

Tips for traveling with Oxygen

Eben "Skip" Scribner 's, Bio:plus

Skip speaks on respiratory assist devices to the airline industry educating them on allowed and disallowed devices as well as common problems and misconceptions that occur during the travel process. He spoke at the DOT Disability Forum in Cairo, Egypt in December 2009 and Miami, FL in 2010 Retired as a 29-year veteran Fire/Paramedic Lieutenant of the City of Norfolk, VA Fire Rescue service, Skip began his EMS career in the volunteer rescue squad. During his professional EMS career, he was a Neonatal-Transport paramedic with the Children's Hospital of The Kings Daughters Transport Team and was one of the original Flight Paramedics on the Nightingale trauma helicopter in Norfolk, VA. Skip has been a private pilot since 1976 and the founder of Advanced Aeromedical in 1981. The early days were primarily long-haul critical care patients on turbo-props and jets to all points around the globe and he still serves that clientele. Skip's company enables oxygen dependent people to realize their dream as they travel around the globe. This includes logistical coordination for equipment, oxygen and support for trips all over the world. Whether it be an urgently needed POC on the other side of the country for a flight in the morning, or a 10 liter per minute client going on a cruise, he and his staff will calmly and methodically evaluate and provide a solution to the situation in short order.

Cathey Horsak 's, Bio:plus

Cathey Horsak, Director of Community Programs and Outreach, works with Alpha-1 Association Support Groups throughout the United States and with the Support Group Leader Advisory Council to set policy and guidelines for local Support Groups. Cathey works from her office in Texas and is responsible for providing direction, support and guidance to the newly diagnosed Alphas who call the association. Cathey first became involved with the Association as a volunteer after the death of her MZ liver-affected husband, Richard.  As a speaker at Education Days and Support Group Meetings, Cathey has shared her experiences as a caregiver to a liver affected Alpha, detailing Richard’s Alpha story.  As an employee of the Alpha-1 Association, Cathey provides updates on Association programs and goals.

Integrative and Complementary Therapies for Lung Disease

Marshal Hertz, MD's, Bio:plus

Marshall Hertz is the Judith H. and John M. Murphy Professor of Pulmonary, Allergy, Critical Care and Sleep Medicine at theUniversity of Minnesota. He was awarded BS and MD degrees from the University of Michigan. His post-MD training was completed at the University of Minnesota. Dr. Hertz' career has focused on lung transplantation medicine. He has been the Medical Director of the University of Minnesota Lung Transplant program since its inception in 1986 and has published over 100 journal articles and chapters regarding medical aspects of lung transplantation. Recently, Dr. Hertz has become interested in the potential use of integrative therapies by individuals with a variety of lung diseases. He is a co-editor of a soon-to-be published book on "Integrative Therapies in Lung Health and Sleep".

Nutrition in Alpha-1 Antitrypsin Deficiency
Speaker : Lamb, RD, Lisa

Lisa Lamb, RD's, Bio:plus

Lisa attended Florida International University and obtained a Bachelor of Science degree in food and nutrition. Lisa is registered and licensed dietitian in the state of Florida. She has worked in the medical profession for 25 years in varied roles of food service management, nutrition support services,and is a professional speaker and educator.Lisa began her experience with the Alpha-1 community over the last year.

The Importance of Exercise

Charlie Strange, MD's, Bio:plus

Dr. Charlie Strange is a Professor of Pulmonary and Critical Care Medicine at the Medical University of South Carolina in Charleston. His interest in Alpha-1 Antitrypsin Deficiency began with participation in the National Heart Lung and Blood Institute Registry in the early 1990s. Today, he manages the Alpha-1 Foundation Research Registry that has enrolled over 3000 individuals with Alpha-1. He directs the Alpha Coded Testing Study that has provided fingerstick blood tests for Alpha-1 testing to greater than 10,000 individuals recording their feelings about testing for a genetic disease. Dr. Strange is the chair of the Medical and Scientific Advisory Board of the Alpha-1 Foundation and a frequent speaker at Alpha-1 support group.


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